News

News

Haemophilia and sickle cell disease: Increasing our impact together in Guinea

Haemophilia and sickle cell disease: Increasing our impact together in Guinea

We are pleased to announce the signing of a new partnership agreement between the Novo Nordisk Haemophilia Foundation (NNHF) and the Fondation Pierre Fabre (FPF) to jointly improve awareness, diagnosis, care, and advocacy for blood disorders in Guinea. The two foundations have signed a Memorandum of Understanding (MoU) to leverage synergies through their respective programmes…

NNHF Grantee Perception Report 2022: Setting new benchmarks for impacting haemophilia care

What are we doing well? How can we do better? What strengths and opportunities can we at the Novo…

New projects approved: October 2022

4 new projects were approved at the last NNHF Council meeting on 26 October 2022 Since 2005 the NNHF…

NNHF Community Award 2022: Recognising an inspirational leader and patient advocate in Honduras

Maria del Carmen Agurcia made a major impact on improving haemophilia care in Honduras The recipient of the Novo…

Making progress towards multidisciplinary care in Bolivia

Cochabamba is located in the Valle region of central Bolivia, a country with a comparatively low diagnosis rate for…
1 November 2021

NNHF Community Award 2021: Celebrating a highly inclusive and caring partner

Dr Magda Rakha, President of the Egyptian Society of Hemophilia, Cairo, received the NNHF Community Award 2021 We are pleased to announce that the NNHF Community Award 2021 has been given to Dr Magda Rakha for her long-term commitment to people living with haemophilia in Egypt. As President of the Egyptian Society of Hemophilia (ESH),…
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Decentralising diagnosis in Peru

In 2017, the haemophilia diagnosis rate in Peru stood at 17%, with diagnosis only available in the capital city,…

Improving diagnosis and multidisciplinary care in Nepal

In 2019, haemophilia diagnosis was only available in Nepal’s capital city, Kathmandu. The country’s mountainous landscape made travelling for…

Improving multidisciplinary and preventive care in Mauritius

In 2019, whilst treatment was included on the Essential Drugs List in Mauritius, it was only available in hospitals…

Mali: A safer route to care and treatment

In 2021, Hawa would face a tough choice if one of her two sons had a bleed: Embarking on…

Leveraging partnerships to maximise impact

In 2022, we continued our partnerships with the Fondation Pierre Fabre, the International Society on Thrombosis and Haemostasis (ISTH),…

Meet our expert volunteers

We rely on a global network of expert volunteers to support our projects through training and knowledge sharing, both…

Haemophilia and sickle cell disease: Increasing our impact together in Guinea

We are pleased to announce the signing of a new partnership agreement between the Novo Nordisk Haemophilia Foundation (NNHF)…

NNHF Grantee Perception Report 2022: Setting new benchmarks for impacting haemophilia care

What are we doing well? How can we do better? What strengths and opportunities can we at the Novo…

New projects approved: October 2022

4 new projects were approved at the last NNHF Council meeting on 26 October 2022 Since 2005 the NNHF…

NNHF Community Award 2022: Recognising an inspirational leader and patient advocate in Honduras

Maria del Carmen Agurcia made a major impact on improving haemophilia care in Honduras The recipient of the Novo…

Making progress towards multidisciplinary care in Bolivia

Cochabamba is located in the Valle region of central Bolivia, a country with a comparatively low diagnosis rate for…

Dr Tulika Seth elected as NNHF Council Member

Dr Seth brings deep expertise, strong leadership and knowledge of India’s complex healthcare system We are pleased to announce…

Joining together for World Sickle Cell Day to improve blood disorders diagnosis and care

Sickle cell disease (SCD) and haemophilia are two different types of inherited blood disorders. A drive to accelerate access…

New projects approved: May 2022

The NNHF Council approved 6 new projects at its last meeting on 12 May 2022. The NNHF programme portfolio…

Innovative AI Chatbot app for people with haemophilia launched in Dakar-Senegal

People living with haemophilia in Senegal can now access information and advice about bleeding disorders via a new application…

Strengthening haemophilia care in Southern Thailand

“My name is Daniel and I’m 18 years old. I live in Songkhla, in the southern part of Thailand,…

Establishing basic care through education and awareness

“My name is Salifu Gaye, and I’m a physician at Edward Frances Small Teaching Hospital (EFTH) in Banjul. I…

Improving quality of life through education

“I am Liliana Diaz Diez, a schoolteacher in Mar del Plata, Argentina. During one of the virtual training sessions…

Sustainable diagnosis through training

“My name is Mylner Oliveira Fermiano de Souza and I am a biomedical haematologist by training. I’ve been working…

Strengthening care in Shandong

“My name is Peng Keyi and I am proud to be a volunteer helping people with haemophilia in Jinan,…

Gaining expertise to expand care in Western Georgia

“I’m Dr Gurtchumelia Darejani from Kutaisi, the only paediatric haematologist in my region. I’ve been working in haemophilia for…

Creating a national network of referral and training centres

“Hi, I’m Shashank. I am 21 years old and live with haemophilia A in Bangalore. Today I am fortunate…

Working together to advance care for haemophilia and sickle cell disease

The “Accelerating access to blood disorders care in Kenya and Tanzania” project is co-funded by the Novo Nordisk Foundation…

Impacting haemophilia and sickle cell disease in Northern Province

“My name is Dr Satchmo Shyamayanda, a paediatrician and department head responsible for children’s health at Kasama General Hospital….

Training the trainers, empowering the community

“I am Dr Natalia Padilla, a paediatric haematologist at Hospital General de Occidente in Zapopan, near Guadalajara. I was…

Empowering the haemophilia community and strengthening care

“I am Dr Olivat Aimée Rakoto Alson, a full professor of haematology and head of the haemophilia department at…

A marathon for haemophilia awareness

“I’m Mofota Makoae and I’m 29 years old. I’ve been involved with the Haemophilia Association of Lesotho since 2017,…

Expert volunteers for greater impact

We would like to recognise the expert volunteers who teamed up with NNHF partners to support training and knowledge…

Announcing our NNHF Project of the Year 2022

Congratulations to Dr Ciprian Tomuleasa and the team for transforming diagnosis and care in north Romania, and creating a…

Kenya and Tanzania: A year of advancing care for haemophilia and sickle cell disease

Project partners mark one year of accelerating access to blood disorders care in Kenya and Tanzania with four days…

Joining forces for better diagnosis and care of blood disorders in Burkina Faso

We are delighted to announce the signing of a Memorandum of Understanding between the Fondation Pierre Fabre (FPF) and…

Partnering for impact in India: Bringing quality haemophilia care closer to home

Despite the ongoing COVID-19 pandemic, Dr Tulika Seth and the project team have built strong training networks and obtained…

Ulla Hedner takes on an advisory role with NNHF as Emeritus Council Member

Dr Hedner announces her decision to step down as NNHF Council Member from 2022. Ulla Hedner has announced her…

New projects approved: October 2021

7 new projects were approved by the NNHF Council at its last meeting on 27 October 2021. The NNHF…
Dr Magda Rakha from Egypt - winner of the NNHF Community Award 2021

NNHF Community Award 2021: Celebrating a highly inclusive and caring partner

Dr Magda Rakha, President of the Egyptian Society of Hemophilia, Cairo, received the NNHF Community Award 2021 We are…
Awa Babington-Ashaye

Artificial intelligence to improve quality of life for people with haemophilia in Africa

Can artificial intelligence power digital solutions to support people living with haemophilia in low-resource regions? That is the question…

ISTH and NNHF initiate collaboration to build capacity for bleeding disorders

We are pleased to announce the signing of a Memorandum of Understanding between the Novo Nordisk Haemophilia Foundation (NNHF)…

Successful succession planning: Botswana project leaders work together to ensure a smooth transition

What happens when the leadership changes on a project in progress? Communication, teamwork, and knowledge transfer are all keys…

Haemophilia and sickle cell disease: together for greater impact

What better occasion than World Sickle Cell Day to share how NNHF partners are positively impacting the lives of…

New projects approved

6 new projects were approved by the NNHF Council at its last meeting on 26 May 2021. Since 2005…

NNHF launches 2021-25 strategy to continue ‘Impacting care. Together’

Strategic goals to strengthen network, foster advocacy and expand funding will increase support for the haemophilia and allied bleeding…

Bringing haemophilia care closer to home

Access to care should not depend upon where you live. That simple idea is the driving force behind NNHF’s…

Collaborating and communicating to impact care

Teamwork and dialogue are powerful tools for building a strong haemophilia community. This philosophy has helped Engels Reyes, who…

Stepping up advocacy to strengthen haemophilia care

When flights were cancelled throughout 2020 due to the COVID-19 pandemic, people with haemophilia in Nepal could have risked…

Building impact through awareness and outreach

Fewer than 80 cases of haemophilia had been documented in Mozambique when the national patient organisation first submitted its…

Going virtual to support the haemophilia community at home

How can we help people with haemophilia to better cope with staying home? What tools or activities can be…

Joining forces for better care of blood disorders

What began as an off-shoot of Kenya’s fourth project supported by the Novo Nordisk Haemophilia Foundation has grown into…

Empowering people with haemophilia on the journey to self-management

Accessing medical care in the world’s biggest island country can be challenging at the best of times and especially…

Unifying and aligning around a common goal

India’s haemophilia community bears many of the same hallmarks as the country itself: big, fast-growing and richly diverse. Since…

Strengthening life skills for people with haemophilia

Empathy. Self-awareness. Problem-solving. Coping with stress and emotions. These are some of what the World Health Organisation defines as…

Sharing knowledge and hope with pandemic positivity

Albania’s first project supported by the Novo Nordisk Haemophilia Foundation kicked off its activities just in time for World…

NNHF announces Project of the Year 2021

Congratulations to our South Africa 4 project partners for going above and beyond in the past three years to…

Shared stories, shared values

In 2020 we celebrated our 15th anniversary by sharing 15 inspirational stories showing how some of our partners have…

Growing stronger with COVID-19: An exceptional year for the haemophilia community

An online drawing event for young people with haemophilia in West Bengal, training sessions broadcast live on social channels…

Kenya-Tanzania joint project: Official launch event in Nairobi

Ministry of Health representatives from both countries were among those attending the official launch in Nairobi of the NNHF…

Kenya-Tanzania joint project launch: Building together for better diagnosis and treatment

People living with haematological disorders in Kenya and Tanzania are set to benefit from a new joint NNHF project…

Uruguay 3 project: Expanding diagnosis and knowledge-sharing to transform care

An expanded haemophilia diagnosis and treatment network in northern Uruguay combined with a holistic approach to care makes a…

NNHF Council Presidency changes

Jesper Brandgaard decides to resign from the Novo Nordisk Haemophilia Foundation (NNHF) Council presidency. Ludovic Helfgott is appointed new…

NNHF Community Award 2020: Building partnerships in Pakistan

Congratulations to Mr Masood Fareed Malik, haemophilia patient advocate and winner of the NNHF Community Award 2020! Mr Masood…

Successful haemophilia advocacy plan: interview with the Nepal Hemophilia Society

After years of advocacy efforts, a major breakthrough happened in Nepal in the end of 2019, where one out…

Kenya 4 project: Joining together for better care of blood disorders

Lea Kilenga was diagnosed with sickle cell anaemia at just three months old. The diagnosis came as no surprise:…

New projects approved

The NNHF Council approved 7 new projects at its last meeting on 20 May 2020. With Gambia and Ivory…

Covid-19: Unprecedented challenges led to unprecedented initiatives in the haemophilia community

The coronavirus pandemic has confronted the world with an unprecedented situation. Since the outbreak of the pandemic, the Novo…

Nabila Hussenii (India): Rare, extraordinary, strong

Do you know a synonym for rare is ‘extraordinary’? Yes, I’m rare, but I’m also extraordinary. As a female…

Ashutosh Sharma (India): Advocating for haemophilia care closer to home

Accessing care and treatment was a challenge when I was growing up in Jind, Haryana. I started showing symptoms…

Lilian Hollington (South Africa): Love overcomes all challenges

My son Kurt was diagnosed with haemophilia at six months old. It was the seventh time I’d brought him…

Mohsin Hassan Qazi (Pakistan): Living an active life

My parents were told I had haemophilia when I was 2 years old. At that time there were no…

Chris Davis (South Africa): Overcoming challenges in lockdown

On Friday 10 April 2020, Leeman Matutu developed a bleed into his hip causing lots of pain. He could…

Stīngaciu family (Romania): Exchanging experiences and smiles

We are Marius, Dănuț and Lili Stīngaciu, a family whose 15-year old son is living with severe haemophilia A….

Shaping the future of haemophilia care in South Africa

By engaging youth in South Africa, this project grew to focus on developing an active haemophilia community across the…

Expanding haemophilia diagnosis and care to the north of the country

Expanding haemophilia diagnosis and care beyond the capital city to include the north of the country was the key…

Nerissa Roberts (South Africa): A personal quest to raise awareness

My son Ezra was diagnosed with haemophilia just a few days after birth, when he was circumcised and the…

Empowerment through social media

A strategic media engagement workshop had a far-reaching and long-lasting impact on raising the voice of Romania’s haemophilia community….

A united bleeding disorders community of Pakistan

The current Pakistan project adds to the success of the fifth NNHF project in Pakistan by continuing to build…

Empowering local care teams in Northern Myanmar

Since 2018, the third NNHF project in Myanmar has been showing the immense power of collaboration and the project…

Improving diagnosis and standardising care

The main objective of the seventh NNHF project in Mexico is to increase the knowledge of the multidisciplinary team…

Expanding and decentralising haemophilia care

Historically, people with bleeding disorders in Ghana faced huge challenges in receiving diagnosis or care due to lack of…

Use of technology to monitor health outcomes and personalise care

The innovative third NNHF project in Chile resulted in the creation of an online registry and musculoskeletal health mobile…

Team up to build sustainable haemophilia care

Building on the success of the first project in Cambodia, which provided training for healthcare professionals in five regions,…

Knowledge sharing between neighbours

Facing parallel challenges in haemophilia awareness and care, two countries joined forces with a collaborative training initiative in the…

Acquiring knowledge to inspire others

The project team of this first NNHF project in Bangladesh, aware of the need to improve haemophilia care in…

Connecting an autonomous Republic

The Nakhchivan Autonomous Republic of Azerbaijan is separated from the rest of the country, making access to haemophilia care…

Strengthening musculoskeletal care for people with bleeding disorders

The fourth NNHF project in Argentina centred initially on training in the province of Salta in Argentina, while going…

Syed Shabistan (Pakistan): The joy of volunteering

Before I was diagnosed with severe haemophilia A, one of the biggest obstacles I faced was people thinking it…
Clinic opening

Zambia 1 project: Informing, building and changing lives

Low awareness and access to haemophilia care had been issues in Zambia for years In 2018 the Zambia Ministry…

Mali 1 project: reaching out to ensure a better life for people with haemophilia

Improve haemophilia care by capacity building and awareness creation. “As a child I remember watching other kids playing football…

New projects approved

9 new projects were approved by the NNHF Council at its last meeting on 29 October. We look forward…

Cuba 2 project: Connecting care across Cuba

Decentralisation of comprehensive care to two centres in the East and establishment of a national reference centre for women…

Egypt 2 project: leading the way to innovative musculoskeletal care

Improving musculoskeletal (MSK) care and establishing a MSK-registry to collect outcome date. A dedicated team are making enduring improvements…
Dr Kibet Shikuku from Kenya

NNHF Community Award 2019: A unifying leader

Congratulations to Dr Kibet Shikuku from Kenya, the winner of the Community Award 2019! In 2012, Dr Shikuku undertook…

Team up to reach out in 2019

Throughout 2019, we are asking our partners to ‘team up to reach out’. This could mean collaborating with international…

NNHF Project of the Year 2019

We are delighted to announce that the NNHF Council has selected India 7 as the 2019 NNHF Project of…

Brazil 4: Bringing haemophilia care closer to home

Strengthening the care and education network for haemophilia in the state of Pará in Brazil The challenge In 2015,…

Argentina 2 project: The art of better care

Creation of a cross-institutional and multidisciplinary care network to offer a comprehensive approach in the South of Buenos Aires…

Myanmar 3 project: Expanding care in Northern Myanmar

As Myo Aung makes his way to the haematology unit at Mandalay General Hospital, fellow hospital visitors move aside…

Argentina 3 project: Planting the seeds of progress

Outreach to patients with haemophilia in the province of Jujuy Buenos Aires has well-established haemophilia care where people with…

NNHF Community Award 2018: Teamwork that is felt throughout Africa

This year we are proud to announce the winner of the NNHF Community Award 2018: Professor Johnny Mahlangu. Professor…