Novo Nordisk Haemophilia Foundation (NNHF) partners with local and international community members to make change a reality for people with haemophilia, wherever they live. Our activities on the ground help improve access to care and quality of life for people with haemophilia and allied bleeding disorders.
Collaboration is a critical part of designing a future where everyone with haemophilia and allied bleeding disorders has equal access to care. We work with project partners in the countries who drive real change, local community members who provide hands-on support, global experts and disease area specialists who share their knowledge, and our Foundation Council whose experts support and motivate project partners and staff.
By teaming up with country-specific partners and international experts, NNHF’s programmes have helped diagnose or re-test over 29,700 people with haemophilia. More than 49,300 healthcare professionals have been trained and 59,000 people with haemophilia and family members have benefitted from educational activities.
Specialised training of healthcare professionals through lectures and workshops, either on-site or abroad. Strengthening project teams and patient organisations through organisational development. Developing and implementing national treatment guidelines, producing educational material and other relevant tools.
Improving ability to diagnose through better laboratory facilities and requisite skills training for staff, the establishment of quality assurance processes. Establishing and updating registries.
Engaging community leaders and the wider public by raising awareness about bleeding disorders, engaging strategically media and authorities, and advocating for improved access to care and treatment to achieve systemic change.
Sharing learnings is a fundamental aspect of our efforts to improve care. By encouraging learning sharing amongst our partners, we aim to strengthen the sustainable impact of their programmes. We foster an environment where project partners, international experts, people with haemophilia and the wider community can exchange knowledge and share best practices.
Inspired by the health system building blocks of the WHO Health Systems Framework, NNHF has developed a framework to analyse and evaluate care for bleeding disorders in a specific country or region.
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