Our approach

Novo Nordisk Haemophilia Foundation (NNHF) partners with local and international community members to make change a reality for people with haemophilia, wherever they live. Our activities on the ground help improve access to care and quality of life for people with haemophilia and allied bleeding disorders.

Collaboration is a critical part of designing a future where everyone with haemophilia and allied bleeding disorders has equal access to care. We work with project partners in the countries who drive real change, local community members who provide hands-on support, global experts and disease area specialists who share their knowledge, and our Foundation Council whose experts support and motivate project partners and staff.

By teaming up with country-specific partners and international experts, NNHF’s programmes have helped diagnose or re-test over 44,800 people with haemophilia. More than 57,200 healthcare professionals have been trained and 580 haemophilia centres were established or strengthened (data 2005- 30 June 2023).

Focus areas

Capacity building

Specialised training of healthcare professionals through lectures and workshops, either on-site or abroad. Strengthening project teams and patient organisations through organisational development. Developing and implementing national treatment guidelines, producing educational material and other relevant tools.

Diagnosis and registry

Improving ability to diagnose through better laboratory facilities and requisite skills training for staff, the establishment of quality assurance processes. Establishing and updating registries.

Awareness and advocacy

Engaging community leaders and the wider public by raising awareness about bleeding disorders, engaging strategically media and authorities, and advocating for improved access to care and treatment to achieve systemic change.

Sharing learnings

Sharing learnings is a fundamental aspect of our efforts to improve care. By encouraging learning sharing amongst our partners, we aim to strengthen the sustainable impact of their programmes. We foster an environment where project partners, international experts, people with haemophilia and the wider community can exchange knowledge and share best practices.

NNHF haemophilia care framework

Inspired by the health system building blocks of the WHO Health Systems Framework, NNHF has developed a framework to analyse and evaluate care for bleeding disorders in a specific country or region.

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