Our vision

All people with haemophilia and allied blood disorders access care and treatment, wherever they live.

Striving for better access to care

The Novo Nordisk Haemophilia Foundation (NNHF) is driven by its vision that all people with haemophilia and allied disorders access care and treatment, wherever they live.

Established in 2005 in Zurich, Switzerland, the NNHF is mainly funded by Novo Nordisk while also receiving donations from other organisations and private benefactors, 100% of which are allocated to projects.

The NNHF funds projects to build capacity for diagnosis and care, encouraging its partners to join forces for sustainable impact and systemic change. Together, we strive to empower people with haemophilia and allied disorders to raise awareness, advocate with a united voice and live full lives.

Impacting care together

 

About haemophilia

Haemophilia is a hereditary bleeding disorder affecting approximately 1 in every 10,000 people. People with haemophilia have either decreased, defective or absent production of blood clotting proteins.

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Our approach

Novo Nordisk Haemophilia Foundation (NNHF) partners with local and international community members to make change a reality for people with haemophilia, wherever they live.

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Our team

NNHF is governed by the Foundation Council, which ensures the organisation’s goals, activities and structures are as transparent as possible.

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Focus areas

Together with our partners, we define and fund programmes that strengthen health systems to enable better care and treatment for people living with haemophilia and allied disorders.

  • Capacity building

    Empowering people with haemophilia, their families and patient organisations through awareness-building and training; creating and expanding medical networks, developing or strengthening care centres, training healthcare professionals and improving the organisation of care delivery – so that people with haemophilia and allied disorders can access care closer to home.

  • Diagnosis and registry

    Establishing laboratory facilities and providing training for technicians to enable quality diagnosis; establishing quality assurance processes to ensure accurate diagnoses; developing and updating patient registries to provide the quality data needed to support systemic change.

  • Awareness and advocacy

    Empowering the bleeding and allied disorders community to advocate for systemic change; raising awareness to identify more people living with haemophilia, decrease stigma and improve overall their quality of life.

How is NNHF structured
and governed?

NNHF is a non-profit organisation. As a grant-making foundation, NNHF is an associated partner of SwissFoundations and aligns its governance standards with the principles and recommendations of the Swiss Foundation Code.

  • NNHF Council

    NNHF is governed by the Foundation Council. The Council comprises globally renowned experts in the field of haemophilia and allied bleeding disorders, alongside members from Novo Nordisk.

    NNHF Council members exercise their duty without remuneration except for the reimbursement of their expenses.

  • Operationally managed by the NNHF team

    The NNHF Management Team is responsible for the operational management of NNHF and supports its partners in delivering results-oriented projects.

    NNHF’s annual financial statements are audited and Swiss authorities inspect the foundation’s financial and liquidity planning along with its financial reporting to ensure that NNHF proceeds are spent in accordance with its objectives.

  • Our Council – rules and responsibilities

    The NNHF Council oversees the foundation’s goals, activities and structures in transparency and alignment with its purpose. The Council convenes at least twice a year and is the supervisory and main decision body of the NNHF to ensure proper handling and distribution of funds.

    The NNHF Council entrusts day-to-day management to NNHF Management Team.