We collaborate with local
and global community
partners to improve
Since 2005, we have supported haemophilia programmes in developing countries all across the world, showing that small actions lead to big change when people team up and work towards a shared goal.
NNHF in numbers
Committed to improving care
Successful haemophilia advocacy plan: interview with the Nepal Hemophilia Society
After years of advocacy efforts, a major breakthrough happened in Nepal in the end of 2019, where one out…
Kenya 4 project: Joining together for better care of blood disorders
Lea Kilenga was diagnosed with sickle cell anaemia at just three months old. The diagnosis came as no surprise:…
New projects approved
The NNHF Council approved 7 new projects at its last meeting on 20 May 2020. With Gambia and Ivory…
Covid-19: Unprecedented challenges led to unprecedented initiatives in the haemophilia community
The coronavirus pandemic has confronted the world with an unprecedented situation. Since the outbreak of the pandemic, the Novo…
Nabila Hussenii (India): Rare, extraordinary, strong
Do you know a synonym for rare is ‘extraordinary’? Yes, I’m rare, but I’m also extraordinary. As a female…
Ashutosh Sharma (India): Advocating for haemophilia care closer to home
Accessing care and treatment was a challenge when I was growing up in Jind, Haryana. I started showing symptoms…
Lilian Hollington (South Africa): Love overcomes all challenges
My son Kurt was diagnosed with haemophilia at six months old. It was the seventh time I’d brought him…
Mohsin Hassan Qazi (Pakistan): Living an active life
My parents were told I had haemophilia when I was 2 years old. At that time there were no…
Chris Davis (South Africa): Overcoming challenges in lockdown
On Friday 10 April 2020, Leeman Matutu developed a bleed into his hip causing lots of pain. He could…
Stīngaciu family (Romania): Exchanging experiences and smiles
We are Marius, Dănuț and Lili Stīngaciu, a family whose 15-year old son is living with severe haemophilia A….
Shaping the future of haemophilia care in South Africa
By engaging youth in South Africa, this project grew to focus on developing an active haemophilia community across the…
Watch these videos to see the impact of the work NNHF carries out with partners and international experts, in developing and emerging countries.
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