NNHF funds sustainable programmes that ensure access to quality care for people with haemophilia living in low- and middle-income countries.
By teaming up with country-specific partners and haemophilia experts, NNHF’s programmes have helped diagnose over 44,800 people. More than 57,200 healthcare professionals have been trained and 580 haemophilia centres have been established or strengthened.
Specialised training of healthcare professionals through lectures and workshops, either on-site or abroad. Creating and implementing national treatment guidelines, educational material and other relevant tools.
Diagnosis and registry
Improving ability to diagnose through better laboratory facilities and requisite skills training for staff, the establishment of quality assurance processes. Establishing and updating registries.
Awareness and advocacy
Engaging community leaders and the wider public by raising awareness about bleeding disorders, engaging strategically media and authorities, and advocating for improved access to care and treatment to achieve systemic change.
27 August 2023
Announcing the NNHF Project of the Year 2023
Argentina 5, Mar del Plata project Significant improvements in the quality of life for people with haemophilia have been achieved through education and awareness, thanks to a two-year project led by haematologist Dr Gabriela Sliba and Mrs Maria del Carmen Jodar, President of the patient organisation Fundación Hemofilia MDQ in Mar del Plata. The project…