Grassroots programmes across the globe

NNHF funds sustainable programmes addressing equity in access to haemophilia and blood disorders care in low- and middle-income countries.

Programmes in numbers

Here is a grasp of what we have achieved in a cooperation with country-specific partners and haemophilia experts from all over the world.

Diagnosed or re-diagnosed people with bleeding disorders

Trained healthcare professionals

Established haemophilia centres

Our portfolio of programmes

Scroll through the list to discover the programmes supported by NNHF all over the world.

Filter by:

Name

Country

India 10 (Dhule) project

India

	Description	Description Awareness and Educational project in the region around Dhule
	Focus Areas	Focus Areas Education, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Harshal Kale
	Institution	Institution Haemophilia Federation India, Dhule Chapter
	Started	Started Q4 2013
	Duration	Duration 1 year
	Status	Status Completed

Mexico 5 fellowship

Mexico

	Description	Description Rehabilitation in haemophilia care
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Mariela Colin Marin
	Institution	Institution IMSS Hospital
	Started	Started Q3 2017
	Duration	Duration 1 month
	Status	Status Completed

Nigeria 2 project

Nigeria

	Description	Description Activate and strengthen the medical and patients community in Nigeria
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Megan Buckie Adediran
	Institution	Institution Haemophilia Foundation of Nigeria
	Started	Started Q4 2014
	Duration	Duration 2 year
	Status	Status Completed

Argentina 1 (Salta) project

Argentina

	Description	Description Comprehensive approach to patients with haemophilia and their families in the province of Salta
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) María Sol Cruz
	Institution	Institution Haemophilia Foundation of Salta
	Started	Started Q3 2012
	Duration	Duration 1.5 years
	Status	Status Awards

Kenya 1 fellowship

Kenya

	Description	Description Advanced clinical and diagnosis haemophilia training
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Kibet Peter Shikuku
	Institution	Institution Kenyatta National Hospital
	Started	Started Q3 2012
	Duration	Duration 1 year
	Status	Status Completed

Argentina 3 fellowship

Argentina

	Description	Description Psychological individual and group approach to the patient with haemophilia and his family
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Daniela María Belén Serpa
	Institution	Institution Haemophilia Foundation of Salta
	Started	Started Q3 2013
	Duration	Duration 4 weeks
	Status	Status Completed

Algeria 1 project

Algeria

	Description	Description Programme towards national comprehensive care
	Focus Areas	Focus Areas Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Meriem Belhani
	Institution	Institution Société Algerienne d’Hématologie et de Transfusion Sanguine (SAHTS)
	Started	Started Q4 2006
	Duration	Duration 3 years
	Status	Status Completed

Kenya 2 project

Kenya

	Description	Description Formalise Kenya Hemophilia Association and start to get active with circumcision campaigns
	Focus Areas	Focus Areas Diagnosis, Registry, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Kibet Shikuku
	Institution	Institution Kenya Hemophilia Association
	Started	Started Q3 2014
	Duration	Duration 6 month
	Status	Status Completed

Mexico 6 fellowship

Mexico

	Description	Description Advanced rehabilitation training
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Aidee Gibraltar Conde
	Institution	Institution Medical Unit of High Specialty, Unit of Physical Medicine and Rehabilitation North, IMSS
	Started	Started Q3 2017
	Duration	Duration 1 month
	Status	Status Completed

Azerbaijan 1 project

Azerbaijan

	Description	Description Decentralisation of care through capacity building for HCPs, diagnosis and patient education
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Gulnara Huseynova
	Institution	Institution Azerbaijan Republic Association of Hemophilia
	Started	Started Q1 2013
	Duration	Duration 1.5 years
	Status	Status Completed

Palestine 2 project

State of Palestine

	Description	Description Establish haemophilia care in Gaza Strip and empower the haemophilia community in Palestine
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Osama Najjar
	Institution	Institution Ministry of Health
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Costa Rica 1 fellowship

Costa Rica

	Description	Description Specialised training in multidisciplinary haemophilia care
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Danny Ugalde Solera
	Institution	Institution Hospital Nacional de Niños
	Started	Started Q1 2015
	Duration	Duration 1 month
	Status	Status Completed

Nepal 2 project

Nepal

	Description	Description Improving diagnosis and multidisciplinary care in Nepal
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Manil Shrestha, Suraksha Thapa
	Institution	Institution Nepal Hemophilia Society
	Started	Started Q1 2019
	Duration	Duration 3 years
	Status	Status Completed

Pakistan 6 project

Pakistan

	Description	Description Building partnerships to create awareness and improve care
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hassan Raza
	Institution	Institution Pakistan Hemophilia Patients Welfare Society (PHPWS)
	Started	Started Q3 2017
	Duration	Duration 2 years
	Status	Status Completed

Armenia 2 project

Armenia

	Description	Description Establish rehabilitation capacity and decentralise haemophilia care in Armenia
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Samvel Danielyan, Heghine Khachatryan
	Institution	Institution Haematology Center after Prof. R.H.Yeolyan
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

China 10 project

China

	Description	Description Strengthening comprehensive care and empowering children and families in six provinces of China
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Runhui Wu
	Institution	Institution Beijing children’s hospital,Capital medical university
	Started	Started Q1 2019
	Duration	Duration 3 years
	Status	Status Completed

Georgia 1 project

Georgia

	Description	Description Spreading knowledge about haemophilia and improving quality of diagnosis and treatment in Georgia
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Levani Makhaldiani
	Institution	Institution Georgian Society of Thrombosis and Haemostasis
	Started	Started Q1 2014
	Duration	Duration 2 years
	Status	Status Completed

Kenya 3 fellowship

Kenya

	Description	Description Effective management and resource utilisation for bleeding disorders in Western Kenya
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Afude Jacob Injere
	Institution	Institution MOI Teaching and referral Hospital
	Started	Started Q1 2015
	Duration	Duration 6 months
	Status	Status Completed

Venezuela & Mexico Desafío del Caribe

Venezuela

	Description	Description Desafio del Caribe 2011/2012
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Cesar Garrido, Carlos Gaitán
	Institution	Institution Asociación Venezolana de la Hemofilia (AVH)
	Started	Started Q3 2011
	Duration	Duration 1.5 years
	Status	Status Completed

Nigeria 1 – NG1

Nigeria

	Description	Description Improving Clinicians Knowledge from across Nigeria and patients capacity building in the South West region
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Megan Buckie Adediran
	Institution	Institution Haemophilia Foundation of Nigeria
	Started	Started Q1 2013
	Duration	Duration 1 year
	Status	Status Completed

Ethiopia 1 fellowship

Ethiopia

	Description	Description To gain knowledge to establish haematology including management of haemophilia as a daily activity in the Medical Department at Myungsung Christian Medical Centre
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Hiwot Dereje
	Institution	Institution Myungsung Christian Medical Centre (MCM Hospital)
	Started	Started 2011
	Duration	Duration cancelled
	Status	Status Cancelled

Argentina 1 (Salta) project

Argentina

	Description	Description Comprehensive approach to patients with haemophilia and their families in the province of Salta
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) María Sol Cruz
	Institution	Institution Haemophilia Foundation of Salta
	Started	Started Q3 2012
	Duration	Duration 1.5 years
	Status	Status Completed

Argentina 4 project

Argentina

	Description	Description Comprehensive muscle and osteoarticular approach for people with bleeding disorders
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Maria Sol Cruz
	Institution	Institution Haemophilia Foundation of Salta
	Started	Started Q2 2017
	Duration	Duration 2 years
	Status	Status Completed

Malaysia 1 project

Malaysia

	Description	Description Educational Camps for Haemophilia and von Willebrand Disease Patients & Parents
	Focus Areas	Focus Areas Education, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Faraizah Abdul Karim
	Institution	Institution National Blood Centre PDN (Pusat Darah Negara)
	Started	Started Q2 2008
	Duration	Duration 3 years
	Status	Status Completed

Indonesia 1 project

Indonesia

	Description	Description Improve Regional Haemophilia Care Centres
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Novie Amelia Chozie
	Institution	Institution Indonesian Society of Hematology & Blood Transfusion
	Started	Started Q1 2013
	Duration	Duration 2 years
	Status	Status Completed

Honduras 1 project

Honduras

	Description	Description Epidemiologistic Identification of people with Hemophilia in Honduras (EIPHH)
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Armando Peña Hernández
	Institution	Institution Hospital Escuela, Department of Paediatric Hemato-oncology
	Started	Started Q2 2011
	Duration	Duration 1.5 years
	Status	Status Completed

Honduras 1 project

Honduras

	Description	Description Epidemiologistic Identification of people with Hemophilia in Honduras (EIPHH)
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Armando Peña Hernández
	Institution	Institution Hospital Escuela, Department of Paediatric Hemato-oncology
	Started	Started Q2 2011
	Duration	Duration 1.5 years
	Status	Status Awards

Romania 1 project

Romania

	Description	Description Improvement of haemophilia care in Romania
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Margit Serban
	Institution	Institution Emergency Clinical Hospital “Louis Turcanu” Haemophilia Centre
	Started	Started Q1 2007
	Duration	Duration 2 years
	Status	Status Completed

Kenya 4 project

Kenya

	Description	Description Provide standardised quality care across Kenya
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Kibet Shikuku
	Institution	Institution Kenya Haemophilia Association (KHA)
	Started	Started Q2 2018
	Duration	Duration 2 years
	Status	Status Completed

Brazil 1 fellowship

Brazil

	Description	Description Development of effective physiotherapy care to improve quality of life in patients with haemophilia.
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Janaina Bosso J. Silva
	Institution	Institution State University of Campinas
	Started	Started Q1 2010
	Duration	Duration 8 weeks
	Status	Status Completed

Malawi 2 fellowship

Malawi

	Description	Description Build diagnosis capacity in Malawi
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Blessing Mwagomba
	Institution	Institution Dr David Livingstone Memorial
	Started	Started Q1 2017
	Duration	Duration 1.5 months
	Status	Status Completed

Mexico 5 (State of Mexico) project

Mexico

	Description	Description Creation of comprehensive haemophilia clinic of ISSEMyM
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Cecilia Rodríguez Castillejos
	Institution	Institution Haemophilia clinic of Maternal-Infant Hospital ISSEMyM
	Started	Started Q1 2017
	Duration	Duration 1.5 years
	Status	Status Completed

Nepal 1 project

Nepal

	Description	Description Strengthening the local chapters of Nepal Hemophilia Society to achieve better care through advocacy
	Focus Areas	Focus Areas Education, Advocacy, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Beda Raj Dhungana
	Institution	Institution Nepal Hemophilia Society (NHS)
	Started	Started Q1 2015
	Duration	Duration 6 months
	Status	Status Completed

Cuba 2 fellowship

Cuba

	Description	Description MSK training in haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Armando Javier Tejera Valdés
	Institution	Institution Hospital General Docente Dr. Antonio Luaces Iraola
	Started	Started Q2 2017
	Duration	Duration 1 month
	Status	Status Cancelled

Uzbekistan 1 project

Uzbekistan

	Description	Description Improve haemophilia diagnostic and treatment level
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Aziza Makhmudova
	Institution	Institution Hematology and Transfusion Scientific Institute
	Started	Started Q2 2006
	Duration	Duration 1 year
	Status	Status Completed

India 3 fellowship

India

	Description	Description Management of rare bleeding disorders
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Hemlata Das
	Institution	Institution Institute of Medical Science and SUM Hospital
	Started	Started Q4 2014
	Duration	Duration 4 months
	Status	Status Completed

Mexico 1 fellowship

Mexico

	Description	Description Strengthening multidisciplinary care in Chihuahua – training focussing on surgery in haemophilia patients
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) José Luis López Arroyo
	Institution	Institution General Hospital Zone N° 35 – Mexican Social Security Institute (IMSS)
	Started	Started Q3 2014
	Duration	Duration 1 month
	Status	Status Completed

India 1 fellowship

India

	Description	Description Comprehensive clinical and laboratory training in haemophilia and allied bleeding disorders
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Nita Radhakrishnan
	Institution	Institution Sir Ganga Ram Hospital
	Started	Started Q1 2012
	Duration	Duration 6 months
	Status	Status Completed

Brazil 2 project

Brazil

	Description	Description Improve MSK status of PWH in Brazil by Measuring, Analysing, Disseminating and Educating – the way to correct, prevent and optimise the treatment
	Focus Areas	Focus Areas Education, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Margareth Castro Ozelo
	Institution	Institution IHTC “Luiz Cláudio Pizzigatti Correa”, Hemocentro UNICAMP (State University of Campinas)
	Started	Started Q2 2011
	Duration	Duration 3 years
	Status	Status Completed

Vietnam 1 project

Vietnam

	Description	Description Haemophilia prevalence, diagnosis and management in the north of Vietnam
	Focus Areas	Focus Areas Education, Diagnosis, Registry
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Duong Ba Truc Duong Ba Truc
	Institution	Institution National Paediatrics Hospital
	Started	Started Q4 2008
	Duration	Duration 2 years
	Status	Status Completed

Mexico 2 fellowship

Mexico

	Description	Description Management of haemophilic arthropathy in people with haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Roque Nicolás Fernández Muñoz
	Institution	Institution General Hospital Zone N° 35 – Mexican Social Security Institute (IMSS)
	Started	Started Q3 2014
	Duration	Duration 1 month
	Status	Status Completed

Uzbekistan 2 project

Uzbekistan

	Description	Description School for children admitted to the national haemophilia treatment centre
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Aziza Makhmudova
	Institution	Institution Centre of Haemophilia and Depression of Haematopoiesis
	Started	Started Q4 2008
	Duration	Duration 1 year
	Status	Status Completed

South Africa 2 (Eastern Cape) project

South Africa

	Description	Description Rural care and reference centre development
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Richard Johnson
	Institution	Institution Igazi Foundation
	Started	Started Q3 2012
	Duration	Duration 1 year
	Status	Status Completed

Morocco 1 project

Morocco

	Description	Description Road to comprehensive haemophilia care in Morocco
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) El-Khorassani , Jaoud Chbihi
	Institution	Institution University Hospital Rabat/ Hopital Pédiatrique CHU Ibn Sina
	Started	Started Q3 2011
	Duration	Duration 1 year
	Status	Status Completed

Community Award 2016

Uzbekistan

	Description	Description Community Award 2016
	Focus Areas	Focus Areas
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Aziza Makhmudova
	Institution	Institution Scientific Research Institute Hematology and Blood transfusion
	Started	Started 2016
	Duration	Duration 1 year
	Status	Status Awards

Cuba 1 fellowship

Cuba

	Description	Description Training in theoretical and practical techniques in coagulation laboratory
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Elizabeth Cruz Gómez
	Institution	Institution Juan Bruno Zayas Surgical and Clinical Hospital
	Started	Started Q1 2014
	Duration	Duration 3 months
	Status	Status Cancelled

Tanzania 2 fellowship

Tanzania

	Description	Description Start haemophilia care in Southern Tanzania
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Goreth Lupembe
	Institution	Institution Mbeya Referral Hospital
	Started	Started Q1 2017
	Duration	Duration 3 months
	Status	Status Completed

Venezuela 2 (Marco Polo) project

Venezuela

	Description	Description Marco Polo – Improvement of quality of diagnosis of hereditary bleeding disorders on a national level
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Arlette Ruiz de Sáez, Cesar Garrido
	Institution	Institution Venezuela Haemophilia Association (AVH) and National Haemophilia Centre (CNH)
	Started	Started Q3 2010
	Duration	Duration 3 years
	Status	Status Completed

Sri Lanka 1 project

Sri Lanka

	Description	Description Improve Physiotherapy and Musculoskeletal training and awareness for HCPs and Haemophilia community
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Pinsiri B. Godamunna
	Institution	Institution Haemophilia Association of Sri Lanka
	Started	Started Q2 2015
	Duration	Duration 2 years
	Status	Status Completed

Mexico 3 project

Mexico

	Description	Description Set up paediatric rehabilitation to prevent functional limitations in children in two hospitals in Mexico City
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Io Daiela Castillo Martinez
	Institution	Institution Hospital Infantil de México Federico Gómez (HIMFG)
	Started	Started Q4 2014
	Duration	Duration 1.5 years
	Status	Status Completed

Mexico 4 fellowship

Mexico

	Description	Description Improving laboratory performance to achieve quality diagnosis for children with bleeding disorders
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Claudia Farfan Becerril
	Institution	Institution National Paediatrics Institute – INP (accredited by the Seguro Popular)
	Started	Started Q3 2014
	Duration	Duration 2 weeks
	Status	Status Completed

Chile 1 fellowship

Chile

	Description	Description The role of the nurse in a haemophilia care team
	Focus Areas	Focus Areas Diagnosis
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Andrea Contreras Garrido
	Institution	Institution Hospital Sótero del Río
	Started	Started Q4 2014
	Duration	Duration 1 month
	Status	Status Completed

Colombia 1 fellowship

Colombia

	Description	Description Advanced training in physiotherapy of patients with haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Adriana Orejuela
	Institution	Institution Fundación Corpomedica
	Started	Started Q1 2013
	Duration	Duration 5 weeks
	Status	Status Completed

Nicaragua 2 project

Nicaragua

	Description	Description Haemophilia care outreach in Nicaragua
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Engels Rolando Reyes Sánchez, René Berrios Cruz
	Institution	Institution Asociación Nicaragüense de Hemofilia
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Panama 2 fellowship

Panama

	Description	Description Use of ultrasound in the diagnosis of haematomas and haemarthrosis
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Benilda González Lao
	Institution	Institution Hospital del Niño
	Started	Started Q2 2016
	Duration	Duration 1 month
	Status	Status Completed

Mexico 4 project

Mexico

	Description	Description National alliance for a cross-sectorial haemophilia programme
	Focus Areas	Focus Areas Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Martha Monteros
	Institution	Institution Mexican Haemophilia Federation (FHRM)
	Started	Started Q2 2017
	Duration	Duration 3 years
	Status	Status Completed

Pakistan 5 project

Pakistan

	Description	Description Bringing change by improving access to care and awareness: Ca-pacity building and leadership initiative
	Focus Areas	Focus Areas Education, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Masood Fareed Malik
	Institution	Institution Pakistan Haemophilia Patients Welfare Society (PHPWS)
	Started	Started Q3 2014
	Duration	Duration 2 years
	Status	Status Awards

Peru 2 project

Peru

	Description	Description Training of social workers in haemophilia in Peru
	Focus Areas	Focus Areas Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Carmen Emperatriz Castro Abad
	Institution	Institution Peruvian Haemophilia Association
	Started	Started Q1 2016
	Duration	Duration 1 year
	Status	Status Completed

Senegal 1 fellowship

Senegal

	Description	Description Advanced clinical & laboratory training in diagnosis & monitoring of haemophilia
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Diariatou Sy Bah
	Institution	Institution National Blood Transfusion Centre
	Started	Started Q1 2012
	Duration	Duration 9 months
	Status	Status Completed

Turkey 1 project

Turkey

	Description	Description Peer-to-peer healthcare professional and patient educational meetings in the Eastern part of Turkey
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Kaan Kavakli
	Institution	Institution Turkish Federation of Haemophilia Societies
	Started	Started Q1 2013
	Duration	Duration 15 months
	Status	Status Completed

Uzbekistan 3 project

Uzbekistan

	Description	Description Improve regional treatment
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Aziza Makhmudova
	Institution	Institution Scientific Research Institution of Haematology and Blood Transfusion
	Started	Started Q3 2012
	Duration	Duration 2 years
	Status	Status Completed

India 9 (West Bengal) project

India

	Description	Description Identify, diagnose and empower people with haemophilia in West Bengal
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Ajoy Roy, Subhajit Banerjee
	Institution	Institution HEMOPHILIA SOCIETY- DURGAPUR CHAPTER
	Started	Started Q3 2018
	Duration	Duration 3 year
	Status	Status Completed

Peru 1 (Cajamarca) project

Peru

	Description	Description Strengthening the laboratory and the multidisciplinary care team in the Regional Hospital of Cajamarca
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Pedro Lovato Ríos
	Institution	Institution Regional Hospital of Cajamarca
	Started	Started Q2 2014
	Duration	Duration 1 year
	Status	Status Cancelled

India 3 project

India

	Description	Description Spread awareness, building capacity, and diagnostics spectrum in haemophilia-(Spread ABCD Spectrum project) in northern India
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Naresh Gupta
	Institution	Institution Maulana Azad Medical College
	Started	Started Q3 2013
	Duration	Duration 2 years
	Status	Status Completed

Thailand 1 fellowship

Thailand

	Description	Description Research in Haemostasis and Thrombosis
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Noppacharn Uaprasert
	Institution	Institution Faculty of Medicine Chulalongkorn University
	Started	Started Q3 2009
	Duration	Duration 1 year
	Status	Status Completed

Cuba 2 project

Cuba

	Description	Description Decentralisation of comprehensive care to two centres in the East and establishment of a national reference centre for women with bleeding disorders in Havana
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) José M. Ballester Santovenia, Dunia Castillo
	Institution	Institution Instituto de Hematología e Immunologia (IHI)
	Started	Started Q3 2016
	Duration	Duration 2 years
	Status	Status Completed

Colombia 5 fellowship

Colombia

	Description	Description Training in physiotherapy to improve care for people with haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Lina Teresa Mateus Díaz
	Institution	Institution IPS Especializada
	Started	Started Q2 2016
	Duration	Duration 1 month
	Status	Status Completed

Bulgaria 2 project

Bulgaria

	Description	Description Extension of comprehensive care to a national level
	Focus Areas	Focus Areas Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Toshko Jelev Lissitchkov
	Institution	Institution Comprehensive Haemophilia Treatment Centre, Haematology Hospital “Joan Pavel”
	Started	Started Q2 2009
	Duration	Duration 2 years
	Status	Status Completed

Cuba 1 project

Cuba

	Description	Description Establishment of Haemophilia Comprehensive Care
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) José M. Ballester Santovenia, Delfina Almagro Vázquez
	Institution	Institution Instituto de Hematología e Immunologia (IHI)
	Started	Started Q2 2008
	Duration	Duration 2 years
	Status	Status Completed

Tanzania 1 project

Tanzania

	Description	Description Seed funding of Haemophilia Outreach project in Tanzania
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Richard Minja
	Institution	Institution Save One Life for Haemophilia Society of Tanzania (HST)
	Started	Started Q4 2009
	Duration	Duration 1 year
	Status	Status Completed

Namibia 1 project

Namibia

	Description	Description Establish a basic multidisciplinary team in Windhoek and improve haemophilia management in Namibia
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Immanuel Mayiji, Regina Roeber
	Institution	Institution Namibian Haemophilia Foundation
	Started	Started Q1 2019
	Duration	Duration 1.5 years
	Status	Status Completed

Jordan 3 project

Jordan

	Description	Description Creation of a medical and social network to support haemophilia care across Jordan
	Focus Areas	Focus Areas Education, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Arafat Awajan
	Institution	Institution Princess Sumaya University for Technology (PSUT)
	Started	Started Q3 2014
	Duration	Duration 2 years
	Status	Status Completed

India 7 project

India

	Description	Description Preventing and Decreasing Musculoskeletal Morbidities among People with Hemophilia in Southern India
	Focus Areas	Focus Areas Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Pamela Narayan
	Institution	Institution Haemophilia Federation India
	Started	Started Q3 2015
	Duration	Duration 3 years
	Status	Status Completed

Botswana 1

Botswana

	Description	Description Improve access to diagnosis and bleeding disorders care in Botswana
	Focus Areas	Focus Areas Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Jeremy Slone, Pearl Semetsa
	Institution	Institution TXCH Global HOPE Botswana at Princess Marina Hospital
	Started	Started Q2 2018
	Duration	Duration 1.5 years
	Status	Status Completed

Guatemala 1 project

Guatemala

	Description	Description Advancing integrated care management of people with haemophilia in Guatemala
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Marta Julia López Ruano
	Institution	Institution Hospital Roosevelt
	Started	Started Q4 2014
	Duration	Duration 2 years
	Status	Status Cancelled

Iraq 1 project

Iraq

	Description	Description Improvement of Diagnosis and Establishment of National Registry
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Nazar Al-Anbaki, Ali Muslim Mahmod
	Institution	Institution Medical City Hospital
	Started	Started Q4 2007
	Duration	Duration 1.5 years
	Status	Status Completed

Tanzania 1 fellowship

Tanzania

	Description	Description Training in general haemophilia care
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Neema Marandu
	Institution	Institution Kilimanjaro Christian Medical Center
	Started	Started Q1 2016
	Duration	Duration 3 months
	Status	Status Completed

Zambia 1 project

Zambia

	Description	Description Haemophilia awareness campaign and outreach across Zambia
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Chilufya Pikiti
	Institution	Institution ZACCAF/Haemophilia Foundation of Zambia
	Started	Started Q2 2017
	Duration	Duration 1.5 years
	Status	Status Completed

Brazil 2 fellowship

Brazil

	Description	Description Physiotherapeutic management of haemophilia
	Focus Areas	Focus Areas Education, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Márcia A. Piccoloto Matta
	Institution	Institution Haematology Centre of StateUniversity of Campinas
	Started	Started Q2 2011
	Duration	Duration 4 weeks
	Status	Status Completed

Chile 5 fellowship

Chile

	Description	Description The role of a social worker in haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Pamela Andrea Suazo Navarro
	Institution	Institution Hospital Sotero del Rio
	Started	Started Q4 2016
	Duration	Duration 2 weeks
	Status	Status Completed

Colombia 3 fellowship

Colombia

	Description	Description Training in haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Gloria Cristina Valencia Solanilla
	Institution	Institution IPS ESPECIALIZADA
	Started	Started Q1 2015
	Duration	Duration 1 month
	Status	Status Completed

China 4 fellowship

China

	Description	Description Improve the capacity of managing patients with bleeding disorders
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Feng Xue Feng Xue
	Institution	Institution Blood disease hospital, Chinese academy of medical science
	Started	Started Q2 2013
	Duration	Duration 4 months
	Status	Status Completed

Colombia 4 fellowship

Colombia

	Description	Description Specialise in the care of paediatric haemostasis disorders
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Oscar Eduardo Gonzalez Figueredo
	Institution	Institution Paediatric haemato-oncologyColombia National Cancer Institute
	Started	Started Q3 2015
	Duration	Duration 2 months
	Status	Status Completed

Lithuania 1 fellowship

Lithuania

	Description	Description Management of PwH before, during and after orthopaedic interventions
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Liudvikas Kervys
	Institution	Institution Vilnius University Hospital Santariskiu Klinikos
	Started	Started Q4 2014
	Duration	Duration 3 weeks
	Status	Status Completed

Indonesia 2 project

Indonesia

	Description	Description Improve access to care through strengthened multidisciplinary care teams in regional core centres and focused outreach to 10 provinces
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Novie Amelia Chozie
	Institution	Institution Indonesian Society of Hematology & Blood Transfusion (ISHBT)
	Started	Started Q2 2017
	Duration	Duration 3 years
	Status	Status Completed

Colombia 3 project

Colombia

	Description	Description Strengthening our life skills
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) David Andrés Cuartas Bolivar
	Institution	Institution Liga Antioqueña de Hemofilícos
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Thailand 1 project

Thailand

	Description	Description Improving haemophilia care in Thailand through the Chronic Care Model
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hathaiwut Lamthean, Ampaiwan Chuansumrit
	Institution	Institution National Health Security Office (NHSO) and IHTC Bangkok
	Started	Started Q4 2013
	Duration	Duration 1.5 years
	Status	Status Completed

Thailand 3 project

Thailand

	Description	Description Improving haemophilia care through the Chronic Care Model
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hathaiwut Lamthean, Ampaiwan Chuansumrit
	Institution	Institution National Health Security Office (NHSO)
	Started	Started Q4 2016
	Duration	Duration 3 months
	Status	Status Completed

Nicaragua 1 project

Nicaragua

	Description	Description Establish comprehensive care of haemophilia in Nicaragua
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Javier Antonio Rivas Ojeda, René Berrios
	Institution	Institution Nicaraguan Association of Hemophilia
	Started	Started Q1 2015
	Duration	Duration 2 years
	Status	Status Completed

Ethiopia 1 project

Ethiopia

	Description	Description Improve haemophilia care in Ethiopia by decentralisation of care and empowerment of haemophilia community
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Samson Hailemariam
	Institution	Institution Ethiopian Hemophilia Society
	Started	Started Q1 2018
	Duration	Duration 2 years
	Status	Status Closing

Argentina 2 fellowship

Argentina

	Description	Description Learning new strategies to improve haemophilia care
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Marcela del Valle Bustos
	Institution	Institution Hospital de Niños de la Santísima Trinidad
	Started	Started Q1 2013
	Duration	Duration 1 month
	Status	Status Completed

Pakistan 1 project

Pakistan

	Description	Description Capacity building for haemophilia care programme – a pilot study
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Tahir S. Shamsi
	Institution	Institution National Institute of Blood Disease & Bone Marrow Transplant (NIBD)
	Started	Started Q3 2007
	Duration	Duration 2 years
	Status	Status Completed

South Africa 4 project

South Africa

	Description	Description Strengthen South African Haemophilia Federation capacity through youth development and empowerment of health care providers
	Focus Areas	Focus Areas Education, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Johan Potgieter
	Institution	Institution South African Haemophilia Foundation (SAHF) and its Medical and Scientific Advisory Council (MASAC)
	Started	Started Q2 2017
	Duration	Duration 3 years
	Status	Status Completed

Pakistan 5 project

Pakistan

	Description	Description Bringing change by improving access to care and awareness: Ca-pacity building and leadership initiative
	Focus Areas	Focus Areas Education, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Masood Fareed Malik
	Institution	Institution Pakistan Haemophilia Patients Welfare Society (PHPWS)
	Started	Started Q3 2014
	Duration	Duration 2 years
	Status	Status Completed

Macedonia 2 project

Macedonia (FYROM)

	Description	Description Establishment of national comprehensive haemophilia
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Violeta Dejanova-Ilijevska
	Institution	Institution National Institute of Transfusion Medicine
	Started	Started Q4 2011
	Duration	Duration 1 year
	Status	Status Completed

Thailand 4 project

Thailand

	Description	Description Improving haemophilia care in Thailand through the Chronic Care Model, strengthening of comprehensive care teams and development of leadership talents
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hathaiwut Lamthean, Ampaiwan Chuansumrit
	Institution	Institution National Health Security Office (NHSO)
	Started	Started Q1 2017
	Duration	Duration 2 years
	Status	Status Completed

Panama 1 fellowship

Panama

	Description	Description Strengthening of comprehensive social work with people with haemophilia and their families
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Cecilia Marrugo
	Institution	Institution Caja de Seguro Social Hospital Dr. A.A.M
	Started	Started Q3 2015
	Duration	Duration 3 weeks
	Status	Status Completed

Macedonia 1 fellowship

Macedonia (FYROM)

	Description	Description Improve the orthopaedic management of people with haemophilia in Macedonia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Antonio Gavrilovski
	Institution	Institution University Clinic for orthopaedic surgery
	Started	Started Q2 2014
	Duration	Duration 4 months
	Status	Status Completed

Cambodia 2 fellowship

Cambodia

	Description	Description Advanced training in rare bleeding disorders diagnosis
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Sem Samey
	Institution	Institution National Pediatric Hospital (NPH)
	Started	Started Q1 2017
	Duration	Duration 2 months
	Status	Status Completed

India 6 project

India

	Description	Description Capacity Building and Empowerment program for care givers and parents involved in the Hemophilia Care in North East and North India
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Mukesh Garodia, Richa Mohan
	Institution	Institution Haemophilia Federation India
	Started	Started Q1 2015
	Duration	Duration 2 years
	Status	Status Completed

Uruguay 2 project

Uruguay

	Description	Description Set-up integral Care of Women with bleeding disorders and carriers
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Beatriz Boggia, Adriana Tiscornia
	Institution	Institution Iniciativa Santiaria (IS)
	Started	Started Q4 2012
	Duration	Duration 2 years
	Status	Status Cancelled

Libya 2 fellowship

Libya

	Description	Description Strengthen the haematology clinic in the Paediatric hospital
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Salwa Saad Ali
	Institution	Institution Benghazi children hospital
	Started	Started Q1 2015
	Duration	Duration 3 month
	Status	Status Completed

Chile 6 fellowship

Chile

	Description	Description Comprehensive care training with a focus on diagnosis
	Focus Areas	Focus Areas Diagnosis
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) José Luis Lamas Castellanos
	Institution	Institution Complejo Asistencial Dr Sotero del Río
	Started	Started Q4 2016
	Duration	Duration 1 month
	Status	Status Cancelled

Nigeria 1 fellowship

Nigeria

	Description	Description Training in general clinical haemophilia care
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Fatai Bello
	Institution	Institution Lagos University Teaching Hospital
	Started	Started Q2 2013
	Duration	Duration 1 year
	Status	Status Completed

Mexico 1 project

Mexico

	Description	Description Creation of regional high level paediatrician training centre – pilot at Siglo XXI with reach out to clinicians in 2nd and 3rd levels IMSS hospitals
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Roberto Bernaldez Rios
	Institution	Institution Hospital de Pediatria, Centro Médico Nacional Siglo XXIInstituto Mexicano del Seguro Social (IMSS)Unidad Médica de Alta Especialidad
	Started	Started Q1 2011
	Duration	Duration 1 year
	Status	Status Completed

Colombia 1 (Antioquia) project

Colombia

	Description	Description Improve access to care for patients in remote areas of Antioquia by creation of comprehensive educational and awareness network
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Yuri Andrea Arango
	Institution	Institution Liga Antioqueña de Hemofílicos
	Started	Started Q3 2012
	Duration	Duration 2 years
	Status	Status Completed

India 2 project

India

	Description	Description IDEEA – Identification, Diagnosis, Education and Empowerment for Action of people with bleeding disorders in South India
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Annamma Kurien
	Institution	Institution Katsurba Hospital, Manipal University
	Started	Started Q1 2012
	Duration	Duration 3 years
	Status	Status Completed

Chile 1 project

Chile

	Description	Description MITHEF PROJECT – National Improvement of Haemophilia Treatment
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) María Mercedes Morales Gana
	Institution	Institution Roberto del Río Hospital
	Started	Started Q1 2009
	Duration	Duration 3 years
	Status	Status Completed

Uganda 3 project

Uganda

	Description	Description Improve haemophilia management in Uganda
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Kisakye Agnes, Ssewungu Joseph
	Institution	Institution Haemophilia Foundation of Uganda
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Mexico 7 (Jalisco) project

Mexico

	Description	Description Improve the diagnosis and comprehensive care system in the State of Jalisco
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Natalia Padilla
	Institution	Institution Hospital General de Occidente
	Started	Started Q2 2018
	Duration	Duration 2.5 years
	Status	Status Completed

Malawi 1 project

Malawi

	Description	Description Establish haemophilia care in Malawi
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Yohannie Billy Mlombe
	Institution	Institution Society of Haemophilia and Allied Bleeding Disorders in Malawi
	Started	Started Q2 2016
	Duration	Duration 9 months
	Status	Status Completed

Mauritius 1 project

Mauritius

	Description	Description Establish a multidisciplinary care team and improving haemophilia care in Mauritius
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Asraf Caunhye
	Institution	Institution Haemophilia Association of Mauritius, Mauritius, Quatre Bornes
	Started	Started Q3 2015
	Duration	Duration 2 years
	Status	Status Completed

Myanmar 1 fellowship

Myanmar (Burma)

	Description	Description Clinical fellowship program on bleeding disorders
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Khin Nwe Oo Khin Nwe Oo
	Institution	Institution Yangon Children’s Hospital
	Started	Started 2012
	Duration	Duration 6 months
	Status	Status Completed

Bangladesh 1 project

Bangladesh

	Description	Description Improving quality of care for haemophilia in three centres in Bangladesh
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Salma Afrose
	Institution	Institution Dhaka Medical College
	Started	Started Q4 2015
	Duration	Duration 1 year
	Status	Status Completed

Zambia 1 fellowship

Zambia

	Description	Description Training in diagnosis and care management of haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Silweya David
	Institution	Institution Chinsali District Hospital
	Started	Started N/A
	Duration	Duration 1.5 months
	Status	Status Cancelled

Mexico 6 (Yucatan) project

Mexico

	Description	Description Comprehensive outreach approach to the benefit of people with bleeding disorders in the state of Yucatan
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Eric Gutierrez
	Institution	Institution Hospital General Agustin O’Horan
	Started	Started Q3 2017
	Duration	Duration 1 year
	Status	Status Completed

Vietnam 2 project

Vietnam

	Description	Description Join efforts to improve quality of haemophilia care across Vietnam
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Nguyen Anh Tri Nguyen Anh Tri, Mai Nguyen Thi
	Institution	Institution Vietnam Society of Congenital Bleeding disorder
	Started	Started Q2 2013
	Duration	Duration 3 years
	Status	Status Completed

Malawi 1 fellowship

Malawi

	Description	Description Specialised training in haemophilia care and management
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Christine Noellah Chilinga
	Institution	Institution Kamuzu Central Hospital
	Started	Started Q1 2017
	Duration	Duration 2 months
	Status	Status Completed

Kenya 2 fellowship

Kenya

	Description	Description Providing physiotherapy for haemophilia patients in Kenya
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Agrippina Matasyo
	Institution	Institution Kenyatta National Hospital
	Started	Started Q1 2015
	Duration	Duration 3 months
	Status	Status Completed

Poland 1 project

Poland

	Description	Description Programme for evaluation and standardisation of the diagnostic and treatment approaches in haemophilia patients without or with inhibitors
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Anna Klukowska
	Institution	Institution Haematology Department, Paediatric Clinic
	Started	Started Q2 2006
	Duration	Duration 2 1/4 years
	Status	Status Completed

Uganda 2 project

Uganda

	Description	Description Create awareness and HCPs training in Uganda
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Agnes Kisakye
	Institution	Institution Haemophilia Foundation of Uganda
	Started	Started Q2 2016
	Duration	Duration 2 years
	Status	Status Awards

Pakistan 3 project

Pakistan

	Description	Description Education of education programme to a national level
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Tahira Zafar
	Institution	Institution Pakistan Haemophilia Patients Welfare (PHPW)
	Started	Started Q3 2009
	Duration	Duration 1 year
	Status	Status Completed

India 1 project

India

	Description	Description Capacity Building Project in Haemophilia for Paediatricians
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Anupam Sachdeva
	Institution	Institution Sir Ganga Ram Hospital, Paediatric Haematology and Oncology/BMT Unit
	Started	Started Q2 2009
	Duration	Duration 3 years
	Status	Status Completed

Mexico 2 (Nuevo León) project

Mexico

	Description	Description Establishing a regional multidisciplinary haemophilia healthcare centre in Monterrey, Mexico
	Focus Areas	Focus Areas Education, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Laura Villarreal Martínez
	Institution	Institution Hospital Universitario “Dr. José Eleuterio González”
	Started	Started Q1 2014
	Duration	Duration 2 years
	Status	Status Completed

Venezuela 1 project

Venezuela

	Description	Description Consolidación III – Haemophilia association branch expansion
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Cesar Garrido
	Institution	Institution Venezuelan Association of Haemophilia (AVH)
	Started	Started Q4 2005
	Duration	Duration 2.5 years
	Status	Status Completed

China 3 project

China

	Description	Description Further improve reliability of diagnosis and comprenhensive care in China by setting up a National Quality Assessment Programme
	Focus Areas	Focus Areas Diagnosis, Registry, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hongli Wang
	Institution	Institution Haematology Department, Ruijin Hospital affiliated to Medicine School of Shanghai Jiaotong University
	Started	Started Q2 2012
	Duration	Duration 2 years
	Status	Status Completed

Uganda 2 project

Uganda

	Description	Description Create awareness and HCPs training in Uganda
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Agnes Kisakye
	Institution	Institution Haemophilia Foundation of Uganda
	Started	Started Q2 2016
	Duration	Duration 2 years
	Status	Status Completed

China 2 fellowship

China

	Description	Description Diagnosis of bleeding disorders
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Jing Dai Jing Dai
	Institution	Institution Ruijin Hospital, Department of Clinical Transfusion
	Started	Started Q2 2009
	Duration	Duration 6 months
	Status	Status Completed

Brazil 3 fellowship

Brazil

	Description	Description Impact of training health care professionals and patients with inherited bleeding disorders on quality of treatment
	Focus Areas	Focus Areas Education, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Fabio Melo Bessa de Souza
	Institution	Institution University of Sao Paulo
	Started	Started Q1 2012
	Duration	Duration 13 weeks
	Status	Status Completed

Macedonia 1 project

Macedonia (FYROM)

	Description	Description Capacity Building in Haemophilia Care
	Focus Areas	Focus Areas Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Sofijanka Glamocanin
	Institution	Institution University Children’s Hospital, Department of Haematology Medical Faculty
	Started	Started Q1 2007
	Duration	Duration 1 year
	Status	Status Completed

Ecuador 1 fellowship

Ecuador

	Description	Description Optimisation of medical knowledge in haemophilia care
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) María Lorena Freire Astudillo
	Institution	Institution Baca Ortiz Hospital
	Started	Started Q3 2015
	Duration	Duration 1 month
	Status	Status Completed

Armenia 1 project

Armenia

	Description	Description Building the national haemophilia care network in Armenia
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Smbat Daghbashyan
	Institution	Institution Haematology Center of Armenia
	Started	Started Q1 2015
	Duration	Duration 2 years
	Status	Status Completed

Jamaica 1 project

Jamaica

	Description	Description Establishing quality diagnosis, comprehensive care and expertise inbleeding disorders
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Gilian Wharfe
	Institution	Institution University of the West Indies
	Started	Started Q3 2014
	Duration	Duration 2 years
	Status	Status Completed

Morocco 2 project

Morocco

	Description	Description A regional approach in and around Fez to improve haemophilia care through physiotherapy and theatre-therapy
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hassan Alaoui Mrani
	Institution	Institution Association régionale de l’hémophilie à Fès
	Started	Started Q4 2011
	Duration	Duration 1 year
	Status	Status Completed

Ecuador 2 fellowship

Ecuador

	Description	Description Dental care in haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Julia Anabely Mora Delgado
	Institution	Institution Baca Ortiz Hospital
	Started	Started Q3 2015
	Duration	Duration 1 month
	Status	Status Completed

India 2 project

India

	Description	Description IDEEA – Identification, Diagnosis, Education and Empowerment for Action of people with bleeding disorders in South India
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Annamma Kurien
	Institution	Institution Katsurba Hospital, Manipal University
	Started	Started Q1 2012
	Duration	Duration 3 years
	Status	Status Awards

India 8 project

India

	Description	Description Empowering parents in South and West India
	Focus Areas	Focus Areas Education, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Richa Mohan
	Institution	Institution Haemophilia Federation India and Empowering Minds Society for Research & Development
	Started	Started Q4 2016
	Duration	Duration 2 years
	Status	Status Completed

Tanzania 2 project

Tanzania

	Description	Description Empower the patient association to organise successful awareness campaign and advocacy
	Focus Areas	Focus Areas Education, Advocacy, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Richard Minja
	Institution	Institution Haemophilia Society of Tanzania
	Started	Started Q2 2017
	Duration	Duration 1 year
	Status	Status Completed

Macedonia 1 project

Macedonia (FYROM)

	Description	Description Capacity Building in Haemophilia Care
	Focus Areas	Focus Areas Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Sofijanka Glamocanin
	Institution	Institution University Children’s Hospital, Department of Haematology Medical Faculty
	Started	Started Q1 2007
	Duration	Duration 1 year
	Status	Status Completed

Nigeria 2 fellowship

Nigeria

	Description	Description Specialised training in the diagnosis and management of haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Livingstone Dogara
	Institution	Institution Kaduna State University
	Started	Started Q3 2016
	Duration	Duration 6 months
	Status	Status Completed

Lithuania 1 project

Lithuania

	Description	Description Collaboration of LHS patients and specialists to improve physiotherapy care
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Egidijus Šliaužys
	Institution	Institution Lithuania Hemophilia Society (LHS)
	Started	Started Q3 2011
	Duration	Duration 1 year
	Status	Status Completed

Chile 3 project

Chile

	Description	Description Consolidating care and treatment for haemophilia and allied bleeding disorders across Chile
	Focus Areas	Focus Areas Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Veronica Soto Arellano
	Institution	Institution Hospital Roberto del Río
	Started	Started Q4 2017
	Duration	Duration 1.5 years
	Status	Status Completed

Malaysia 2 project

Malaysia

	Description	Description Training in diagnosis of haemophilia patients & educational program for newly identified patients & families
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Faraizah Abdul Karim
	Institution	Institution National Blood Centre PDN (Pusat Darah Negara)
	Started	Started Q1 2012
	Duration	Duration 3 years
	Status	Status Cancelled

Uruguay 3 project

Uruguay

	Description	Description Decentralising care and diagnosis network in Uruguay
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Maria Teresa Faguaga González, Ana Gabriela Chalkling
	Institution	Institution Hospital Tacuarembó
	Started	Started Q2 2017
	Duration	Duration 2 years
	Status	Status Completed

Panama 2 project

Panama

	Description	Description Establishment of 6 satellite centres and national patient education
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Belgica Moreno
	Institution	Institution Panama Haemophilia Association
	Started	Started Q4 2011
	Duration	Duration 2 years
	Status	Status Completed

Philippines 1 project

Philippines

	Description	Description National Registry of Haemophilia and Allied Bleeding DisordersPhilippines
	Focus Areas	Focus Areas Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Flerida G. Hernandez
	Institution	Institution Philippine Haemophilia Foundation INC.
	Started	Started Q3 2012
	Duration	Duration 3 years
	Status	Status Completed

Albania 1 project

Albania

	Description	Description Strengthen haemophilia care in Tirana, create awareness across the country and empower the patient organisation
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Adela Perolla, Bledi Kalaja
	Institution	Institution University Hospital Centre “Mother Tereza”
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Chile 2 project

Chile

	Description	Description Improvement of care with a focus on home therapy and MSK through empowerment of medical and patient community
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) José Luis Lamas Castellanos
	Institution	Institution Complejo Asistencial Dr Sotero del Río
	Started	Started Q2 2014
	Duration	Duration 2 years
	Status	Status Completed

Bulgaria 1 project

Bulgaria

	Description	Description Creation of Comprehensive Haemophilia Treatment Centre (CHTC) – Sofia
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Toshko Jelev Lissitchkov
	Institution	Institution Comprehensive Haemophilia Treatment Centre, Haematology Hospital “Joan Pavel”
	Started	Started Q1 2007
	Duration	Duration 2 years
	Status	Status Completed

Basic Coagulation Courses 2011-2016

Switzerland

	Description	Description NNHF Lab training module
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Angus McCraw, Marion Echenagucia
	Institution	Institution Royal Free Hospital, London, UK
	Started	Started Q1 2016
	Duration	Duration 1 year each, from 2011-2016
	Status	Status Completed

Ghana 1 fellowship

Ghana

	Description	Description Improve lab capacity in Kumasi, Ghana
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) David Ofosu
	Institution	Institution Komfo Anokye Teaching Hospital
	Started	Started Q1 2016
	Duration	Duration 2 months
	Status	Status Completed

China 8 project

China

	Description	Description Establishing and strengthening quality haemophilia care in the northeast region of China
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Renchi Yang
	Institution	Institution Blood disease hospital, Chinese academy of medical science
	Started	Started Q3 2017
	Duration	Duration 3 years
	Status	Status Completed

Myanmar 1 project

Myanmar (Burma)

	Description	Description Institution of the Myanmar Haemophilia Patients’ association and establishment of its collaboration network
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Khin Nwe Oo Khin Nwe Oo
	Institution	Institution Yangon Children’s Hospital, Yangon
	Started	Started Q4 2013
	Duration	Duration 1.5 years
	Status	Status Completed

Palestine 1 project

State of Palestine

	Description	Description Improve the quality of health care provided for patients with Haemophilia in Palestine
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Huda Lahham, Hussein Elyan
	Institution	Institution Palestine Ministry of Health, Foreign Relation department
	Started	Started Q2 2014
	Duration	Duration 1.5 years
	Status	Status Completed

Ukraine 1 project

Ukraine

	Description	Description National education and awareness creation programme in haemophilia
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Galyna Moroz, Zenia Chernyk
	Institution	Institution Kyiv City Association for invalids of haemophilia “Factor”
	Started	Started Q2 2011
	Duration	Duration 2 years
	Status	Status Completed

Egypt 2 project

Egypt

	Description	Description Improving musculoskeletal (MSK) care in Egypt and establishing a MSK-registry to collect outcome data
	Focus Areas	Focus Areas Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Magda Rakha, Adly Sabbour
	Institution	Institution Gamaeat Asdika Marda Al Nazf
	Started	Started Q1 2016
	Duration	Duration 1.5 years
	Status	Status Completed

Libya 1 fellowship

Libya

	Description	Description Improve lab capacity and learn how to efficiently set up a coagulation laboratory upon return
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Safa Naser Abdelgader
	Institution	Institution Benghazi children hospital
	Started	Started 2015
	Duration	Duration 1 month
	Status	Status Cancelled

Malawi 2 project

Malawi

	Description	Description Expand haemophilia care to the South region of Malawi
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Yohannie Mlombe, Chimwemwe Chande
	Institution	Institution Society of Haemophilia and Allied Disorders (SHAD)
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Cuba 1 project

Cuba

	Description	Description Establishment of Haemophilia Comprehensive Care
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) José M. Ballester Santovenia, Delfina Almagro Vázquez
	Institution	Institution Instituto de Hematología e Immunologia (IHI)
	Started	Started Q2 2008
	Duration	Duration 2 years
	Status	Status Awards

Ghana 1 project

Ghana

	Description	Description Outreach through capacity building and awareness creation
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Martin Boakye
	Institution	Institution Ghana Haemophilia Society
	Started	Started Q3 2012
	Duration	Duration 1.5 years
	Status	Status Completed

Argentina 4 fellowship

Argentina

	Description	Description Rehabilitation training for haemophilia
	Focus Areas	Focus Areas Education, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Juan Manuel Galleguillo
	Institution	Institution Haemophilia Foundation of Argentina
	Started	Started Q4 2014
	Duration	Duration 1 month
	Status	Status Completed

China 2 project

China

	Description	Description Improve and extend comprehensive haemophilia care in China
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hongli Wang Hongli Wang
	Institution	Institution Hematology Department, Shanghai Ruijin Hospital
	Started	Started Q4 2009
	Duration	Duration 2 years
	Status	Status Completed

Dominican Republic 1 project

Dominican Republic

	Description	Description Community Award 2012
	Focus Areas	Focus Areas Education, Empowerment
	Project type(s)	Project type(s) PROJECT, AWARD
	Partner(s)	Partner(s) Haydee Benoit de García
	Institution	Institution Fundación Apoyo al Hemofilico (FAHEM)
	Started	Started Q2 2012
	Duration	Duration 2 years
	Status	Status Completed

China 1 fellowship

China

	Description	Description Thrombelastography and thrombin generation tests (TGT)
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Baolai Hua Baolai Hua
	Institution	Institution Peking Union Medical College Hospital (PUMCH), Department of Haematology
	Started	Started Q1 2008
	Duration	Duration 5 months
	Status	Status Completed

Myanmar 2 fellowship

Myanmar (Burma)

	Description	Description Fellowship in Haemostasis Laboratory
	Focus Areas	Focus Areas Diagnosis, Capacity building, Empowerment
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Yan Naing Yan Naing
	Institution	Institution General Hospital, Mandalay
	Started	Started 2017
	Duration	Duration 6 months
	Status	Status Completed

Malaysia 3 project

Malaysia

	Description	Description Identifying and empowering women leaders to activate regional chapters within the Malaysian Haemophilia Society
	Focus Areas	Focus Areas Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Jameela Sathar
	Institution	Institution Ampang Hospital
	Started	Started Q1 2016
	Duration	Duration 1,5 years
	Status	Status Completed

Ghana 2 project

Ghana

	Description	Description Improve access to haemophilia Care and create awareness at the regional and primary health levels in Ghana
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Martin Boakye, David Ofosu
	Institution	Institution Ghana Haemophilia Society
	Started	Started Q1 2017
	Duration	Duration 2 years
	Status	Status Completed

China 6 project

China

	Description	Description Decentralisation of multidisciplinary care in four city level haemophilia centres in Sichuan Province
	Focus Areas	Focus Areas Education, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Xiaojing LI Xiaojing LI
	Institution	Institution Sichuan Center of Haemophilia Diagnosis and Treatment
	Started	Started Q3 2016
	Duration	Duration 3 years
	Status	Status Completed

Kenya 5 fellowship

Kenya

	Description	Description Specialised training for Mombasa physician
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Tima Nassir Ali Khamis
	Institution	Institution Coast General Hospital
	Started	Started Q1 2016
	Duration	Duration 4 months
	Status	Status Completed

Uruguay 1 project

Uruguay

	Description	Description “Crecer en Salud” – Health improvement
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Ismael Rodríguez
	Institution	Institution Centro Hospitalario Pereira Rossell
	Started	Started Q2 2008
	Duration	Duration 1 year
	Status	Status Completed

Pakistan 2 project

Pakistan

	Description	Description Education of persons with haemophilia and their families in Pakistan
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Tahira Zafar
	Institution	Institution Pakistan Haemophilia Patients Welfare
	Started	Started Q1 2008
	Duration	Duration 1 year
	Status	Status Completed

Venezuela 3 (Desafío Orinoco) project

Venezuela

	Description	Description Desafio Orinoco 2010
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Cesar Garrido
	Institution	Institution Asociación Venezolana para La Hemofilia (AVH)
	Started	Started Q2 2009
	Duration	Duration 1 year
	Status	Status Completed

China 7 (Tibet) project

China

	Description	Description Development of haemophilia care in Tibet Autonomous Region
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Xinsheng Zhang
	Institution	Institution Shandong Centre of Haemophilia Diagnosis and Treatment
	Started	Started Q4 2016
	Duration	Duration 1 year
	Status	Status Completed

Paraguay 1 project

Paraguay

	Description	Description Consolidating haemophilia care in Paraguay through diagnosis, registry and training of healthcare professionals and patients
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Mayda Tamara Yasychyn
	Institution	Institution Fundación de Ayuda al Hemofílico (Fundahemo)
	Started	Started Q2 2016
	Duration	Duration 1.5 years
	Status	Status Completed

Uganda 1 project

Uganda

	Description	Description Setting up diagnosis, basic care and education in Uganda
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Agnes Kisakye
	Institution	Institution Haemophilia Foundation of Uganda
	Started	Started Q3 2015
	Duration	Duration 6 months
	Status	Status Completed

Serbia 2 project

Serbia

	Description	Description Empowering the patient community to be active and compliant
	Focus Areas	Focus Areas Education, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Tatjana Markovi?, Vladimir Ilijin
	Institution	Institution Serbian Haemophilia Society
	Started	Started Q1 2015
	Duration	Duration 2 years
	Status	Status Completed

Egypt 1 fellowship

Egypt

	Description	Description Advanced training in comprehensive care for haemophilia & on complications for patients with haemophilia and inhibitors
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Islam Reda El Ghamry
	Institution	Institution Ain Shams Children’s Hospital
	Started	Started Q3 2011
	Duration	Duration 3 months
	Status	Status Completed

Jordan 2 project

Jordan

	Description	Description National registry for hereditary bleeding disorders
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Abdalla S.S. Awidi
	Institution	Institution Jordan University Hospital
	Started	Started Q3 2009
	Duration	Duration 1.5 year
	Status	Status Completed

South Africa 3 (Eastern Cape) project

South Africa

	Description	Description Bringing better haemophilia care closer to the patients and strengthening the community
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Charmaine Oosthuizen
	Institution	Institution Igazi Foundation
	Started	Started Q2 2014
	Duration	Duration 2 years
	Status	Status Completed

India 5 project

India

	Description	Description “BLOSSOM” a Project to bring A Ray of Hope in the life of people with haemophilia
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Suresh Hanagavadi
	Institution	Institution Karnataka Hemophilia Society (KHS)
	Started	Started Q2 2014
	Duration	Duration 1 year
	Status	Status Completed

India 4 project

India

	Description	Description Leadership, Education, Information & Transmission (LEAD IT) – Training Programme for Empowerment of Hemophilia Care Givers and Women with bleeding disorders
	Focus Areas	Focus Areas Education, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Vikash Goel
	Institution	Institution Hemophilia Federation (India)
	Started	Started Q3 2013
	Duration	Duration 1 year
	Status	Status Completed

Mexico 3 fellowship

Mexico

	Description	Description Enhancing the lab techniques to improve care offered to patients at Hospital La Raza
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Mario Alberto Portuguez Menese
	Institution	Institution General Hospital Medical Centre La Raza – Mexican Social Security Institute (IMSS)
	Started	Started Q3 2014
	Duration	Duration 2 week
	Status	Status Completed

Mauritius 2 project

Mauritius

	Description	Description Improve multidisciplinary care for people with bleeding disorders in Mauritius
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Mohsena Olath-Carramtally, Janaki Sonoo
	Institution	Institution Haemophilia Association of Mauritius
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Madagascar 1 project

Madagascar

	Description	Description Empower the haemophilia community and strengthen the multidisciplinary care in Madagascar
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Aimee Olivat Rakoto Alson
	Institution	Institution Hopital Universitaire Joseph Ravoahangy Andrianavalona (CHU JRA), Antananarivo
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Jordan 1 project

Jordan

	Description	Description Molecular Genetic Analysis in Haemophilia Population
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Abdalla S.S. Awidi
	Institution	Institution Jordan University Hospital
	Started	Started Q1 2007
	Duration	Duration 2 years
	Status	Status Completed

Lebanon 1 project

Lebanon

	Description	Description Multidisciplinary Haemophilia Care
	Focus Areas	Focus Areas Education, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Claudia Djambas Khayat
	Institution	Institution Association Libanaise de l’Hémophilie
	Started	Started Q3 2007
	Duration	Duration 2 years
	Status	Status Completed

Madagascar 1 fellowship

Madagascar

	Description	Description treatment centre in Macedonia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Rasamoelina Tsikihenintsoa
	Institution	Institution Unité Paraclinique de Formation et de Recherche du Centre Hospitalier Joseph Ravoahangy Andrianavalona (Hématologie)
	Started	Started Q1 2013
	Duration	Duration 1 month
	Status	Status Completed

Sri Lanka 2 project

Sri Lanka

	Description	Description Improve diagnosis and multidisciplinary care across Sri Lanka
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Chandana Weerasekara, Ganga Wijewardhana
	Institution	Institution Hemophilia Association of Sri Lanka (HASL)
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Brazil 4 project

Brazil

	Description	Description Strenthening the care and education network for haemophilia in the sate of Pará in Brazil
	Focus Areas	Focus Areas Education, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Christianne Maria Oliveira Costa
	Institution	Institution FBH – Federação Brasileira de Hemofilia
	Started	Started Q3 2015
	Duration	Duration 2.5 years
	Status	Status Completed

China 1 project

China

	Description	Description Haemophilia Education, Screening and Registration
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Hongli Wang, Man-Chiu Poon Man-Chiu Poon
	Institution	Institution Hematology Department, Shanghai Ruijin Hospital
	Started	Started Q4 2006
	Duration	Duration 2 years
	Status	Status Completed

Mali 1 fellowship

Mali

	Description	Description Building capacity and the Haemophilia team
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Souleymane Soumare
	Institution	Institution Service de Médecine, Hôpital du Mali
	Started	Started Q1 2015
	Duration	Duration 2 months
	Status	Status Completed

Dominican Republic 1 fellowship

Dominican Republic

	Description	Description Training in optimal management of haemophilia and allied bleeding disorders as well as diagnostic methods
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Betty María Pérez Góme
	Institution	Institution Regional University Hospital José María Cabral y Báez
	Started	Started Q2 2012
	Duration	Duration 4 months
	Status	Status Completed

Uzbekistan 4 project

Uzbekistan

	Description	Description Improving the quality of life of haemophilia patients by establishing rehabilitation care in Uzbekistan
	Focus Areas	Focus Areas Education, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Aziza Makhmudova
	Institution	Institution Scientific Research Institution of Haematology and Blood Transfusion
	Started	Started Q1 2016
	Duration	Duration 1.5 years
	Status	Status Completed

Community Award 2010

South Africa

	Description	Description Community Award 2010
	Focus Areas	Focus Areas Education
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Anne-Louise Cruickshank
	Institution	Institution Groote Schuur Hospital
	Started	Started Q1 2011
	Duration	Duration 1 year
	Status	Status Awards

Thailand 2 project

Thailand

	Description	Description Improving MSK care in Thailand – through education, outcome measurement and the establishment of two training centres in Bangkok and Chiang Mai
	Focus Areas	Focus Areas Education, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Rungrote Natesirinilkul, Ampaiwan Chuansumrit
	Institution	Institution Faculty of Medicine, Chiang Mai University
	Started	Started Q1 2016
	Duration	Duration 3 years
	Status	Status Completed

Mexico 2 (Nuevo León) project

Mexico

	Description	Description Establishing a regional multidisciplinary haemophilia healthcare centre in Monterrey, Mexico
	Focus Areas	Focus Areas Education, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Laura Villarreal Martínez
	Institution	Institution Hospital Universitario “Dr. José Eleuterio González”
	Started	Started Q4 2013
	Duration	Duration 2 years
	Status	Status Awards

Kenya 4 fellowship

Kenya

	Description	Description First haemophilia nurse in Mombasa
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Betty M. Mwasaru Mbogho
	Institution	Institution Coast General Hospital
	Started	Started Q1 2016
	Duration	Duration 3 months
	Status	Status Completed

Cambodia 1 project

Cambodia

	Description	Description Raising awareness, support, diagnosis and treatment for people with haemophilia living in Cambodia
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Sithan Kong, Chean Sophal
	Institution	Institution Cambodia Haemophilia Association
	Started	Started Q4 2014
	Duration	Duration 2.5 years
	Status	Status Completed

Brazil 1 project

Brazil

	Description	Description PRO-HOPE: Improvement of Haemophilia Organisation and Patients Education
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Sylvia Thomas
	Institution	Institution Brazilian Federation of Hemophilia
	Started	Started Q3 2006
	Duration	Duration 3 years
	Status	Status Completed

Mali 1 project

Mali

	Description	Description Improve haemophilia care in Mali by capacity building and awareness creation
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Yacouba Diallo
	Institution	Institution Association Malienne de Lutte contre l’Hémophilie
	Started	Started Q2 2016
	Duration	Duration 2 years
	Status	Status Completed

Kenya 1 project

Kenya

	Description	Description Kenya Comprehensive CARE Project – Support sharing and spreading of knowledge for health care professionals and facilitate access to care in Western Kenya
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Chite Asirwa
	Institution	Institution Moi Teaching & Referral Hospital
	Started	Started Q2 2012
	Duration	Duration 2 years
	Status	Status Completed

Sudan 1 fellowship

Sudan

	Description	Description Providing physiotherapy for haemophilia patients in Sudan
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Omer Khatem
	Institution	Institution Ribat University Hospital
	Started	Started Q1 2015
	Duration	Duration 2 months
	Status	Status Cancelled

China 9 (Shanxi) project

China

	Description	Description Improving haemophilia care in Shanxi province
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Linhua Yang Linhua Yang
	Institution	Institution The Second Affiliated Hospital Shanxi Medical UniversityTaiyuan
	Started	Started Q1 2012
	Duration	Duration 1 year
	Status	Status Completed

Iraq 2 fellowship

Iraq

	Description	Description Obstetric and Gynaecological problems and their management in women with bleeding disorders including prenatal diagnosis.
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Brwa Ali Hussein
	Institution	Institution Clinical Haematologist,Nankali Hospital for Cancer and Blood Diseases
	Started	Started Q4 2010
	Duration	Duration 1 year
	Status	Status Completed

Pakistan 4 project

Pakistan

	Description	Description Capacity Building for improvement of haemophilia care on a national level
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Tahir Shamsi
	Institution	Institution National Institute of Blood Disease & Bone Marrow Transplantation
	Started	Started Q3 2010
	Duration	Duration 2 years
	Status	Status Completed

India 2 fellowship

India

	Description	Description Comprehensive haemophilia management
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Sukanya Gogoi
	Institution	Institution Sir Ganga Ram Hospital
	Started	Started Q1 2013
	Duration	Duration 6 months
	Status	Status Completed

Lithuania 2 fellowship

Lithuania

	Description	Description Management of PwH before, during and after orthopaedic interventions
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Lina Kryhauskaite
	Institution	Institution Vilnius University Hospital Santariskiu Klinikos
	Started	Started Q4 2014
	Duration	Duration 3 weeks
	Status	Status Completed

Georgia 1 – GE1

Georgia

	Description	Description Training in optimal management of haemophilia and allied bleeding disorders as well as diagnostic methods
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Levani Makhaldani
	Institution	Institution Institute of Hematology and Transfusiology
	Started	Started Q1 2012
	Duration	Duration 10 months
	Status	Status Completed

Myanmar 3 – MM3

Myanmar (Burma)

	Description	Description Strengthening haemophilia care and diagnosis in Northern Myanmar
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Moe Hein, Myo Aung
	Institution	Institution Mandalay General Hospital
	Started	Started Q2 2018
	Duration	Duration 3 years
	Status	Status Execution

China 4 project

China

	Description	Description Identify and improve five city level comprehensive haemophilia centres in Shandong province
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Xinsheng Zhang Xinsheng Zhang
	Institution	Institution Shandong Centre of Haemophilia Diagnosis and Treatment
	Started	Started Q3 2014
	Duration	Duration 2.5 years
	Status	Status Awards

Romania 2 project

Romania

	Description	Description Empowering the haemophilia patient community in Romania
	Focus Areas	Focus Areas Education, Advocacy, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Valentin Brabete
	Institution	Institution National Association of Romanian Haemophiliacs
	Started	Started Q2 2018
	Duration	Duration 1,5 years
	Status	Status Completed

Lithuania 2 project

Lithuania

	Description	Description Haemophilia physiotherapy network: Implementation of physiotherapy care in North-Eastern Europe
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Egidijus Šliaužys
	Institution	Institution Lithuanian Hemophilia Society (LHS)
	Started	Started Q2 2013
	Duration	Duration 2 years
	Status	Status Completed

Latvia 1 project

Latvia

	Description	Description Optimise care set-up through outreach educational and awareness programme for patients and HCPs – focusing on nurses
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Sandra Lejniece
	Institution	Institution Linezers Hospital Supportive Fund (part of Riga Eastern Clinical University Hospital)
	Started	Started Q1 2012
	Duration	Duration 2 years
	Status	Status Completed

Panama 1 project

Panama

	Description	Description LATIN – Latin American Haemophilia Network
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Belgica Moreno
	Institution	Institution Centro Nacional de Hemofilia and Fundación de la Hemofilia de Panamá, Panama
	Started	Started Q3 2008
	Duration	Duration 1 year
	Status	Status Completed

Bolivia 1 project

Bolivia

	Description	Description Setting up diagnosis, basic care and education in Bolivia
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Victor Manuel Ponce Rojas
	Institution	Institution Fundación Nacional de Hemofilia Bolivia
	Started	Started Q2 2014
	Duration	Duration 1 year
	Status	Status Completed

China 3 fellowship

China

	Description	Description Improving haemophilia care from a nursing perspective
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Kuixing Li Kuixing Li
	Institution	Institution Peking Union Medical College Hospital Haematology Service
	Started	Started Q2 2012
	Duration	Duration 2 years
	Status	Status Completed

India – Community Award 2015

India

	Description	Description Community Award 2015
	Focus Areas	Focus Areas Empowerment
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Cheryl Nineff D’Ambrosio
	Institution	Institution Womens Group Hemophilia Federation of India
	Started	Started Q4 2015
	Duration	Duration 6 months
	Status	Status Awards

Central America, Caribbean and Venezuela 1 project

Dominican Republic

	Description	Description Empowering and developing future community leaders to advocate and create awareness in their countries and in the region of Central America, the Caribbean and Venezuela
	Focus Areas	Focus Areas Education, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Fendi Valez Bisono
	Institution	Institution Fundación Apoyo al Hemofilico (FAHEM)
	Started	Started Q2 2014
	Duration	Duration 1.5 years
	Status	Status Completed

South Africa 1 (Kwazulu Natal) project

South Africa

	Description	Description Road to Haemophilia Health in KwaZulu Natal, South Africa KwaZulu Natal, Republic of South Africa (ZA)
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Rajendra Thejpal
	Institution	Institution Nelson R Mandela School of Medicine, Department of Paediatrics and Child Health
	Started	Started Q2 2009
	Duration	Duration 2 years
	Status	Status Completed

Argentina 3 (Jujuy) project

Argentina

	Description	Description Outreach to patients with haemophilia in the province of Jujuy
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Susana Gastaldo
	Institution	Institution Fundación Jujeña de Hemofilia
	Started	Started Q4 2016
	Duration	Duration 1 year
	Status	Status Completed

Uganda 1 fellowship

Uganda

	Description	Description Management of haemophilia and rare bleeding disorders
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Hilda Tumwebaze
	Institution	Institution Haemophilia Foundation of Uganda
	Started	Started Q1 2016
	Duration	Duration 3 months
	Status	Status Completed

Myanmar 2 project

Myanmar (Burma)

	Description	Description Empowering of patients and capacity building of HCP by focusing on physiotherapy in Mandalay
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Myo Aung, Moe Hein
	Institution	Institution Myanmar Haemophilia Patient Association
	Started	Started Q4 2016
	Duration	Duration 6 months
	Status	Status Completed

Iraq 1 fellowship

Iraq

	Description	Description Obstetric and Gynaecological problems and their management in women with bleeding disorders including prenatal diagnosis.
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Osama Naji
	Institution	Institution Al-Mustansyria University, College of Medicine
	Started	Started 2010
	Duration	Duration cancelled
	Status	Status Cancelled

Chile 3 fellowship

Chile

	Description	Description Specialise in the use of ultrasonography diagnosis
	Focus Areas	Focus Areas Diagnosis
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Juan Cristobal Morales
	Institution	Institution Hospital Sótero del Río
	Started	Started Q2 2015
	Duration	Duration 2 weeks
	Status	Status Completed

Cambodia 1 fellowship

Cambodia

	Description	Description Improve Blood Component Preparation techniques at the National Blood Transfusion Center (NBTC)
	Focus Areas	Focus Areas Diagnosis, Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Sem Samey
	Institution	Institution National Paediatric Hospital
	Started	Started Q1 2012
	Duration	Duration 12 weeks
	Status	Status Completed

Vietnam 3 project

Vietnam

	Description	Description Joint effort continuing to expand the haemophilia network and basic multidisciplinary care across Vietnam
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Mai Nguyen Thi, Tr?n Th?o
	Institution	Institution National Institute of Hematology and Blood Transfusion and Vietnam Hemophilia Association
	Started	Started Q1 2019
	Duration	Duration 3 years
	Status	Status Cancelled

India 11 project

India

	Description	Description Leadership and Educational camp for young people with haemophilia and allied bleeding disorders in India
	Focus Areas	Focus Areas Education, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT, FELLOWSHIP
	Partner(s)	Partner(s) Vikash Goyal
	Institution	Institution Hemofilia Federation India
	Started	Started Q2 2010
	Duration	Duration 1 year
	Status	Status Completed

Serbia 1 project

Serbia

	Description	Description Spread knowledge on haemophilia – to healthcare professionals, patients and general public
	Focus Areas	Focus Areas Education, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Dragana Janic
	Institution	Institution Serbian Haemophilia Care Doctors Group
	Started	Started Q2 2011
	Duration	Duration 2 years
	Status	Status Completed

Peru 3 project

Peru

	Description	Description Strengthen and expand network and structure of haemophilia care across sectors in Peru
	Focus Areas	Focus Areas Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Juan Navarro Cabrera, Nancy Loayza
	Institution	Institution Peruvian Haematology Society
	Started	Started Q1 2017
	Duration	Duration 2 years
	Status	Status Completed

Chile 4 fellowship

Chile

	Description	Description MSK care to achieve joint function in people with haemophilia
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Antonio Enrique Ibarra
	Institution	Institution Complejo Hospitalario Sóterio del Río
	Started	Started Q2 2016
	Duration	Duration 1 month
	Status	Status Completed

Azerbaijan 2 project

Azerbaijan

	Description	Description Establish haemophilia care in Nakhchivan region and improve physiotherapy care across Azerbaijan
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Gulnara Huseynova
	Institution	Institution Azerbaijan Republic Association of Hemophilia
	Started	Started Q3 2017
	Duration	Duration 2 years
	Status	Status Completed

China 4 project

China

	Description	Description Identify and improve five city level comprehensive haemophilia centres in Shandong province
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Xinsheng Zhang Xinsheng Zhang
	Institution	Institution Shandong Centre of Haemophilia Diagnosis and Treatment
	Started	Started Q3 2014
	Duration	Duration 2.5 years
	Status	Status Completed

Latvia 2 project

Latvia

	Description	Description Set up of a web-based bleeding disorders registry in Latvia
	Focus Areas	Focus Areas Registry
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Baiba Ziemele
	Institution	Institution Latvia Hemophilia Society
	Started	Started Q2 2016
	Duration	Duration 1 year
	Status	Status Cancelled

Egypt 1 project

Egypt

	Description	Description Empowering Egyptian haemophilia community through medical and educational caravans across the country
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Magdy El Ekiaby, Isis Morad
	Institution	Institution Gamaeat Asdika Marda Al Nazf (Egyptian Society of Hemophilia)
	Started	Started Q2 2013
	Duration	Duration 3 years
	Status	Status Completed

Sri Lanka 1 fellowship

Sri Lanka

	Description	Description Diagnosis and management of patients with haemophilia and other related coagulation disorders
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) R.D.H. Ramanayake
	Institution	Institution Senior Medical OfficerClinical Coordinator at National Hospital and Lady Ridge Way Hospital for Children
	Started	Started Q2 2010
	Duration	Duration 3 months
	Status	Status Completed

Colombia 2 project

Colombia

	Description	Description Knowledge and skills for better lives
	Focus Areas	Focus Areas Education, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Gina Patricia Bolaño Suarez, Andrea Raquel Lisman Molina
	Institution	Institution FAHES Colombia
	Started	Started Q1 2018
	Duration	Duration 2 years
	Status	Status Completed

Chile 2 fellowship

Chile

	Description	Description Specialise in the use of ultrasonography diagnosis
	Focus Areas	Focus Areas Diagnosis
	Project type(s)	Project type(s) FELLOWSHIP
	Partner(s)	Partner(s) Leonardo Rodríguez
	Institution	Institution Hospital Sótero del Río
	Started	Started Q2 2015
	Duration	Duration 2 weeks
	Status	Status Completed

China 5 project

China

	Description	Description Set up and consolidate five comprehensive treatment centres for haemophilia and von Willebrand disease in Jiangsu Province
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Ziqiang YU Ziqiang YU
	Institution	Institution The First Affiliated Hospital of Suzhou University
	Started	Started Q3 2016
	Duration	Duration 3 years
	Status	Status Completed

Kenya 3 project

Kenya

	Description	Description Enhancement of capacity for comprehensive haemophilia management
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Kibet Shikuku, Festus Njuguna
	Institution	Institution Kenya Hemophilia Association
	Started	Started Q2 2015
	Duration	Duration 2 years
	Status	Status Completed

Dominican Republic 1 project

Dominican Republic

	Description	Description Quisqueya Project: National diagnosis, registry and educational programme
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Haydee Benoit de García, Haydee Benoit de García
	Institution	Institution Fundación Apoyo al Hemofilico (FAHEM)
	Started	Started
	Duration	Duration 1.5 years
	Status	Status Completed

Cambodia 2 project

Cambodia

	Description	Description Establish multidisciplinary care and strengthen awareness in Cambodia
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Sokpanha Sem, Chanthearithy Run
	Institution	Institution Cambodian Hemophilia Association (CHA)
	Started	Started Q1 2018
	Duration	Duration 3 years
	Status	Status Cancelled

El Salvador 1 project

El Salvador

	Description	Description Diagnosis and educational programme in El Salvador
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Gilda Lorena Martínez de Mira, Ana Gladis Mancia de Reyes
	Institution	Institution Ministry of Health of El Salvador, Department of External Cooperation
	Started	Started Q1 2013
	Duration	Duration 1.5 years
	Status	Status Completed

Dominican Republic 2 project

Dominican Republic

	Description	Description Expanding diagnosis and registry of haemophilia in Dominican Republic
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Rosa Nieves, Betty Perez
	Institution	Institution Fundacion Apoyo al Hemofilico (FAHEM)
	Started	Started Q1 2019
	Duration	Duration 2 years
	Status	Status Completed

Macedonia 1 project

Macedonia (FYROM)

	Description	Description Capacity Building in Haemophilia Care
	Focus Areas	Focus Areas Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Sofijanka Glamocanin
	Institution	Institution University Children’s Hospital, Department of Haematology Medical Faculty
	Started	Started Q1 2007
	Duration	Duration 1 year
	Status	Status Awards

India 13 project

India

	Description	Description Strengthen and standardise the National Referral and Training Centres in India
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Tulika Seth, Shashikant Apte
	Institution	Institution All India Institute of Medical Sciences
	Started	Started Q1 2020
	Duration	Duration 2 years
	Status	Status Completed

Bolivia 2 project

Bolivia

	Description	Description Developing multidisciplinary care in Bolivia
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) José Luis Quino Caballero, Suzana Loayza Medina
	Institution	Institution Asociacion Cochabambina de Hemofilia
	Started	Started Q1 2020
	Duration	Duration 2.5 years
	Status	Status Execution

Argentina 5 project

Argentina

	Description	Description School for everyone
	Focus Areas	Focus Areas Education, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Maria del Carmen Jodar, Gabriela Susana Sliba
	Institution	Institution Fundación Hemofilia MDQ
	Started	Started Q1 2020
	Duration	Duration 2 years
	Status	Status Completed

Mozambique 1 project

Mozambique

	Description	Description Creating haemophilia awareness in Mozambique
	Focus Areas	Focus Areas Education, Advocacy, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Nelson Damiao, Maria Patricia Teles Martins Da Silva
	Institution	Institution The Associaçao Moçambicana de Hemofilia e outras Coaglupatias Congenitas (AMH)
	Started	Started Q1 2020
	Duration	Duration 2 years
	Status	Status Completed

Lesotho 1 project

Lesotho

	Description	Description Establish basic haemophilia care in Lesotho
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Moeketsi Mootisa, Ret’selisitsoe Mahlaha
	Institution	Institution Haemophilia Association of Lesotho (HAL)
	Started	Started Q1 2020
	Duration	Duration 2 years
	Status	Status Completed

Zambia 2 project

Zambia

	Description	Description Enhance haemophilia care in Zambia through improved grass-root awareness, diagnosis and care
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Chilufya Pikiti
	Institution	Institution Haemophilia Foundation of Zambia
	Started	Started Q1 2020
	Duration	Duration 2 years
	Status	Status Completed

Nigeria 3 project

Nigeria

	Description	Description Improve haemophilia care in Nigeria through awareness creation, diagnosis and empowerment
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Megan Adediran
	Institution	Institution Haemophilia Foundation of Nigeria
	Started	Started Q1 2020
	Duration	Duration 1 year
	Status	Status Completed

Mexico 8, San Luis Potosí project

Mexico

	Description	Description Establishing haemophilia multidisciplinary care in San Luis Potosí
	Focus Areas	Focus Areas Education, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Lourdes Cecilia Correa González
	Institution	Institution Hospital Central “Dr Ignacio Morones Prieto”
	Started	Started Q1 2020
	Duration	Duration 2 years
	Status	Status Execution

Thailand 5 project

Thailand

	Description	Description Strengthen haemophilia awareness and care in Southern Thailand
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Natsaruth Songthawee
	Institution	Institution Songklanagarind Hospital, Prince of Songkla University
	Started	Started Q1 2020
	Duration	Duration 2 years
	Status	Status Execution

Angola 1 project

Angola

	Description	Description Developing haemophilia awareness in Angola
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Kaunda da Gama, Luis Bernardino
	Institution	Institution Liga dos Amigos dos Doentes Hematológicos de Angola
	Started	Started Q3 2019
	Duration	Duration 2 years
	Status	Status Completed

Egypt 3 project

Egypt

	Description	Description Decentralisation of care across Egypt
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Magda Rakha
	Institution	Institution Egyptian Society of Hemophilia
	Started	Started Q2 2018
	Duration	Duration 2.5 years
	Status	Status Completed

India 12 project

India

	Description	Description Unify Hemophilia Federation India
	Focus Areas	Focus Areas Education, Advocacy, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Vikash Goyal, Mukesh Garodia
	Institution	Institution Hemophilia Federation (India)
	Started	Started Q2 2019
	Duration	Duration 1 year
	Status	Status Completed

Senegal 1 project

Senegal

	Description	Description A better life for Senegalese with haemophilia
	Focus Areas	Focus Areas Education, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Anna Seck, Abdoulaye Loum
	Institution	Institution Association Sénégalaise des Hémophiles
	Started	Started Q3 2019
	Duration	Duration 2.5 years
	Status	Status Completed

Uzbekistan 5 project

Uzbekistan

	Description	Description Empower the haemophilia community and strengthen multidisciplinary care in Uzbekistan
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Aziza Makhmudova, Lilya Zhinikova
	Institution	Institution Scientific Research Institute of hematology and Blood Transfusion
	Started	Started Q3 2019
	Duration	Duration 3 years
	Status	Status Completed

Georgia 2 project

Georgia

	Description	Description Strengthen haemophilia care in Western Georgia and establish national youth groups
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Levani Makhaldiani, Romanoz Khomasuridze
	Institution	Institution Georgian Society of Thrombosis and Haemostasis
	Started	Started Q4 2020
	Duration	Duration 2 years
	Status	Status Completed

Peru 4 project

Peru

	Description	Description Leaders for institutional progress
	Focus Areas	Focus Areas Education, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Guillermo Pareja, Gloria Chumpitaz
	Institution	Institution Asociación Peruana de la Hemofilia (ASPEH)
	Started	Started Q3 2020
	Duration	Duration 2.5 years
	Status	Status Execution

Myanmar 4 project

Myanmar (Burma)

	Description	Description Strengthening haemophilia care and diagnosis in Southern Myanmar
	Focus Areas	Focus Areas Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Aye Aye Khaing
	Institution	Institution Yangon Children Hospital
	Started	Started Q4 2020
	Duration	Duration 3 years
	Status	Status Cancelled

Ghana 3 project

Ghana

	Description	Description Strengthen advocacy capacity and haemophilia care in Ghana
	Focus Areas	Focus Areas Education, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Martin Boakye, Limmy Sarpong
	Institution	Institution Ghana Hemophilia Society
	Started	Started Q2 2020
	Duration	Duration 2 years
	Status	Status Completed

Ivory Coast 1 Project

Côte d’Ivoire

	Description	Description Increasing haemophilia awareness and diagnosis in Ivory Coast
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) N’dri Koffi, Ibrahima Sanogo
	Institution	Institution Internationale Hemophilie et autres Maladies du Sang (IHMS)
	Started	Started Q3 2020
	Duration	Duration 3 years
	Status	Status Closing

Romania 3 project

Romania

	Description	Description Strengthen haemophilia care in the north and establish a national registry in Romania
	Focus Areas	Focus Areas Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Ciprian Tomuleasa
	Institution	Institution Romanian Hematology Society (RHS)
	Started	Started Q3 2020
	Duration	Duration 1 year
	Status	Status Completed

Gambia 1 project

The Gambia

	Description	Description Establishing basic care in Gambia
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Vandy Jayah, Salifi Gaye
	Institution	Institution Safe Motherhood and Hemophilia Foundation
	Started	Started Q3 2020
	Duration	Duration 2 years
	Status	Status Completed

Malaysia 4 project

Malaysia

	Description	Description Strengthen haemophilia care in Malaysia
	Focus Areas	Focus Areas Education, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Jameela Sathar
	Institution	Institution Ampang Hospital
	Started	Started Q1 2020
	Duration	Duration 1 year
	Status	Status Completed

Mali 2 project

Mali

	Description	Description Improving knowledge and support to haemophilia at national level
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Yacouba Diallo
	Institution	Institution Association Malienne de Lutte contre l’Hémophilie (AMALHEC), Bamako
	Started	Started Q1 2019
	Duration	Duration 3 years
	Status	Status Completed

Kenya and Tanzania joint project

Kenya

	Description	Description Accelerating access to blood disorders care in Kenya and Tanzania
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Dr Kibet Shikuku, Dr Stella Rwezaula
	Institution	Institution Kenya Haemophilia Association (KHA) and Muhimbili National Hospital in Tanzania
	Started	Started Q3 2020
	Duration	Duration 3 years
	Status	Status Completed

Democratic Republic of Congo 1 project

Democratic Republic of the Congo

	Description	Description Blood disorders consortium for health promotion in Democratic Republic of Congo
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Jean Lambert Gini Ehungu, Léon Tshilolo
	Institution	Institution Cliniques Universitaires de Kinshasa
	Started	Started Q1 2021
	Duration	Duration 2 years
	Status	Status Completed

China 11

China

	Description	Description Strengthen haemophilia care in Shandong province and Tibet autonomous region
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Xinsheng Zhang, Yunhai Fang
	Institution	Institution Shandong Blood Center Shandong Hemophilia Treatment Center
	Started	Started Q1 2021
	Duration	Duration 2 years
	Status	Status Completed

Laos 1 project

Laos

	Description	Description Increase awareness about haemophilia and establish basic care in Laos
	Focus Areas	Focus Areas Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Banchongchith Vongdala, Amphayvanh MANIVONG
	Institution	Institution Mahosot hospital
	Started	Started Q4 2021
	Duration	Duration 2 years
	Status	Status Cancelled

Thailand 6 project

Thailand

	Description	Description Strengthen haemophilia care in Northeast Thailand
	Focus Areas	Focus Areas Education, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Patcharee Komvilaisak
	Institution	Institution Srinagarind Hospital
	Started	Started Q3 2021
	Duration	Duration 2 years
	Status	Status Execution

South Africa 5 project

South Africa

	Description	Description Raising the standard of care and promoting specialities in haemophilia care
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Bradley Rayner, Julie Malan
	Institution	Institution South African Haemophilia Foundation
	Started	Started Q3 2021
	Duration	Duration 2 years
	Status	Status Execution

Azerbaijan 3 project

Azerbaijan

	Description	Description Creation of multidisciplinary care teams for people with haemophilia living in the regions of Azerbaijan
	Focus Areas	Focus Areas Education, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Gulnara Huseynova
	Institution	Institution Azerbaijan Republic Association of Hemophilia
	Started	Started Q4 2021
	Duration	Duration 3 years
	Status	Status Execution

Vietnam 4 project

Vietnam

	Description	Description Joint effort to expand the national network of haemophilia care in Vietnam (phase 2)
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Khanh Bach Quoc, Thi Mai Nguyen
	Institution	Institution National Institute of Hematology and Blood Transfusion (NIHBT)
	Started	Started Q2 2022
	Duration	Duration 2 years
	Status	Status Cancelled

Global 6 project

Switzerland

	Description	Description Fostering advocacy to influence haemophilia care provision: a pilot project in six countries
	Focus Areas	Focus Areas Advocacy
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Louise Annaud
	Institution	Institution Philanthropy Advisors
	Started	Started Q3 2021
	Duration	Duration 1 year
	Status	Status Execution

Global 7 project

Switzerland

	Description	Description Virtual leadership programme for haemophilia practitioners
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Ahmed Razzak
	Institution	Institution Acasus
	Started	Started Q1 2022
	Duration	Duration 1.5 years
	Status	Status Execution

Romania 4 project

Romania

	Description	Description Strengthen haemophilia care in North-Eastern Romania and improve dentistry care across the country
	Focus Areas	Focus Areas Diagnosis, Registry, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Ciprian Tomuleasa
	Institution	Institution The Romanian Hematology Society (RHS)
	Started	Started Q3 2022
	Duration	Duration 2 years
	Status	Status Execution

Argentina 6 project

Argentina

	Description	Description Better joints and quality of life for people with haemophilia in North-Western Argentina
	Focus Areas	Focus Areas Education, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Claudia Josefina Castro, María Belén Nieva
	Institution	Institution Fundación de la Hemofilia de Tucumán
	Started	Started Q3 2022
	Duration	Duration 2 years
	Status	Status Execution

Madagascar 2 project

Madagascar

	Description	Description Improving access to care and treatment for people with haemophilia in Madagascar
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Mino Fitahiana Danielle, Aimee Olivat Rakoto Alson
	Institution	Institution University Hospital Center Tambohobe Fianarantsoa
	Started	Started Q3 2022
	Duration	Duration 2.5 years
	Status	Status Execution

Jamaica 2 project

Jamaica

	Description	Description Developing a country wide care network for bleeding disorders in Jamaica
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Gilian Wharfe, Magdalene Nwokocha
	Institution	Institution University Hospital of the West Indies
	Started	Started Q3 2022
	Duration	Duration 3 years
	Status	Status Execution

Sierra Leone 1 project

Sierra Leone

	Description	Description Establish basic haemophilia care in Sierra Leone
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Harry Mayeah Koroma
	Institution	Institution Frontier for Hemophilia and Bleeding Disorders
	Started	Started Q3 2022
	Duration	Duration 2.5
	Status	Status Execution

Zimbabwe 1

Zimbabwe

	Description	Description Establishment of basic haemophilia care in Zimbabwe
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Elliot Chintembo, Moses Chatambudza
	Institution	Institution Zimbabwe Hemophilia Association
	Started	Started Q3 2022
	Duration	Duration 2 years
	Status	Status Execution

India 7 project

India

	Description	Description Preventing and Decreasing Musculoskeletal Morbidities among People with Hemophilia in Southern India
	Focus Areas	Focus Areas Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Pamela Narayan
	Institution	Institution Haemophilia Federation India
	Started	Started Q3 2015
	Duration	Duration 3 years
	Status	Status Awards

Romania 3 project

Romania

	Description	Description Strengthen haemophilia care in the north and establish a national registry in Romania
	Focus Areas	Focus Areas Diagnosis, Registry, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Ciprian Tomuleasa
	Institution	Institution Romanian Hematology Society (RHS)
	Started	Started Q3 2020
	Duration	Duration 1 year
	Status	Status Awards

Chile 3 project

Chile

	Description	Description Consolidating care and treatment for haemophilia and allied bleeding disorders across Chile
	Focus Areas	Focus Areas Diagnosis, Registry, Capacity building
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Veronica Soto Arellano
	Institution	Institution Hospital Roberto del Río
	Started	Started Q4 2017
	Duration	Duration 1.5 years
	Status	Status Awards

South Africa 4 project

South Africa

	Description	Description Strengthen South African Haemophilia Federation capacity through youth development and empowerment of health care providers
	Focus Areas	Focus Areas Education, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Johan Potgieter
	Institution	Institution South African Haemophilia Foundation (SAHF) and its Medical and Scientific Advisory Council (MASAC)
	Started	Started Q2 2017
	Duration	Duration 3 years
	Status	Status Awards

Republic of Congo 1

Republic of the Congo

	Description	Description Building diagnosis and care capacity for people with haemophilia in Congo
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) ELIRA DOKEKIAS Alexis
	Institution	Institution Centre National de Reference de la Drépanocytose ” Antoinette SASSOU N’GUESSO”
	Started	Started Q1 2022
	Duration	Duration 2 years
	Status	Status Execution

Dominican Republic Community Award 2012

Dominican Republic

	Description	Description Community Award 2012
	Focus Areas	Focus Areas Empowerment
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Haydée Benoit de García
	Institution	Institution Fundación Apoyo al Hemofílico
	Started	Started Q2 2012
	Duration	Duration 2 years
	Status	Status Awards

Panama Community Award 2014

Panama

	Description	Description Community Award 2014
	Focus Areas	Focus Areas Capacity building
	Project type(s)	Project type(s) AWARD
	Partner(s)	Partner(s) Dr Belgica Moreno
	Institution	Institution Centro Nacional de Hemofilia
	Started	Started 2014
	Duration	Duration 1 year
	Status	Status Awards

Gambia 2 project

The Gambia

	Description	Description Strengthen haemophilia in the capital and expand capacity and awareness in the rural areas of the Gambia
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Vandy Jayah, Salifu Gaye
	Institution	Institution Safe motherHood and Hemophilia foundation
	Started	Started Q1 2023
	Duration	Duration 2 years
	Status	Status Execution

Liberia 1 project

Liberia

	Description	Description Establish basic care in Liberia
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Prince Kwenah
	Institution	Institution Liberia Hemophilia Program
	Started	Started Q1 2023
	Duration	Duration 2 years
	Status	Status Execution

Panama 3 project

Panama

	Description	Description Strengthen multidisciplinary care teams and paediatric-adult care transition in Panama
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Luz Villalaz, Alaisa de Melgar
	Institution	Institution Hospital del Niño
	Started	Started Q4 2022
	Duration	Duration 3 years
	Status	Status Execution

Guinea 1 project

Guinea

	Description	Description Increase haemophilia awareness and diagnosis in Guinea
	Focus Areas	Focus Areas Diagnosis, Registry, Advocacy, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Mamady Diakité, Abdoulaye Camara
	Institution	Institution CHU Ignace Deen
	Started	Started Q1 2023
	Duration	Duration 2 years
	Status	Status Execution

Botswana 2 project

Botswana

	Description	Description Decentralisation of care and diagnosis in two regions of Botswana
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Baraedi Winnie Mantswe, Andries Gontshwanetse
	Institution	Institution Botswana Baylor Children’s Centre of Excellence
	Started	Started Q3 2023
	Duration	Duration 2 years
	Status	Status Execution

Guatemala 2 project

Guatemala

	Description	Description Establishing a national haemophilia registry and multidisciplinary care teams in Guatemala
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Pedro Alvarado, Josué Bautista
	Institution	Institution Hospital San Juan de Dios
	Started	Started Q3 2023
	Duration	Duration 2.5 years
	Status	Status Formalisation

Indonesia 3 project

Indonesia

	Description	Description Decentralise basic haemophilia care and diagnosis to 4 regions in Indonesia
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Novie Chozie, Fitri Primacakti
	Institution	Institution Indonesian Association of Hematology and Blood Transfusion
	Started	Started Q3 2023
	Duration	Duration 2 years
	Status	Status Execution

Mali 3 project

Mali

	Description	Description Decentralise haemophilia diagnosis and strengthen multidisciplinary care in Mali
	Focus Areas	Focus Areas Education, Diagnosis, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) DIALLO Yacouba
	Institution	Institution Association Malienne de Lutte contre l’Hémophilie et les autres Coagulopathies (AMALHEC)
	Started	Started Q2 2023
	Duration	Duration 2 years
	Status	Status Execution

Zambia 3 project

Zambia

	Description	Description Strengthen awareness and care of haemophilia and sickle cell disease in Zambia
	Focus Areas	Focus Areas Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Chilufya Pikiti
	Institution	Institution Haemophilia Foundation of Zambia-ZACCAF-HFZ
	Started	Started Q3 2023
	Duration	Duration 3 years
	Status	Status Execution

Nigeria 4 project

Nigeria

	Description	Description Strengthening comprehensive care in 7 haemophilia treatment centres across Nigeria
	Focus Areas	Focus Areas Diagnosis, Capacity building, Awareness
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Omolade Awodu
	Institution	Institution University of Benin Teaching Hospital
	Started	Started Q3 2023
	Duration	Duration 3 years
	Status	Status Execution

India 14 project

India

	Description	Description Accelerate access to diagnosis and care in India
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Prem Roop Alva, Bipin Kulkarni
	Institution	Institution Hemophilia Federation (India)
	Started	Started Q3 2023
	Duration	Duration 2 years
	Status	Status Execution

Senegal 2 project

Senegal

	Description	Description Expand haemophilia comprehensive care in Senegal and regional care networks in West Africa
	Focus Areas	Focus Areas Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Abdoulaye Loum, Anna Seck
	Institution	Institution Association Senegalaise des Hémophiles
	Started	Started Q4 2023
	Duration	Duration 2 years
	Status	Status Execution

Paraguay 2 project

Paraguay

	Description	Description Strengthen haemophilia care structures and network in Paraguay
	Focus Areas	Focus Areas Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
	Project type(s)	Project type(s) PROJECT
	Partner(s)	Partner(s) Carolina Molas, Alejandro Cardozo
	Institution	Institution Programa Nacional de Sangre
	Started	Started Q1 2024
	Duration	Duration 3 years
	Status	Status Formalisation

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Project highlights

12/05/2017 |
Project of the Year
Project Updates
Strengthen South African Haemophilia Federation
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03/12/2020 |
Project Updates
Kenya-Tanzania joint project: Official launch event in Nairobi
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18/11/2020 |
Project Updates
Kenya-Tanzania joint project launch
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16/12/2021 |
Project Updates
Kenya and Tanzania: A year of advancing care for haemophilia and sickle cell disease
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14/03/2024 |
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Giving a voice to haemophilia carriers in Latin America
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Project highlights

Strengthen South African Haemophilia Federation

Kenya-Tanzania joint project: Official launch event in Nairobi

Kenya-Tanzania joint project launch

Kenya and Tanzania: A year of advancing care for haemophilia and sickle cell disease

Giving a voice to haemophilia carriers in Latin America

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