Grassroots programmes across the globe

NNHF funds sustainable programmes addressing equity in access to haemophilia and blood disorders care in low- and middle-income countries.

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 NameCountry
India 10 (Dhule) projectIndia
 Description
Description
Awareness and Educational project in the region around Dhule
 Focus Areas
Focus Areas
Education, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Harshal Kale
 Started
Started
Q4 2013
 Duration
Duration
1 year
 Status
Status
Completed
Mexico 5 fellowshipMexico
 Description
Description
Rehabilitation in haemophilia care
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Mariela Colin Marin
 Started
Started
Q3 2017
 Duration
Duration
1 month
 Status
Status
Completed
Nigeria 2 projectNigeria
 Description
Description
Activate and strengthen the medical and patients community in Nigeria
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Megan Buckie Adediran
 Started
Started
Q4 2014
 Duration
Duration
2 year
 Status
Status
Completed
Argentina 1 (Salta) projectArgentina
 Description
Description
Comprehensive approach to patients with haemophilia and their families in the province of Salta
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
María Sol Cruz
 Started
Started
Q3 2012
 Duration
Duration
1.5 years
 Status
Status
Awards
Kenya 1 fellowshipKenya
 Description
Description
Advanced clinical and diagnosis haemophilia training
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Kibet Peter Shikuku
 Started
Started
Q3 2012
 Duration
Duration
1 year
 Status
Status
Completed
Argentina 3 fellowshipArgentina
 Description
Description
Psychological individual and group approach to the patient with haemophilia and his family
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Daniela María Belén Serpa
 Started
Started
Q3 2013
 Duration
Duration
4 weeks
 Status
Status
Completed
Algeria 1 projectAlgeria
 Description
Description
Programme towards national comprehensive care
 Focus Areas
Focus Areas
Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Meriem Belhani
 Started
Started
Q4 2006
 Duration
Duration
3 years
 Status
Status
Completed
Kenya 2 projectKenya
 Description
Description
Formalise Kenya Hemophilia Association and start to get active with circumcision campaigns
 Focus Areas
Focus Areas
Diagnosis, Registry, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Kibet Shikuku
 Started
Started
Q3 2014
 Duration
Duration
6 month
 Status
Status
Completed
Mexico 6 fellowshipMexico
 Description
Description
Advanced rehabilitation training
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Aidee Gibraltar Conde
 Started
Started
Q3 2017
 Duration
Duration
1 month
 Status
Status
Completed
Azerbaijan 1 projectAzerbaijan
 Description
Description
Decentralisation of care through capacity building for HCPs, diagnosis and patient education
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Gulnara Huseynova
 Started
Started
Q1 2013
 Duration
Duration
1.5 years
 Status
Status
Completed
Palestine 2 projectState of Palestine
 Description
Description
Establish haemophilia care in Gaza Strip and empower the haemophilia community in Palestine
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Osama Najjar
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Costa Rica 1 fellowshipCosta Rica
 Description
Description
Specialised training in multidisciplinary haemophilia care
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Danny Ugalde Solera
 Started
Started
Q1 2015
 Duration
Duration
1 month
 Status
Status
Completed
Nepal 2 projectNepal
 Description
Description
Improving diagnosis and multidisciplinary care in Nepal
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Manil Shrestha, Suraksha Thapa
 Started
Started
Q1 2019
 Duration
Duration
3 years
 Status
Status
Completed
Pakistan 6 projectPakistan
 Description
Description
Building partnerships to create awareness and improve care
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hassan Raza
 Started
Started
Q3 2017
 Duration
Duration
2 years
 Status
Status
Completed
Armenia 2 projectArmenia
 Description
Description
Establish rehabilitation capacity and decentralise haemophilia care in Armenia
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Samvel Danielyan, Heghine Khachatryan
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
China 10 projectChina
 Description
Description
Strengthening comprehensive care and empowering children and families in six provinces of China
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Runhui Wu
 Started
Started
Q1 2019
 Duration
Duration
3 years
 Status
Status
Completed
Georgia 1 projectGeorgia
 Description
Description
Spreading knowledge about haemophilia and improving quality of diagnosis and treatment in Georgia
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Levani Makhaldiani
 Started
Started
Q1 2014
 Duration
Duration
2 years
 Status
Status
Completed
Kenya 3 fellowshipKenya
 Description
Description
Effective management and resource utilisation for bleeding disorders in Western Kenya
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Afude Jacob Injere
 Started
Started
Q1 2015
 Duration
Duration
6 months
 Status
Status
Completed
Venezuela & Mexico Desafío del CaribeVenezuela
 Description
Description
Desafio del Caribe 2011/2012
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Cesar Garrido, Carlos Gaitán
 Started
Started
Q3 2011
 Duration
Duration
1.5 years
 Status
Status
Completed
Nigeria 1 – NG1Nigeria
 Description
Description
Improving Clinicians Knowledge from across Nigeria and patients capacity building in the South West region
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Megan Buckie Adediran
 Started
Started
Q1 2013
 Duration
Duration
1 year
 Status
Status
Completed
Ethiopia 1 fellowshipEthiopia
 Description
Description
To gain knowledge to establish haematology including management of haemophilia as a daily activity in the Medical Department at Myungsung Christian Medical Centre
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Hiwot Dereje
 Started
Started
2011
 Duration
Duration
cancelled
 Status
Status
Cancelled
Argentina 1 (Salta) projectArgentina
 Description
Description
Comprehensive approach to patients with haemophilia and their families in the province of Salta
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
María Sol Cruz
 Started
Started
Q3 2012
 Duration
Duration
1.5 years
 Status
Status
Completed
Argentina 4 projectArgentina
 Description
Description
Comprehensive muscle and osteoarticular approach for people with bleeding disorders
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Maria Sol Cruz
 Started
Started
Q2 2017
 Duration
Duration
2 years
 Status
Status
Completed
Malaysia 1 projectMalaysia
 Description
Description
Educational Camps for Haemophilia and von Willebrand Disease Patients & Parents
 Focus Areas
Focus Areas
Education, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Faraizah Abdul Karim
 Started
Started
Q2 2008
 Duration
Duration
3 years
 Status
Status
Completed
Indonesia 1 projectIndonesia
 Description
Description
Improve Regional Haemophilia Care Centres
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Novie Amelia Chozie
 Started
Started
Q1 2013
 Duration
Duration
2 years
 Status
Status
Completed
Honduras 1 projectHonduras
 Description
Description
Epidemiologistic Identification of people with Hemophilia in Honduras (EIPHH)
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Armando Peña Hernández
 Started
Started
Q2 2011
 Duration
Duration
1.5 years
 Status
Status
Completed
Honduras 1 projectHonduras
 Description
Description
Epidemiologistic Identification of people with Hemophilia in Honduras (EIPHH)
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Armando Peña Hernández
 Started
Started
Q2 2011
 Duration
Duration
1.5 years
 Status
Status
Awards
Romania 1 projectRomania
 Description
Description
Improvement of haemophilia care in Romania
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Margit Serban
 Started
Started
Q1 2007
 Duration
Duration
2 years
 Status
Status
Completed
Kenya 4 projectKenya
 Description
Description
Provide standardised quality care across Kenya
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Kibet Shikuku
 Started
Started
Q2 2018
 Duration
Duration
2 years
 Status
Status
Completed
Brazil 1 fellowshipBrazil
 Description
Description
Development of effective physiotherapy care to improve quality of life in patients with haemophilia.
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Janaina Bosso J. Silva
 Started
Started
Q1 2010
 Duration
Duration
8 weeks
 Status
Status
Completed
Malawi 2 fellowshipMalawi
 Description
Description
Build diagnosis capacity in Malawi
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Blessing Mwagomba
 Started
Started
Q1 2017
 Duration
Duration
1.5 months
 Status
Status
Completed
Mexico 5 (State of Mexico) projectMexico
 Description
Description
Creation of comprehensive haemophilia clinic of ISSEMyM
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Cecilia Rodríguez Castillejos
 Started
Started
Q1 2017
 Duration
Duration
1.5 years
 Status
Status
Completed
Nepal 1 projectNepal
 Description
Description
Strengthening the local chapters of Nepal Hemophilia Society to achieve better care through advocacy
 Focus Areas
Focus Areas
Education, Advocacy, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Beda Raj Dhungana
 Started
Started
Q1 2015
 Duration
Duration
6 months
 Status
Status
Completed
Cuba 2 fellowshipCuba
 Description
Description
MSK training in haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Armando Javier Tejera Valdés
 Started
Started
Q2 2017
 Duration
Duration
1 month
 Status
Status
Cancelled
Uzbekistan 1 projectUzbekistan
 Description
Description
Improve haemophilia diagnostic and treatment level
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Aziza Makhmudova
 Started
Started
Q2 2006
 Duration
Duration
1 year
 Status
Status
Completed
India 3 fellowshipIndia
 Description
Description
Management of rare bleeding disorders
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Hemlata Das
 Started
Started
Q4 2014
 Duration
Duration
4 months
 Status
Status
Completed
Mexico 1 fellowshipMexico
 Description
Description
Strengthening multidisciplinary care in Chihuahua – training focussing on surgery in haemophilia patients
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
José Luis López Arroyo
 Started
Started
Q3 2014
 Duration
Duration
1 month
 Status
Status
Completed
India 1 fellowshipIndia
 Description
Description
Comprehensive clinical and laboratory training in haemophilia and allied bleeding disorders
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Nita Radhakrishnan
 Started
Started
Q1 2012
 Duration
Duration
6 months
 Status
Status
Completed
Brazil 2 projectBrazil
 Description
Description
Improve MSK status of PWH in Brazil by Measuring, Analysing, Disseminating and Educating – the way to correct, prevent and optimise the treatment
 Focus Areas
Focus Areas
Education, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Margareth Castro Ozelo
 Started
Started
Q2 2011
 Duration
Duration
3 years
 Status
Status
Completed
Vietnam 1 projectVietnam
 Description
Description
Haemophilia prevalence, diagnosis and management in the north of Vietnam
 Focus Areas
Focus Areas
Education, Diagnosis, Registry
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Duong Ba Truc Duong Ba Truc
 Started
Started
Q4 2008
 Duration
Duration
2 years
 Status
Status
Completed
Mexico 2 fellowshipMexico
 Description
Description
Management of haemophilic arthropathy in people with haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Roque Nicolás Fernández Muñoz
 Started
Started
Q3 2014
 Duration
Duration
1 month
 Status
Status
Completed
Uzbekistan 2 projectUzbekistan
 Description
Description
School for children admitted to the national haemophilia treatment centre
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Aziza Makhmudova
 Started
Started
Q4 2008
 Duration
Duration
1 year
 Status
Status
Completed
South Africa 2 (Eastern Cape) projectSouth Africa
 Description
Description
Rural care and reference centre development
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Richard Johnson
 Started
Started
Q3 2012
 Duration
Duration
1 year
 Status
Status
Completed
Morocco 1 projectMorocco
 Description
Description
Road to comprehensive haemophilia care in Morocco
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
El-Khorassani , Jaoud Chbihi
 Started
Started
Q3 2011
 Duration
Duration
1 year
 Status
Status
Completed
Community Award 2016Uzbekistan
 Description
Description
Community Award 2016
 Focus Areas
Focus Areas
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Aziza Makhmudova
 Started
Started
2016
 Duration
Duration
1 year
 Status
Status
Awards
Cuba 1 fellowshipCuba
 Description
Description
Training in theoretical and practical techniques in coagulation laboratory
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Elizabeth Cruz Gómez
 Started
Started
Q1 2014
 Duration
Duration
3 months
 Status
Status
Cancelled
Tanzania 2 fellowshipTanzania
 Description
Description
Start haemophilia care in Southern Tanzania
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Goreth Lupembe
 Started
Started
Q1 2017
 Duration
Duration
3 months
 Status
Status
Completed
Venezuela 2 (Marco Polo) projectVenezuela
 Description
Description
Marco Polo – Improvement of quality of diagnosis of hereditary bleeding disorders on a national level
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Arlette Ruiz de Sáez, Cesar Garrido
 Started
Started
Q3 2010
 Duration
Duration
3 years
 Status
Status
Completed
Sri Lanka 1 projectSri Lanka
 Description
Description
Improve Physiotherapy and Musculoskeletal training and awareness for HCPs and Haemophilia community
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Pinsiri B. Godamunna
 Started
Started
Q2 2015
 Duration
Duration
2 years
 Status
Status
Completed
Mexico 3 projectMexico
 Description
Description
Set up paediatric rehabilitation to prevent functional limitations in children in two hospitals in Mexico City
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Io Daiela Castillo Martinez
 Started
Started
Q4 2014
 Duration
Duration
1.5 years
 Status
Status
Completed
Mexico 4 fellowshipMexico
 Description
Description
Improving laboratory performance to achieve quality diagnosis for children with bleeding disorders
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Claudia Farfan Becerril
 Started
Started
Q3 2014
 Duration
Duration
2 weeks
 Status
Status
Completed
Chile 1 fellowshipChile
 Description
Description
The role of the nurse in a haemophilia care team
 Focus Areas
Focus Areas
Diagnosis
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Andrea Contreras Garrido
 Started
Started
Q4 2014
 Duration
Duration
1 month
 Status
Status
Completed
Colombia 1 fellowshipColombia
 Description
Description
Advanced training in physiotherapy of patients with haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Adriana Orejuela
 Started
Started
Q1 2013
 Duration
Duration
5 weeks
 Status
Status
Completed
Nicaragua 2 projectNicaragua
 Description
Description
Haemophilia care outreach in Nicaragua
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Engels Rolando Reyes Sánchez, René Berrios Cruz
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Panama 2 fellowshipPanama
 Description
Description
Use of ultrasound in the diagnosis of haematomas and haemarthrosis
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Benilda González Lao
 Started
Started
Q2 2016
 Duration
Duration
1 month
 Status
Status
Completed
Mexico 4 projectMexico
 Description
Description
National alliance for a cross-sectorial haemophilia programme
 Focus Areas
Focus Areas
Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Martha Monteros
 Started
Started
Q2 2017
 Duration
Duration
3 years
 Status
Status
Completed
Pakistan 5 projectPakistan
 Description
Description
Bringing change by improving access to care and awareness: Ca-pacity building and leadership initiative
 Focus Areas
Focus Areas
Education, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Masood Fareed Malik
 Started
Started
Q3 2014
 Duration
Duration
2 years
 Status
Status
Awards
Peru 2 projectPeru
 Description
Description
Training of social workers in haemophilia in Peru
 Focus Areas
Focus Areas
Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Carmen Emperatriz Castro Abad
 Started
Started
Q1 2016
 Duration
Duration
1 year
 Status
Status
Completed
Senegal 1 fellowshipSenegal
 Description
Description
Advanced clinical & laboratory training in diagnosis & monitoring of haemophilia
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Diariatou Sy Bah
 Started
Started
Q1 2012
 Duration
Duration
9 months
 Status
Status
Completed
Turkey 1 projectTurkey
 Description
Description
Peer-to-peer healthcare professional and patient educational meetings in the Eastern part of Turkey
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Kaan Kavakli
 Started
Started
Q1 2013
 Duration
Duration
15 months
 Status
Status
Completed
Uzbekistan 3 projectUzbekistan
 Description
Description
Improve regional treatment
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Aziza Makhmudova
 Started
Started
Q3 2012
 Duration
Duration
2 years
 Status
Status
Completed
India 9 (West Bengal) projectIndia
 Description
Description
Identify, diagnose and empower people with haemophilia in West Bengal
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Ajoy Roy, Subhajit Banerjee
 Started
Started
Q3 2018
 Duration
Duration
3 year
 Status
Status
Completed
Peru 1 (Cajamarca) projectPeru
 Description
Description
Strengthening the laboratory and the multidisciplinary care team in the Regional Hospital of Cajamarca
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Pedro Lovato Ríos
 Started
Started
Q2 2014
 Duration
Duration
1 year
 Status
Status
Cancelled
India 3 projectIndia
 Description
Description
Spread awareness, building capacity, and diagnostics spectrum in haemophilia-(Spread ABCD Spectrum project) in northern India
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Naresh Gupta
 Started
Started
Q3 2013
 Duration
Duration
2 years
 Status
Status
Completed
Thailand 1 fellowshipThailand
 Description
Description
Research in Haemostasis and Thrombosis
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Noppacharn Uaprasert
 Started
Started
Q3 2009
 Duration
Duration
1 year
 Status
Status
Completed
Cuba 2 projectCuba
 Description
Description
Decentralisation of comprehensive care to two centres in the East and establishment of a national reference centre for women with bleeding disorders in Havana
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
José M. Ballester Santovenia, Dunia Castillo
 Started
Started
Q3 2016
 Duration
Duration
2 years
 Status
Status
Completed
Colombia 5 fellowshipColombia
 Description
Description
Training in physiotherapy to improve care for people with haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Lina Teresa Mateus Díaz
 Started
Started
Q2 2016
 Duration
Duration
1 month
 Status
Status
Completed
Bulgaria 2 projectBulgaria
 Description
Description
Extension of comprehensive care to a national level
 Focus Areas
Focus Areas
Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Toshko Jelev Lissitchkov
 Started
Started
Q2 2009
 Duration
Duration
2 years
 Status
Status
Completed
Cuba 1 projectCuba
 Description
Description
Establishment of Haemophilia Comprehensive Care
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
José M. Ballester Santovenia, Delfina Almagro Vázquez
 Started
Started
Q2 2008
 Duration
Duration
2 years
 Status
Status
Completed
Tanzania 1 projectTanzania
 Description
Description
Seed funding of Haemophilia Outreach project in Tanzania
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Richard Minja
 Started
Started
Q4 2009
 Duration
Duration
1 year
 Status
Status
Completed
Namibia 1 projectNamibia
 Description
Description
Establish a basic multidisciplinary team in Windhoek and improve haemophilia management in Namibia
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Immanuel Mayiji, Regina Roeber
 Started
Started
Q1 2019
 Duration
Duration
1.5 years
 Status
Status
Completed
Jordan 3 projectJordan
 Description
Description
Creation of a medical and social network to support haemophilia care across Jordan
 Focus Areas
Focus Areas
Education, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Arafat Awajan
 Started
Started
Q3 2014
 Duration
Duration
2 years
 Status
Status
Completed
India 7 projectIndia
 Description
Description
Preventing and Decreasing Musculoskeletal Morbidities among People with Hemophilia in Southern India
 Focus Areas
Focus Areas
Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Pamela Narayan
 Started
Started
Q3 2015
 Duration
Duration
3 years
 Status
Status
Completed
Botswana 1Botswana
 Description
Description
Improve access to diagnosis and bleeding disorders care in Botswana
 Focus Areas
Focus Areas
Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Jeremy Slone, Pearl Semetsa
 Started
Started
Q2 2018
 Duration
Duration
1.5 years
 Status
Status
Completed
Guatemala 1 projectGuatemala
 Description
Description
Advancing integrated care management of people with haemophilia in Guatemala
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Marta Julia López Ruano
 Started
Started
Q4 2014
 Duration
Duration
2 years
 Status
Status
Cancelled
Iraq 1 projectIraq
 Description
Description
Improvement of Diagnosis and Establishment of National Registry
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Nazar Al-Anbaki, Ali Muslim Mahmod
 Started
Started
Q4 2007
 Duration
Duration
1.5 years
 Status
Status
Completed
Tanzania 1 fellowshipTanzania
 Description
Description
Training in general haemophilia care
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Neema Marandu
 Started
Started
Q1 2016
 Duration
Duration
3 months
 Status
Status
Completed
Zambia 1 projectZambia
 Description
Description
Haemophilia awareness campaign and outreach across Zambia
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Chilufya Pikiti
 Started
Started
Q2 2017
 Duration
Duration
1.5 years
 Status
Status
Completed
Brazil 2 fellowshipBrazil
 Description
Description
Physiotherapeutic management of haemophilia
 Focus Areas
Focus Areas
Education, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Márcia A. Piccoloto Matta
 Started
Started
Q2 2011
 Duration
Duration
4 weeks
 Status
Status
Completed
Chile 5 fellowshipChile
 Description
Description
The role of a social worker in haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Pamela Andrea Suazo Navarro
 Started
Started
Q4 2016
 Duration
Duration
2 weeks
 Status
Status
Completed
Colombia 3 fellowshipColombia
 Description
Description
Training in haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Gloria Cristina Valencia Solanilla
 Started
Started
Q1 2015
 Duration
Duration
1 month
 Status
Status
Completed
China 4 fellowshipChina
 Description
Description
Improve the capacity of managing patients with bleeding disorders
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Feng Xue Feng Xue
 Started
Started
Q2 2013
 Duration
Duration
4 months
 Status
Status
Completed
Colombia 4 fellowshipColombia
 Description
Description
Specialise in the care of paediatric haemostasis disorders
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Oscar Eduardo Gonzalez Figueredo
 Started
Started
Q3 2015
 Duration
Duration
2 months
 Status
Status
Completed
Lithuania 1 fellowshipLithuania
 Description
Description
Management of PwH before, during and after orthopaedic interventions
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Liudvikas Kervys
 Started
Started
Q4 2014
 Duration
Duration
3 weeks
 Status
Status
Completed
Indonesia 2 projectIndonesia
 Description
Description
Improve access to care through strengthened multidisciplinary care teams in regional core centres and focused outreach to 10 provinces
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Novie Amelia Chozie
 Started
Started
Q2 2017
 Duration
Duration
3 years
 Status
Status
Completed
Colombia 3 projectColombia
 Description
Description
Strengthening our life skills
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
David Andrés Cuartas Bolivar
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Thailand 1 projectThailand
 Description
Description
Improving haemophilia care in Thailand through the Chronic Care Model
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hathaiwut Lamthean, Ampaiwan Chuansumrit
 Started
Started
Q4 2013
 Duration
Duration
1.5 years
 Status
Status
Completed
Thailand 3 projectThailand
 Description
Description
Improving haemophilia care through the Chronic Care Model
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hathaiwut Lamthean, Ampaiwan Chuansumrit
 Started
Started
Q4 2016
 Duration
Duration
3 months
 Status
Status
Completed
Nicaragua 1 projectNicaragua
 Description
Description
Establish comprehensive care of haemophilia in Nicaragua
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Javier Antonio Rivas Ojeda, René Berrios
 Started
Started
Q1 2015
 Duration
Duration
2 years
 Status
Status
Completed
Ethiopia 1 projectEthiopia
 Description
Description
Improve haemophilia care in Ethiopia by decentralisation of care and empowerment of haemophilia community
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Samson Hailemariam
 Started
Started
Q1 2018
 Duration
Duration
2 years
 Status
Status
Closing
Argentina 2 fellowshipArgentina
 Description
Description
Learning new strategies to improve haemophilia care
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Marcela del Valle Bustos
 Started
Started
Q1 2013
 Duration
Duration
1 month
 Status
Status
Completed
Pakistan 1 projectPakistan
 Description
Description
Capacity building for haemophilia care programme – a pilot study
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Tahir S. Shamsi
 Started
Started
Q3 2007
 Duration
Duration
2 years
 Status
Status
Completed
South Africa 4 projectSouth Africa
 Description
Description
Strengthen South African Haemophilia Federation capacity through youth development and empowerment of health care providers
 Focus Areas
Focus Areas
Education, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Johan Potgieter
 Started
Started
Q2 2017
 Duration
Duration
3 years
 Status
Status
Completed
Pakistan 5 projectPakistan
 Description
Description
Bringing change by improving access to care and awareness: Ca-pacity building and leadership initiative
 Focus Areas
Focus Areas
Education, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Masood Fareed Malik
 Started
Started
Q3 2014
 Duration
Duration
2 years
 Status
Status
Completed
Macedonia 2 projectMacedonia (FYROM)
 Description
Description
Establishment of national comprehensive haemophilia
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Violeta Dejanova-Ilijevska
 Started
Started
Q4 2011
 Duration
Duration
1 year
 Status
Status
Completed
Thailand 4 projectThailand
 Description
Description
Improving haemophilia care in Thailand through the Chronic Care Model, strengthening of comprehensive care teams and development of leadership talents
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hathaiwut Lamthean, Ampaiwan Chuansumrit
 Started
Started
Q1 2017
 Duration
Duration
2 years
 Status
Status
Completed
Panama 1 fellowshipPanama
 Description
Description
Strengthening of comprehensive social work with people with haemophilia and their families
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Cecilia Marrugo
 Started
Started
Q3 2015
 Duration
Duration
3 weeks
 Status
Status
Completed
Macedonia 1 fellowshipMacedonia (FYROM)
 Description
Description
Improve the orthopaedic management of people with haemophilia in Macedonia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Antonio Gavrilovski
 Started
Started
Q2 2014
 Duration
Duration
4 months
 Status
Status
Completed
Cambodia 2 fellowshipCambodia
 Description
Description
Advanced training in rare bleeding disorders diagnosis
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Sem Samey
 Started
Started
Q1 2017
 Duration
Duration
2 months
 Status
Status
Completed
India 6 projectIndia
 Description
Description
Capacity Building and Empowerment program for care givers and parents involved in the Hemophilia Care in North East and North India
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Mukesh Garodia, Richa Mohan
 Started
Started
Q1 2015
 Duration
Duration
2 years
 Status
Status
Completed
Uruguay 2 projectUruguay
 Description
Description
Set-up integral Care of Women with bleeding disorders and carriers
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Beatriz Boggia, Adriana Tiscornia
 Started
Started
Q4 2012
 Duration
Duration
2 years
 Status
Status
Cancelled
Libya 2 fellowshipLibya
 Description
Description
Strengthen the haematology clinic in the Paediatric hospital
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Salwa Saad Ali
 Started
Started
Q1 2015
 Duration
Duration
3 month
 Status
Status
Completed
Chile 6 fellowshipChile
 Description
Description
Comprehensive care training with a focus on diagnosis
 Focus Areas
Focus Areas
Diagnosis
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
José Luis Lamas Castellanos
 Started
Started
Q4 2016
 Duration
Duration
1 month
 Status
Status
Cancelled
Nigeria 1 fellowshipNigeria
 Description
Description
Training in general clinical haemophilia care
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Fatai Bello
 Started
Started
Q2 2013
 Duration
Duration
1 year
 Status
Status
Completed
Mexico 1 projectMexico
 Description
Description
Creation of regional high level paediatrician training centre – pilot at Siglo XXI with reach out to clinicians in 2nd and 3rd levels IMSS hospitals
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Roberto Bernaldez Rios
 Started
Started
Q1 2011
 Duration
Duration
1 year
 Status
Status
Completed
Colombia 1 (Antioquia) projectColombia
 Description
Description
Improve access to care for patients in remote areas of Antioquia by creation of comprehensive educational and awareness network
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Yuri Andrea Arango
 Started
Started
Q3 2012
 Duration
Duration
2 years
 Status
Status
Completed
India 2 projectIndia
 Description
Description
IDEEA – Identification, Diagnosis, Education and Empowerment for Action of people with bleeding disorders in South India
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Annamma Kurien
 Started
Started
Q1 2012
 Duration
Duration
3 years
 Status
Status
Completed
Chile 1 projectChile
 Description
Description
MITHEF PROJECT – National Improvement of Haemophilia Treatment
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
María Mercedes Morales Gana
 Started
Started
Q1 2009
 Duration
Duration
3 years
 Status
Status
Completed
Uganda 3 projectUganda
 Description
Description
Improve haemophilia management in Uganda
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Kisakye Agnes, Ssewungu Joseph
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Mexico 7 (Jalisco) projectMexico
 Description
Description
Improve the diagnosis and comprehensive care system in the State of Jalisco
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Natalia Padilla
 Started
Started
Q2 2018
 Duration
Duration
2.5 years
 Status
Status
Completed
Malawi 1 projectMalawi
 Description
Description
Establish haemophilia care in Malawi
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Yohannie Billy Mlombe
 Started
Started
Q2 2016
 Duration
Duration
9 months
 Status
Status
Completed
Mauritius 1 projectMauritius
 Description
Description
Establish a multidisciplinary care team and improving haemophilia care in Mauritius
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Asraf Caunhye
 Started
Started
Q3 2015
 Duration
Duration
2 years
 Status
Status
Completed
Myanmar 1 fellowshipMyanmar (Burma)
 Description
Description
Clinical fellowship program on bleeding disorders
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Khin Nwe Oo Khin Nwe Oo
 Started
Started
2012
 Duration
Duration
6 months
 Status
Status
Completed
Bangladesh 1 projectBangladesh
 Description
Description
Improving quality of care for haemophilia in three centres in Bangladesh
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Salma Afrose
 Started
Started
Q4 2015
 Duration
Duration
1 year
 Status
Status
Completed
Zambia 1 fellowshipZambia
 Description
Description
Training in diagnosis and care management of haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Silweya David
 Started
Started
N/A
 Duration
Duration
1.5 months
 Status
Status
Cancelled
Mexico 6 (Yucatan) projectMexico
 Description
Description
Comprehensive outreach approach to the benefit of people with bleeding disorders in the state of Yucatan
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Eric Gutierrez
 Started
Started
Q3 2017
 Duration
Duration
1 year
 Status
Status
Completed
Vietnam 2 projectVietnam
 Description
Description
Join efforts to improve quality of haemophilia care across Vietnam
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Nguyen Anh Tri Nguyen Anh Tri, Mai Nguyen Thi
 Started
Started
Q2 2013
 Duration
Duration
3 years
 Status
Status
Completed
Malawi 1 fellowshipMalawi
 Description
Description
Specialised training in haemophilia care and management
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Christine Noellah Chilinga
 Started
Started
Q1 2017
 Duration
Duration
2 months
 Status
Status
Completed
Kenya 2 fellowshipKenya
 Description
Description
Providing physiotherapy for haemophilia patients in Kenya
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Agrippina Matasyo
 Started
Started
Q1 2015
 Duration
Duration
3 months
 Status
Status
Completed
Poland 1 projectPoland
 Description
Description
Programme for evaluation and standardisation of the diagnostic and treatment approaches in haemophilia patients without or with inhibitors
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Anna Klukowska
 Started
Started
Q2 2006
 Duration
Duration
2 1/4 years
 Status
Status
Completed
Uganda 2 projectUganda
 Description
Description
Create awareness and HCPs training in Uganda
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Agnes Kisakye
 Started
Started
Q2 2016
 Duration
Duration
2 years
 Status
Status
Awards
Pakistan 3 projectPakistan
 Description
Description
Education of education programme to a national level
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Tahira Zafar
 Started
Started
Q3 2009
 Duration
Duration
1 year
 Status
Status
Completed
India 1 projectIndia
 Description
Description
Capacity Building Project in Haemophilia for Paediatricians
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Anupam Sachdeva
 Started
Started
Q2 2009
 Duration
Duration
3 years
 Status
Status
Completed
Mexico 2 (Nuevo León) projectMexico
 Description
Description
Establishing a regional multidisciplinary haemophilia healthcare centre in Monterrey, Mexico
 Focus Areas
Focus Areas
Education, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Laura Villarreal Martínez
 Started
Started
Q1 2014
 Duration
Duration
2 years
 Status
Status
Completed
Venezuela 1 projectVenezuela
 Description
Description
Consolidación III – Haemophilia association branch expansion
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Cesar Garrido
 Started
Started
Q4 2005
 Duration
Duration
2.5 years
 Status
Status
Completed
China 3 projectChina
 Description
Description
Further improve reliability of diagnosis and comprenhensive care in China by setting up a National Quality Assessment Programme
 Focus Areas
Focus Areas
Diagnosis, Registry, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hongli Wang
 Started
Started
Q2 2012
 Duration
Duration
2 years
 Status
Status
Completed
Uganda 2 projectUganda
 Description
Description
Create awareness and HCPs training in Uganda
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Agnes Kisakye
 Started
Started
Q2 2016
 Duration
Duration
2 years
 Status
Status
Completed
China 2 fellowshipChina
 Description
Description
Diagnosis of bleeding disorders
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Jing Dai Jing Dai
 Started
Started
Q2 2009
 Duration
Duration
6 months
 Status
Status
Completed
Brazil 3 fellowshipBrazil
 Description
Description
Impact of training health care professionals and patients with inherited bleeding disorders on quality of treatment
 Focus Areas
Focus Areas
Education, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Fabio Melo Bessa de Souza
 Started
Started
Q1 2012
 Duration
Duration
13 weeks
 Status
Status
Completed
Macedonia 1 projectMacedonia (FYROM)
 Description
Description
Capacity Building in Haemophilia Care
 Focus Areas
Focus Areas
Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Sofijanka Glamocanin
 Started
Started
Q1 2007
 Duration
Duration
1 year
 Status
Status
Completed
Ecuador 1 fellowshipEcuador
 Description
Description
Optimisation of medical knowledge in haemophilia care
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
María Lorena Freire Astudillo
 Started
Started
Q3 2015
 Duration
Duration
1 month
 Status
Status
Completed
Armenia 1 projectArmenia
 Description
Description
Building the national haemophilia care network in Armenia
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Smbat Daghbashyan
 Started
Started
Q1 2015
 Duration
Duration
2 years
 Status
Status
Completed
Jamaica 1 projectJamaica
 Description
Description
Establishing quality diagnosis, comprehensive care and expertise inbleeding disorders
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Gilian Wharfe
 Started
Started
Q3 2014
 Duration
Duration
2 years
 Status
Status
Completed
Morocco 2 projectMorocco
 Description
Description
A regional approach in and around Fez to improve haemophilia care through physiotherapy and theatre-therapy
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hassan Alaoui Mrani
 Started
Started
Q4 2011
 Duration
Duration
1 year
 Status
Status
Completed
Ecuador 2 fellowshipEcuador
 Description
Description
Dental care in haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Julia Anabely Mora Delgado
 Started
Started
Q3 2015
 Duration
Duration
1 month
 Status
Status
Completed
India 2 projectIndia
 Description
Description
IDEEA – Identification, Diagnosis, Education and Empowerment for Action of people with bleeding disorders in South India
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Annamma Kurien
 Started
Started
Q1 2012
 Duration
Duration
3 years
 Status
Status
Awards
India 8 projectIndia
 Description
Description
Empowering parents in South and West India
 Focus Areas
Focus Areas
Education, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Richa Mohan
 Started
Started
Q4 2016
 Duration
Duration
2 years
 Status
Status
Completed
Tanzania 2 projectTanzania
 Description
Description
Empower the patient association to organise successful awareness campaign and advocacy
 Focus Areas
Focus Areas
Education, Advocacy, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Richard Minja
 Started
Started
Q2 2017
 Duration
Duration
1 year
 Status
Status
Completed
Macedonia 1 projectMacedonia (FYROM)
 Description
Description
Capacity Building in Haemophilia Care
 Focus Areas
Focus Areas
Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Sofijanka Glamocanin
 Started
Started
Q1 2007
 Duration
Duration
1 year
 Status
Status
Completed
Nigeria 2 fellowshipNigeria
 Description
Description
Specialised training in the diagnosis and management of haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Livingstone Dogara
 Started
Started
Q3 2016
 Duration
Duration
6 months
 Status
Status
Completed
Lithuania 1 projectLithuania
 Description
Description
Collaboration of LHS patients and specialists to improve physiotherapy care
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Egidijus Šliaužys
 Started
Started
Q3 2011
 Duration
Duration
1 year
 Status
Status
Completed
Chile 3 projectChile
 Description
Description
Consolidating care and treatment for haemophilia and allied bleeding disorders across Chile
 Focus Areas
Focus Areas
Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Veronica Soto Arellano
 Started
Started
Q4 2017
 Duration
Duration
1.5 years
 Status
Status
Completed
Malaysia 2 projectMalaysia
 Description
Description
Training in diagnosis of haemophilia patients & educational program for newly identified patients & families
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Faraizah Abdul Karim
 Started
Started
Q1 2012
 Duration
Duration
3 years
 Status
Status
Cancelled
Uruguay 3 projectUruguay
 Description
Description
Decentralising care and diagnosis network in Uruguay
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Maria Teresa Faguaga González, Ana Gabriela Chalkling
 Started
Started
Q2 2017
 Duration
Duration
2 years
 Status
Status
Completed
Panama 2 projectPanama
 Description
Description
Establishment of 6 satellite centres and national patient education
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Belgica Moreno
 Started
Started
Q4 2011
 Duration
Duration
2 years
 Status
Status
Completed
Philippines 1 projectPhilippines
 Description
Description
National Registry of Haemophilia and Allied Bleeding DisordersPhilippines
 Focus Areas
Focus Areas
Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Flerida G. Hernandez
 Started
Started
Q3 2012
 Duration
Duration
3 years
 Status
Status
Completed
Albania 1 projectAlbania
 Description
Description
Strengthen haemophilia care in Tirana, create awareness across the country and empower the patient organisation
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Adela Perolla, Bledi Kalaja
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Chile 2 projectChile
 Description
Description
Improvement of care with a focus on home therapy and MSK through empowerment of medical and patient community
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
José Luis Lamas Castellanos
 Started
Started
Q2 2014
 Duration
Duration
2 years
 Status
Status
Completed
Bulgaria 1 projectBulgaria
 Description
Description
Creation of Comprehensive Haemophilia Treatment Centre (CHTC) – Sofia
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Toshko Jelev Lissitchkov
 Started
Started
Q1 2007
 Duration
Duration
2 years
 Status
Status
Completed
Basic Coagulation Courses 2011-2016Switzerland
 Description
Description
NNHF Lab training module
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Angus McCraw, Marion Echenagucia
 Started
Started
Q1 2016
 Duration
Duration
1 year each, from 2011-2016
 Status
Status
Completed
Ghana 1 fellowshipGhana
 Description
Description
Improve lab capacity in Kumasi, Ghana
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
David Ofosu
 Started
Started
Q1 2016
 Duration
Duration
2 months
 Status
Status
Completed
China 8 projectChina
 Description
Description
Establishing and strengthening quality haemophilia care in the northeast region of China
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Renchi Yang
 Started
Started
Q3 2017
 Duration
Duration
3 years
 Status
Status
Completed
Myanmar 1 projectMyanmar (Burma)
 Description
Description
Institution of the Myanmar Haemophilia Patients’ association and establishment of its collaboration network
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Khin Nwe Oo Khin Nwe Oo
 Started
Started
Q4 2013
 Duration
Duration
1.5 years
 Status
Status
Completed
Palestine 1 projectState of Palestine
 Description
Description
Improve the quality of health care provided for patients with Haemophilia in Palestine
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Huda Lahham, Hussein Elyan
 Started
Started
Q2 2014
 Duration
Duration
1.5 years
 Status
Status
Completed
Ukraine 1 projectUkraine
 Description
Description
National education and awareness creation programme in haemophilia
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Galyna Moroz, Zenia Chernyk
 Started
Started
Q2 2011
 Duration
Duration
2 years
 Status
Status
Completed
Egypt 2 projectEgypt
 Description
Description
Improving musculoskeletal (MSK) care in Egypt and establishing a MSK-registry to collect outcome data
 Focus Areas
Focus Areas
Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Magda Rakha, Adly Sabbour
 Started
Started
Q1 2016
 Duration
Duration
1.5 years
 Status
Status
Completed
Libya 1 fellowshipLibya
 Description
Description
Improve lab capacity and learn how to efficiently set up a coagulation laboratory upon return
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Safa Naser Abdelgader
 Started
Started
2015
 Duration
Duration
1 month
 Status
Status
Cancelled
Malawi 2 projectMalawi
 Description
Description
Expand haemophilia care to the South region of Malawi
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Yohannie Mlombe, Chimwemwe Chande
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Cuba 1 projectCuba
 Description
Description
Establishment of Haemophilia Comprehensive Care
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
José M. Ballester Santovenia, Delfina Almagro Vázquez
 Started
Started
Q2 2008
 Duration
Duration
2 years
 Status
Status
Awards
Ghana 1 projectGhana
 Description
Description
Outreach through capacity building and awareness creation
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Martin Boakye
 Started
Started
Q3 2012
 Duration
Duration
1.5 years
 Status
Status
Completed
Argentina 4 fellowshipArgentina
 Description
Description
Rehabilitation training for haemophilia
 Focus Areas
Focus Areas
Education, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Juan Manuel Galleguillo
 Started
Started
Q4 2014
 Duration
Duration
1 month
 Status
Status
Completed
China 2 projectChina
 Description
Description
Improve and extend comprehensive haemophilia care in China
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hongli Wang Hongli Wang
 Started
Started
Q4 2009
 Duration
Duration
2 years
 Status
Status
Completed
Dominican Republic 1 projectDominican Republic
 Description
Description
Community Award 2012
 Focus Areas
Focus Areas
Education, Empowerment
 Project type(s)
Project type(s)
PROJECT, AWARD
 Fellow(s)
Fellow(s)
Haydee Benoit de García
 Started
Started
Q2 2012
 Duration
Duration
2 years
 Status
Status
Completed
China 1 fellowshipChina
 Description
Description
Thrombelastography and thrombin generation tests (TGT)
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Baolai Hua Baolai Hua
 Started
Started
Q1 2008
 Duration
Duration
5 months
 Status
Status
Completed
Myanmar 2 fellowshipMyanmar (Burma)
 Description
Description
Fellowship in Haemostasis Laboratory
 Focus Areas
Focus Areas
Diagnosis, Capacity building, Empowerment
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Yan Naing Yan Naing
 Started
Started
2017
 Duration
Duration
6 months
 Status
Status
Completed
Malaysia 3 projectMalaysia
 Description
Description
Identifying and empowering women leaders to activate regional chapters within the Malaysian Haemophilia Society
 Focus Areas
Focus Areas
Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Jameela Sathar
 Started
Started
Q1 2016
 Duration
Duration
1,5 years
 Status
Status
Completed
Ghana 2 projectGhana
 Description
Description
Improve access to haemophilia Care and create awareness at the regional and primary health levels in Ghana
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Martin Boakye, David Ofosu
 Started
Started
Q1 2017
 Duration
Duration
2 years
 Status
Status
Completed
China 6 projectChina
 Description
Description
Decentralisation of multidisciplinary care in four city level haemophilia centres in Sichuan Province
 Focus Areas
Focus Areas
Education, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Xiaojing LI Xiaojing LI
 Started
Started
Q3 2016
 Duration
Duration
3 years
 Status
Status
Completed
Kenya 5 fellowshipKenya
 Description
Description
Specialised training for Mombasa physician
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Tima Nassir Ali Khamis
 Started
Started
Q1 2016
 Duration
Duration
4 months
 Status
Status
Completed
Uruguay 1 projectUruguay
 Description
Description
“Crecer en Salud” – Health improvement
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Ismael Rodríguez
 Started
Started
Q2 2008
 Duration
Duration
1 year
 Status
Status
Completed
Pakistan 2 projectPakistan
 Description
Description
Education of persons with haemophilia and their families in Pakistan
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Tahira Zafar
 Started
Started
Q1 2008
 Duration
Duration
1 year
 Status
Status
Completed
Venezuela 3 (Desafío Orinoco) projectVenezuela
 Description
Description
Desafio Orinoco 2010
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Cesar Garrido
 Started
Started
Q2 2009
 Duration
Duration
1 year
 Status
Status
Completed
China 7 (Tibet) projectChina
 Description
Description
Development of haemophilia care in Tibet Autonomous Region
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Xinsheng Zhang
 Started
Started
Q4 2016
 Duration
Duration
1 year
 Status
Status
Completed
Paraguay 1 projectParaguay
 Description
Description
Consolidating haemophilia care in Paraguay through diagnosis, registry and training of healthcare professionals and patients
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Mayda Tamara Yasychyn
 Started
Started
Q2 2016
 Duration
Duration
1.5 years
 Status
Status
Completed
Uganda 1 projectUganda
 Description
Description
Setting up diagnosis, basic care and education in Uganda
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Agnes Kisakye
 Started
Started
Q3 2015
 Duration
Duration
6 months
 Status
Status
Completed
Serbia 2 projectSerbia
 Description
Description
Empowering the patient community to be active and compliant
 Focus Areas
Focus Areas
Education, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Tatjana Markovi?, Vladimir Ilijin
 Started
Started
Q1 2015
 Duration
Duration
2 years
 Status
Status
Completed
Egypt 1 fellowshipEgypt
 Description
Description
Advanced training in comprehensive care for haemophilia & on complications for patients with haemophilia and inhibitors
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Islam Reda El Ghamry
 Started
Started
Q3 2011
 Duration
Duration
3 months
 Status
Status
Completed
Jordan 2 projectJordan
 Description
Description
National registry for hereditary bleeding disorders
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Abdalla S.S. Awidi
 Started
Started
Q3 2009
 Duration
Duration
1.5 year
 Status
Status
Completed
South Africa 3 (Eastern Cape) projectSouth Africa
 Description
Description
Bringing better haemophilia care closer to the patients and strengthening the community
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Charmaine Oosthuizen
 Started
Started
Q2 2014
 Duration
Duration
2 years
 Status
Status
Completed
India 5 projectIndia
 Description
Description
“BLOSSOM” a Project to bring A Ray of Hope in the life of people with haemophilia
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Suresh Hanagavadi
 Started
Started
Q2 2014
 Duration
Duration
1 year
 Status
Status
Completed
India 4 projectIndia
 Description
Description
Leadership, Education, Information & Transmission (LEAD IT) – Training Programme for Empowerment of Hemophilia Care Givers and Women with bleeding disorders
 Focus Areas
Focus Areas
Education, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Vikash Goel
 Started
Started
Q3 2013
 Duration
Duration
1 year
 Status
Status
Completed
Mexico 3 fellowshipMexico
 Description
Description
Enhancing the lab techniques to improve care offered to patients at Hospital La Raza
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Mario Alberto Portuguez Menese
 Started
Started
Q3 2014
 Duration
Duration
2 week
 Status
Status
Completed
Mauritius 2 projectMauritius
 Description
Description
Improve multidisciplinary care for people with bleeding disorders in Mauritius
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Mohsena Olath-Carramtally, Janaki Sonoo
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Madagascar 1 projectMadagascar
 Description
Description
Empower the haemophilia community and strengthen the multidisciplinary care in Madagascar
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Aimee Olivat Rakoto Alson
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Jordan 1 projectJordan
 Description
Description
Molecular Genetic Analysis in Haemophilia Population
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Abdalla S.S. Awidi
 Started
Started
Q1 2007
 Duration
Duration
2 years
 Status
Status
Completed
Lebanon 1 projectLebanon
 Description
Description
Multidisciplinary Haemophilia Care
 Focus Areas
Focus Areas
Education, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Claudia Djambas Khayat
 Started
Started
Q3 2007
 Duration
Duration
2 years
 Status
Status
Completed
Madagascar 1 fellowshipMadagascar
 Description
Description
treatment centre in Macedonia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Rasamoelina Tsikihenintsoa
 Started
Started
Q1 2013
 Duration
Duration
1 month
 Status
Status
Completed
Sri Lanka 2 projectSri Lanka
 Description
Description
Improve diagnosis and multidisciplinary care across Sri Lanka
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Chandana Weerasekara, Ganga Wijewardhana
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Brazil 4 projectBrazil
 Description
Description
Strenthening the care and education network for haemophilia in the sate of Pará in Brazil
 Focus Areas
Focus Areas
Education, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Christianne Maria Oliveira Costa
 Started
Started
Q3 2015
 Duration
Duration
2.5 years
 Status
Status
Completed
China 1 projectChina
 Description
Description
Haemophilia Education, Screening and Registration
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Hongli Wang, Man-Chiu Poon Man-Chiu Poon
 Started
Started
Q4 2006
 Duration
Duration
2 years
 Status
Status
Completed
Mali 1 fellowshipMali
 Description
Description
Building capacity and the Haemophilia team
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Souleymane Soumare
 Started
Started
Q1 2015
 Duration
Duration
2 months
 Status
Status
Completed
Dominican Republic 1 fellowshipDominican Republic
 Description
Description
Training in optimal management of haemophilia and allied bleeding disorders as well as diagnostic methods
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Betty María Pérez Góme
 Started
Started
Q2 2012
 Duration
Duration
4 months
 Status
Status
Completed
Uzbekistan 4 projectUzbekistan
 Description
Description
Improving the quality of life of haemophilia patients by establishing rehabilitation care in Uzbekistan
 Focus Areas
Focus Areas
Education, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Aziza Makhmudova
 Started
Started
Q1 2016
 Duration
Duration
1.5 years
 Status
Status
Completed
Community Award 2010South Africa
 Description
Description
Community Award 2010
 Focus Areas
Focus Areas
Education
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Anne-Louise Cruickshank
 Started
Started
Q1 2011
 Duration
Duration
1 year
 Status
Status
Awards
Thailand 2 projectThailand
 Description
Description
Improving MSK care in Thailand – through education, outcome measurement and the establishment of two training centres in Bangkok and Chiang Mai
 Focus Areas
Focus Areas
Education, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Rungrote Natesirinilkul, Ampaiwan Chuansumrit
 Started
Started
Q1 2016
 Duration
Duration
3 years
 Status
Status
Completed
Mexico 2 (Nuevo León) projectMexico
 Description
Description
Establishing a regional multidisciplinary haemophilia healthcare centre in Monterrey, Mexico
 Focus Areas
Focus Areas
Education, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Laura Villarreal Martínez
 Started
Started
Q4 2013
 Duration
Duration
2 years
 Status
Status
Awards
Kenya 4 fellowshipKenya
 Description
Description
First haemophilia nurse in Mombasa
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Betty M. Mwasaru Mbogho
 Started
Started
Q1 2016
 Duration
Duration
3 months
 Status
Status
Completed
Cambodia 1 projectCambodia
 Description
Description
Raising awareness, support, diagnosis and treatment for people with haemophilia living in Cambodia
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Sithan Kong, Chean Sophal
 Started
Started
Q4 2014
 Duration
Duration
2.5 years
 Status
Status
Completed
Brazil 1 projectBrazil
 Description
Description
PRO-HOPE: Improvement of Haemophilia Organisation and Patients Education
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Sylvia Thomas
 Started
Started
Q3 2006
 Duration
Duration
3 years
 Status
Status
Completed
Mali 1 projectMali
 Description
Description
Improve haemophilia care in Mali by capacity building and awareness creation
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Yacouba Diallo
 Started
Started
Q2 2016
 Duration
Duration
2 years
 Status
Status
Completed
Kenya 1 projectKenya
 Description
Description
Kenya Comprehensive CARE Project – Support sharing and spreading of knowledge for health care professionals and facilitate access to care in Western Kenya
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Chite Asirwa
 Started
Started
Q2 2012
 Duration
Duration
2 years
 Status
Status
Completed
Sudan 1 fellowshipSudan
 Description
Description
Providing physiotherapy for haemophilia patients in Sudan
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Omer Khatem
 Started
Started
Q1 2015
 Duration
Duration
2 months
 Status
Status
Cancelled
China 9 (Shanxi) projectChina
 Description
Description
Improving haemophilia care in Shanxi province
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Linhua Yang Linhua Yang
 Started
Started
Q1 2012
 Duration
Duration
1 year
 Status
Status
Completed
Iraq 2 fellowshipIraq
 Description
Description
Obstetric and Gynaecological problems and their management in women with bleeding disorders including prenatal diagnosis.
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Brwa Ali Hussein
 Started
Started
Q4 2010
 Duration
Duration
1 year
 Status
Status
Completed
Pakistan 4 projectPakistan
 Description
Description
Capacity Building for improvement of haemophilia care on a national level
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Tahir Shamsi
 Started
Started
Q3 2010
 Duration
Duration
2 years
 Status
Status
Completed
India 2 fellowshipIndia
 Description
Description
Comprehensive haemophilia management
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Sukanya Gogoi
 Started
Started
Q1 2013
 Duration
Duration
6 months
 Status
Status
Completed
Lithuania 2 fellowshipLithuania
 Description
Description
Management of PwH before, during and after orthopaedic interventions
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Lina Kryhauskaite
 Started
Started
Q4 2014
 Duration
Duration
3 weeks
 Status
Status
Completed
Georgia 1 – GE1Georgia
 Description
Description
Training in optimal management of haemophilia and allied bleeding disorders as well as diagnostic methods
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Levani Makhaldani
 Started
Started
Q1 2012
 Duration
Duration
10 months
 Status
Status
Completed
Myanmar 3 – MM3Myanmar (Burma)
 Description
Description
Strengthening haemophilia care and diagnosis in Northern Myanmar
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Moe Hein, Myo Aung
 Started
Started
Q2 2018
 Duration
Duration
3 years
 Status
Status
Execution
China 4 projectChina
 Description
Description
Identify and improve five city level comprehensive haemophilia centres in Shandong province
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Xinsheng Zhang Xinsheng Zhang
 Started
Started
Q3 2014
 Duration
Duration
2.5 years
 Status
Status
Awards
Romania 2 projectRomania
 Description
Description
Empowering the haemophilia patient community in Romania
 Focus Areas
Focus Areas
Education, Advocacy, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Valentin Brabete
 Started
Started
Q2 2018
 Duration
Duration
1,5 years
 Status
Status
Completed
Lithuania 2 projectLithuania
 Description
Description
Haemophilia physiotherapy network: Implementation of physiotherapy care in North-Eastern Europe
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Egidijus Šliaužys
 Started
Started
Q2 2013
 Duration
Duration
2 years
 Status
Status
Completed
Latvia 1 projectLatvia
 Description
Description
Optimise care set-up through outreach educational and awareness programme for patients and HCPs – focusing on nurses
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Sandra Lejniece
 Started
Started
Q1 2012
 Duration
Duration
2 years
 Status
Status
Completed
Panama 1 projectPanama
 Description
Description
LATIN – Latin American Haemophilia Network
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Belgica Moreno
 Started
Started
Q3 2008
 Duration
Duration
1 year
 Status
Status
Completed
Bolivia 1 projectBolivia
 Description
Description
Setting up diagnosis, basic care and education in Bolivia
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Victor Manuel Ponce Rojas
 Started
Started
Q2 2014
 Duration
Duration
1 year
 Status
Status
Completed
China 3 fellowshipChina
 Description
Description
Improving haemophilia care from a nursing perspective
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Kuixing Li Kuixing Li
 Started
Started
Q2 2012
 Duration
Duration
2 years
 Status
Status
Completed
India – Community Award 2015India
 Description
Description
Community Award 2015
 Focus Areas
Focus Areas
Empowerment
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Cheryl Nineff D’Ambrosio
 Started
Started
Q4 2015
 Duration
Duration
6 months
 Status
Status
Awards
Central America, Caribbean and Venezuela 1 projectDominican Republic
 Description
Description
Empowering and developing future community leaders to advocate and create awareness in their countries and in the region of Central America, the Caribbean and Venezuela
 Focus Areas
Focus Areas
Education, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Fendi Valez Bisono
 Started
Started
Q2 2014
 Duration
Duration
1.5 years
 Status
Status
Completed
South Africa 1 (Kwazulu Natal) projectSouth Africa
 Description
Description
Road to Haemophilia Health in KwaZulu Natal, South Africa KwaZulu Natal, Republic of South Africa (ZA)
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Rajendra Thejpal
 Started
Started
Q2 2009
 Duration
Duration
2 years
 Status
Status
Completed
Argentina 3 (Jujuy) projectArgentina
 Description
Description
Outreach to patients with haemophilia in the province of Jujuy
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Susana Gastaldo
 Started
Started
Q4 2016
 Duration
Duration
1 year
 Status
Status
Completed
Uganda 1 fellowshipUganda
 Description
Description
Management of haemophilia and rare bleeding disorders
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Hilda Tumwebaze
 Started
Started
Q1 2016
 Duration
Duration
3 months
 Status
Status
Completed
Myanmar 2 projectMyanmar (Burma)
 Description
Description
Empowering of patients and capacity building of HCP by focusing on physiotherapy in Mandalay
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Myo Aung, Moe Hein
 Started
Started
Q4 2016
 Duration
Duration
6 months
 Status
Status
Completed
Iraq 1 fellowshipIraq
 Description
Description
Obstetric and Gynaecological problems and their management in women with bleeding disorders including prenatal diagnosis.
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Osama Naji
 Started
Started
2010
 Duration
Duration
cancelled
 Status
Status
Cancelled
Chile 3 fellowshipChile
 Description
Description
Specialise in the use of ultrasonography diagnosis
 Focus Areas
Focus Areas
Diagnosis
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Juan Cristobal Morales
 Started
Started
Q2 2015
 Duration
Duration
2 weeks
 Status
Status
Completed
Cambodia 1 fellowshipCambodia
 Description
Description
Improve Blood Component Preparation techniques at the National Blood Transfusion Center (NBTC)
 Focus Areas
Focus Areas
Diagnosis, Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Sem Samey
 Started
Started
Q1 2012
 Duration
Duration
12 weeks
 Status
Status
Completed
Vietnam 3 projectVietnam
 Description
Description
Joint effort continuing to expand the haemophilia network and basic multidisciplinary care across Vietnam
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Mai Nguyen Thi, Tr?n Th?o
 Started
Started
Q1 2019
 Duration
Duration
3 years
 Status
Status
Cancelled
India 11 projectIndia
 Description
Description
Leadership and Educational camp for young people with haemophilia and allied bleeding disorders in India
 Focus Areas
Focus Areas
Education, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT, FELLOWSHIP
 Fellow(s)
Fellow(s)
Vikash Goyal
 Started
Started
Q2 2010
 Duration
Duration
1 year
 Status
Status
Completed
Serbia 1 projectSerbia
 Description
Description
Spread knowledge on haemophilia – to healthcare professionals, patients and general public
 Focus Areas
Focus Areas
Education, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Dragana Janic
 Started
Started
Q2 2011
 Duration
Duration
2 years
 Status
Status
Completed
Peru 3 projectPeru
 Description
Description
Strengthen and expand network and structure of haemophilia care across sectors in Peru
 Focus Areas
Focus Areas
Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Juan Navarro Cabrera, Nancy Loayza
 Started
Started
Q1 2017
 Duration
Duration
2 years
 Status
Status
Completed
Chile 4 fellowshipChile
 Description
Description
MSK care to achieve joint function in people with haemophilia
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Antonio Enrique Ibarra
 Started
Started
Q2 2016
 Duration
Duration
1 month
 Status
Status
Completed
Azerbaijan 2 projectAzerbaijan
 Description
Description
Establish haemophilia care in Nakhchivan region and improve physiotherapy care across Azerbaijan
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Gulnara Huseynova
 Started
Started
Q3 2017
 Duration
Duration
2 years
 Status
Status
Completed
China 4 projectChina
 Description
Description
Identify and improve five city level comprehensive haemophilia centres in Shandong province
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Xinsheng Zhang Xinsheng Zhang
 Started
Started
Q3 2014
 Duration
Duration
2.5 years
 Status
Status
Completed
Latvia 2 projectLatvia
 Description
Description
Set up of a web-based bleeding disorders registry in Latvia
 Focus Areas
Focus Areas
Registry
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Baiba Ziemele
 Started
Started
Q2 2016
 Duration
Duration
1 year
 Status
Status
Cancelled
Egypt 1 projectEgypt
 Description
Description
Empowering Egyptian haemophilia community through medical and educational caravans across the country
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Magdy El Ekiaby, Isis Morad
 Started
Started
Q2 2013
 Duration
Duration
3 years
 Status
Status
Completed
Sri Lanka 1 fellowshipSri Lanka
 Description
Description
Diagnosis and management of patients with haemophilia and other related coagulation disorders
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
R.D.H. Ramanayake
 Started
Started
Q2 2010
 Duration
Duration
3 months
 Status
Status
Completed
Colombia 2 projectColombia
 Description
Description
Knowledge and skills for better lives
 Focus Areas
Focus Areas
Education, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Gina Patricia Bolaño Suarez, Andrea Raquel Lisman Molina
 Started
Started
Q1 2018
 Duration
Duration
2 years
 Status
Status
Completed
Chile 2 fellowshipChile
 Description
Description
Specialise in the use of ultrasonography diagnosis
 Focus Areas
Focus Areas
Diagnosis
 Project type(s)
Project type(s)
FELLOWSHIP
 Fellow(s)
Fellow(s)
Leonardo Rodríguez
 Started
Started
Q2 2015
 Duration
Duration
2 weeks
 Status
Status
Completed
China 5 projectChina
 Description
Description
Set up and consolidate five comprehensive treatment centres for haemophilia and von Willebrand disease in Jiangsu Province
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Ziqiang YU Ziqiang YU
 Started
Started
Q3 2016
 Duration
Duration
3 years
 Status
Status
Completed
Kenya 3 projectKenya
 Description
Description
Enhancement of capacity for comprehensive haemophilia management
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Kibet Shikuku, Festus Njuguna
 Started
Started
Q2 2015
 Duration
Duration
2 years
 Status
Status
Completed
Dominican Republic 1 projectDominican Republic
 Description
Description
Quisqueya Project: National diagnosis, registry and educational programme
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Haydee Benoit de García, Haydee Benoit de García
 Started
Started
 Duration
Duration
1.5 years
 Status
Status
Completed
Cambodia 2 projectCambodia
 Description
Description
Establish multidisciplinary care and strengthen awareness in Cambodia
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Sokpanha Sem, Chanthearithy Run
 Started
Started
Q1 2018
 Duration
Duration
3 years
 Status
Status
Cancelled
El Salvador 1 projectEl Salvador
 Description
Description
Diagnosis and educational programme in El Salvador
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Gilda Lorena Martínez de Mira, Ana Gladis Mancia de Reyes
 Started
Started
Q1 2013
 Duration
Duration
1.5 years
 Status
Status
Completed
Dominican Republic 2 projectDominican Republic
 Description
Description
Expanding diagnosis and registry of haemophilia in Dominican Republic
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Rosa Nieves, Betty Perez
 Started
Started
Q1 2019
 Duration
Duration
2 years
 Status
Status
Completed
Macedonia 1 projectMacedonia (FYROM)
 Description
Description
Capacity Building in Haemophilia Care
 Focus Areas
Focus Areas
Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Sofijanka Glamocanin
 Started
Started
Q1 2007
 Duration
Duration
1 year
 Status
Status
Awards
India 13 projectIndia
 Description
Description
Strengthen and standardise the National Referral and Training Centres in India
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Tulika Seth, Shashikant Apte
 Started
Started
Q1 2020
 Duration
Duration
2 years
 Status
Status
Completed
Bolivia 2 projectBolivia
 Description
Description
Developing multidisciplinary care in Bolivia
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
José Luis Quino Caballero, Suzana Loayza Medina
 Started
Started
Q1 2020
 Duration
Duration
2.5 years
 Status
Status
Execution
Argentina 5 projectArgentina
 Description
Description
School for everyone
 Focus Areas
Focus Areas
Education, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Maria del Carmen Jodar, Gabriela Susana Sliba
 Started
Started
Q1 2020
 Duration
Duration
2 years
 Status
Status
Completed
Mozambique 1 projectMozambique
 Description
Description
Creating haemophilia awareness in Mozambique
 Focus Areas
Focus Areas
Education, Advocacy, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Nelson Damiao, Maria Patricia Teles Martins Da Silva
 Started
Started
Q1 2020
 Duration
Duration
2 years
 Status
Status
Completed
Lesotho 1 projectLesotho
 Description
Description
Establish basic haemophilia care in Lesotho
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Moeketsi Mootisa, Ret’selisitsoe Mahlaha
 Started
Started
Q1 2020
 Duration
Duration
2 years
 Status
Status
Completed
Zambia 2 projectZambia
 Description
Description
Enhance haemophilia care in Zambia through improved grass-root awareness, diagnosis and care
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Chilufya Pikiti
 Started
Started
Q1 2020
 Duration
Duration
2 years
 Status
Status
Completed
Nigeria 3 projectNigeria
 Description
Description
Improve haemophilia care in Nigeria through awareness creation, diagnosis and empowerment
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Megan Adediran
 Started
Started
Q1 2020
 Duration
Duration
1 year
 Status
Status
Completed
Mexico 8, San Luis Potosí projectMexico
 Description
Description
Establishing haemophilia multidisciplinary care in San Luis Potosí
 Focus Areas
Focus Areas
Education, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Lourdes Cecilia Correa González
 Started
Started
Q1 2020
 Duration
Duration
2 years
 Status
Status
Execution
Thailand 5 projectThailand
 Description
Description
Strengthen haemophilia awareness and care in Southern Thailand
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Natsaruth Songthawee
 Started
Started
Q1 2020
 Duration
Duration
2 years
 Status
Status
Execution
Angola 1 projectAngola
 Description
Description
Developing haemophilia awareness in Angola
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Kaunda da Gama, Luis Bernardino
 Started
Started
Q3 2019
 Duration
Duration
2 years
 Status
Status
Completed
Egypt 3 projectEgypt
 Description
Description
Decentralisation of care across Egypt
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Magda Rakha
 Started
Started
Q2 2018
 Duration
Duration
2.5 years
 Status
Status
Completed
India 12 projectIndia
 Description
Description
Unify Hemophilia Federation India
 Focus Areas
Focus Areas
Education, Advocacy, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Vikash Goyal, Mukesh Garodia
 Started
Started
Q2 2019
 Duration
Duration
1 year
 Status
Status
Completed
Senegal 1 projectSenegal
 Description
Description
A better life for Senegalese with haemophilia
 Focus Areas
Focus Areas
Education, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Anna Seck, Abdoulaye Loum
 Started
Started
Q3 2019
 Duration
Duration
2.5 years
 Status
Status
Completed
Uzbekistan 5 projectUzbekistan
 Description
Description
Empower the haemophilia community and strengthen multidisciplinary care in Uzbekistan
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Aziza Makhmudova, Lilya Zhinikova
 Started
Started
Q3 2019
 Duration
Duration
3 years
 Status
Status
Completed
Georgia 2 projectGeorgia
 Description
Description
Strengthen haemophilia care in Western Georgia and establish national youth groups
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Levani Makhaldiani, Romanoz Khomasuridze
 Started
Started
Q4 2020
 Duration
Duration
2 years
 Status
Status
Completed
Peru 4 projectPeru
 Description
Description
Leaders for institutional progress
 Focus Areas
Focus Areas
Education, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Guillermo Pareja, Gloria Chumpitaz
 Started
Started
Q3 2020
 Duration
Duration
2.5 years
 Status
Status
Execution
Myanmar 4 projectMyanmar (Burma)
 Description
Description
Strengthening haemophilia care and diagnosis in Southern Myanmar
 Focus Areas
Focus Areas
Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Aye Aye Khaing
 Started
Started
Q4 2020
 Duration
Duration
3 years
 Status
Status
Cancelled
Ghana 3 projectGhana
 Description
Description
Strengthen advocacy capacity and haemophilia care in Ghana
 Focus Areas
Focus Areas
Education, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Martin Boakye, Limmy Sarpong
 Started
Started
Q2 2020
 Duration
Duration
2 years
 Status
Status
Completed
Ivory Coast 1 ProjectCôte d’Ivoire
 Description
Description
Increasing haemophilia awareness and diagnosis in Ivory Coast
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
N’dri Koffi, Ibrahima Sanogo
 Started
Started
Q3 2020
 Duration
Duration
3 years
 Status
Status
Closing
Romania 3 projectRomania
 Description
Description
Strengthen haemophilia care in the north and establish a national registry in Romania
 Focus Areas
Focus Areas
Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Ciprian Tomuleasa
 Started
Started
Q3 2020
 Duration
Duration
1 year
 Status
Status
Completed
Gambia 1 projectThe Gambia
 Description
Description
Establishing basic care in Gambia
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Vandy Jayah, Salifi Gaye
 Started
Started
Q3 2020
 Duration
Duration
2 years
 Status
Status
Completed
Malaysia 4 projectMalaysia
 Description
Description
Strengthen haemophilia care in Malaysia
 Focus Areas
Focus Areas
Education, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Jameela Sathar
 Started
Started
Q1 2020
 Duration
Duration
1 year
 Status
Status
Completed
Mali 2 projectMali
 Description
Description
Improving knowledge and support to haemophilia at national level
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Yacouba Diallo
 Started
Started
Q1 2019
 Duration
Duration
3 years
 Status
Status
Completed
Kenya and Tanzania joint projectKenya
 Description
Description
Accelerating access to blood disorders care in Kenya and Tanzania
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Dr Kibet Shikuku, Dr Stella Rwezaula
 Started
Started
Q3 2020
 Duration
Duration
3 years
 Status
Status
Completed
Democratic Republic of Congo 1 projectDemocratic Republic of the Congo
 Description
Description
Blood disorders consortium for health promotion in Democratic Republic of Congo
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Jean Lambert Gini Ehungu, Léon Tshilolo
 Started
Started
Q1 2021
 Duration
Duration
2 years
 Status
Status
Completed
China 11China
 Description
Description
Strengthen haemophilia care in Shandong province and Tibet autonomous region
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Xinsheng Zhang, Yunhai Fang
 Started
Started
Q1 2021
 Duration
Duration
2 years
 Status
Status
Completed
Laos 1 projectLaos
 Description
Description
Increase awareness about haemophilia and establish basic care in Laos
 Focus Areas
Focus Areas
Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Banchongchith Vongdala, Amphayvanh MANIVONG
 Started
Started
Q4 2021
 Duration
Duration
2 years
 Status
Status
Cancelled
Thailand 6 projectThailand
 Description
Description
Strengthen haemophilia care in Northeast Thailand
 Focus Areas
Focus Areas
Education, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Patcharee Komvilaisak
 Started
Started
Q3 2021
 Duration
Duration
2 years
 Status
Status
Execution
South Africa 5 projectSouth Africa
 Description
Description
Raising the standard of care and promoting specialities in haemophilia care
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Bradley Rayner, Julie Malan
 Started
Started
Q3 2021
 Duration
Duration
2 years
 Status
Status
Execution
Azerbaijan 3 projectAzerbaijan
 Description
Description
Creation of multidisciplinary care teams for people with haemophilia living in the regions of Azerbaijan
 Focus Areas
Focus Areas
Education, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Gulnara Huseynova
 Started
Started
Q4 2021
 Duration
Duration
3 years
 Status
Status
Execution
Vietnam 4 projectVietnam
 Description
Description
Joint effort to expand the national network of haemophilia care in Vietnam (phase 2)
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Khanh Bach Quoc, Thi Mai Nguyen
 Started
Started
Q2 2022
 Duration
Duration
2 years
 Status
Status
Cancelled
Global 6 projectSwitzerland
 Description
Description
Fostering advocacy to influence haemophilia care provision: a pilot project in six countries
 Focus Areas
Focus Areas
Advocacy
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Louise Annaud
 Started
Started
Q3 2021
 Duration
Duration
1 year
 Status
Status
Execution
Global 7 projectSwitzerland
 Description
Description
Virtual leadership programme for haemophilia practitioners
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Ahmed Razzak
 Started
Started
Q1 2022
 Duration
Duration
1.5 years
 Status
Status
Execution
Romania 4 projectRomania
 Description
Description
Strengthen haemophilia care in North-Eastern Romania and improve dentistry care across the country
 Focus Areas
Focus Areas
Diagnosis, Registry, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Ciprian Tomuleasa
 Started
Started
Q3 2022
 Duration
Duration
2 years
 Status
Status
Execution
Argentina 6 projectArgentina
 Description
Description
Better joints and quality of life for people with haemophilia in North-Western Argentina
 Focus Areas
Focus Areas
Education, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Claudia Josefina Castro, María Belén Nieva
 Started
Started
Q3 2022
 Duration
Duration
2 years
 Status
Status
Execution
Madagascar 2 projectMadagascar
 Description
Description
Improving access to care and treatment for people with haemophilia in Madagascar
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Mino Fitahiana Danielle, Aimee Olivat Rakoto Alson
 Started
Started
Q3 2022
 Duration
Duration
2.5 years
 Status
Status
Execution
Jamaica 2 projectJamaica
 Description
Description
Developing a country wide care network for bleeding disorders in Jamaica
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Gilian Wharfe, Magdalene Nwokocha
 Started
Started
Q3 2022
 Duration
Duration
3 years
 Status
Status
Execution
Sierra Leone 1 projectSierra Leone
 Description
Description
Establish basic haemophilia care in Sierra Leone
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Harry Mayeah Koroma
 Started
Started
Q3 2022
 Duration
Duration
2.5
 Status
Status
Execution
Zimbabwe 1Zimbabwe
 Description
Description
Establishment of basic haemophilia care in Zimbabwe
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Elliot Chintembo, Moses Chatambudza
 Started
Started
Q3 2022
 Duration
Duration
2 years
 Status
Status
Execution
India 7 projectIndia
 Description
Description
Preventing and Decreasing Musculoskeletal Morbidities among People with Hemophilia in Southern India
 Focus Areas
Focus Areas
Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Pamela Narayan
 Started
Started
Q3 2015
 Duration
Duration
3 years
 Status
Status
Awards
Romania 3 projectRomania
 Description
Description
Strengthen haemophilia care in the north and establish a national registry in Romania
 Focus Areas
Focus Areas
Diagnosis, Registry, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Ciprian Tomuleasa
 Started
Started
Q3 2020
 Duration
Duration
1 year
 Status
Status
Awards
Chile 3 projectChile
 Description
Description
Consolidating care and treatment for haemophilia and allied bleeding disorders across Chile
 Focus Areas
Focus Areas
Diagnosis, Registry, Capacity building
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Veronica Soto Arellano
 Started
Started
Q4 2017
 Duration
Duration
1.5 years
 Status
Status
Awards
South Africa 4 projectSouth Africa
 Description
Description
Strengthen South African Haemophilia Federation capacity through youth development and empowerment of health care providers
 Focus Areas
Focus Areas
Education, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Johan Potgieter
 Started
Started
Q2 2017
 Duration
Duration
3 years
 Status
Status
Awards
Republic of Congo 1Republic of the Congo
 Description
Description
Building diagnosis and care capacity for people with haemophilia in Congo
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
ELIRA DOKEKIAS Alexis
 Started
Started
Q1 2022
 Duration
Duration
2 years
 Status
Status
Execution
Dominican Republic Community Award 2012Dominican Republic
 Description
Description
Community Award 2012
 Focus Areas
Focus Areas
Empowerment
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Haydée Benoit de García
 Started
Started
Q2 2012
 Duration
Duration
2 years
 Status
Status
Awards
Panama Community Award 2014Panama
 Description
Description
Community Award 2014
 Focus Areas
Focus Areas
Capacity building
 Project type(s)
Project type(s)
AWARD
 Fellow(s)
Fellow(s)
Dr Belgica Moreno
 Started
Started
2014
 Duration
Duration
1 year
 Status
Status
Awards
Gambia 2 projectThe Gambia
 Description
Description
Strengthen haemophilia in the capital and expand capacity and awareness in the rural areas of the Gambia
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Vandy Jayah, Salifu Gaye
 Started
Started
Q1 2023
 Duration
Duration
2 years
 Status
Status
Execution
Liberia 1 projectLiberia
 Description
Description
Establish basic care in Liberia
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Prince Kwenah
 Started
Started
Q1 2023
 Duration
Duration
2 years
 Status
Status
Execution
Panama 3 projectPanama
 Description
Description
Strengthen multidisciplinary care teams and paediatric-adult care transition in Panama
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Luz Villalaz, Alaisa de Melgar
 Started
Started
Q4 2022
 Duration
Duration
3 years
 Status
Status
Execution
Guinea 1 projectGuinea
 Description
Description
Increase haemophilia awareness and diagnosis in Guinea
 Focus Areas
Focus Areas
Diagnosis, Registry, Advocacy, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Mamady Diakité, Abdoulaye Camara
 Started
Started
Q1 2023
 Duration
Duration
2 years
 Status
Status
Execution
Botswana 2 projectBotswana
 Description
Description
Decentralisation of care and diagnosis in two regions of Botswana
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Baraedi Winnie Mantswe, Andries Gontshwanetse
 Started
Started
Q3 2023
 Duration
Duration
2 years
 Status
Status
Execution
Guatemala 2 projectGuatemala
 Description
Description
Establishing a national haemophilia registry and multidisciplinary care teams in Guatemala
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Pedro Alvarado, Josué Bautista
 Started
Started
Q3 2023
 Duration
Duration
2.5 years
 Status
Status
Formalisation
Indonesia 3 projectIndonesia
 Description
Description
Decentralise basic haemophilia care and diagnosis to 4 regions in Indonesia
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Novie Chozie, Fitri Primacakti
 Started
Started
Q3 2023
 Duration
Duration
2 years
 Status
Status
Execution
Mali 3 projectMali
 Description
Description
Decentralise haemophilia diagnosis and strengthen multidisciplinary care in Mali
 Focus Areas
Focus Areas
Education, Diagnosis, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
DIALLO Yacouba
 Started
Started
Q2 2023
 Duration
Duration
2 years
 Status
Status
Execution
Zambia 3 projectZambia
 Description
Description
Strengthen awareness and care of haemophilia and sickle cell disease in Zambia
 Focus Areas
Focus Areas
Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Chilufya Pikiti
 Started
Started
Q3 2023
 Duration
Duration
3 years
 Status
Status
Execution
Nigeria 4 projectNigeria
 Description
Description
Strengthening comprehensive care in 7 haemophilia treatment centres across Nigeria
 Focus Areas
Focus Areas
Diagnosis, Capacity building, Awareness
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Omolade Awodu
 Started
Started
Q3 2023
 Duration
Duration
3 years
 Status
Status
Execution
India 14 projectIndia
 Description
Description
Accelerate access to diagnosis and care in India
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Prem Roop Alva, Bipin Kulkarni
 Started
Started
Q3 2023
 Duration
Duration
2 years
 Status
Status
Execution
Senegal 2 projectSenegal
 Description
Description
Expand haemophilia comprehensive care in Senegal and regional care networks in West Africa
 Focus Areas
Focus Areas
Education, Diagnosis, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Abdoulaye Loum, Anna Seck
 Started
Started
Q4 2023
 Duration
Duration
2 years
 Status
Status
Execution
Paraguay 2 projectParaguay
 Description
Description
Strengthen haemophilia care structures and network in Paraguay
 Focus Areas
Focus Areas
Education, Diagnosis, Registry, Advocacy, Capacity building, Awareness, Empowerment
 Project type(s)
Project type(s)
PROJECT
 Fellow(s)
Fellow(s)
Carolina Molas, Alejandro Cardozo
 Started
Started
Q1 2024
 Duration
Duration
3 years
 Status
Status
Formalisation

Project highlights

  •  

    Strengthen South African Haemophilia Federation

    Find out more
  •  

    Kenya-Tanzania joint project: Official launch event in Nairobi

    Find out more
  •  

    Kenya-Tanzania joint project launch

    Find out more
  •  

    Kenya and Tanzania: A year of advancing care for haemophilia and sickle cell disease

    Find out more
  •  

    Giving a voice to haemophilia carriers in Latin America

    Find out more

Your project ideas can grow into projects which will make a lasting difference for people with haemophilia and allied disorders in your country!

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