NNHF Grantee Perception Report 2024: Building on our progress

Reflecting on our progress since 2022, we’ve asked ourselves: How have we improved? What areas are we excelling in, and where can we further extend our impact to benefit more people with haemophilia and allied disorders?

To assess our performance and make informed improvements, we commissioned our first Grantee Perception Report in 2022, prepared by the Center for Effective Philanthropy (CEP). CEP, a trusted partner to foundations like ours, provides valuable insights by gathering feedback from our grantees, benchmarking our results against a decade-long dataset of more than 350 foundations, and comparing them to our previous results.   Two years later we are happy to share the second report which confirms our steady growth and our commitment to ‘Impacting care. Together”.

Rising stronger, shaping communities

With a high response rate of 87%, the 2024 report reveals a marked improvement across nearly all areas compared to 2022. Highlights from the 2024 report reflect grantees’ perceptions of NNHF’s strong impact on local communities, its transparent communication, and its leadership in expanding haemophilia care and increasing awareness.   NNHF is rated above the typical funder in CEP’s dataset for its impact on grantees’ local communities and ranksnear the top for its transparency with grantees. One grantee noted, “NNHF is a significant influencer in the realm of bleeding disorders, making a profound impact on a global scale. This partnership (…) represents a united effort toward a common objective, enhancing our collective capacity to tackle challenges in our field. Their contributions extend well beyond financial aid, encompassing valuable expertise, resources, and a shared commitment to improving outcomes for those affected by bleeding disorders.”

This sentiment underscores the deep collaborative impact that goes beyond financial support to include resources, expertise and a shared commitment to impacting care. This dedication has contributed to NNHF being the second-highest rated funder in the CEP’s comparative dataset for the extent to which it advances knowledge in grantees’ fields, a significant improvement since 2022.    NNHF also ranks in the top 10 percent of CEP’s dataset, for its effect on public policy within grantee’s fields. Notably, 85% of grantees strongly agree that the Foundation’s support has created a lasting impact for people living with bleeding disorders in their countries and has raised visibility of haemophilia and allied disorders.   NNHF’s clear communication about its goals and strategy, as well the consistency of its communications resources places it in the top two percent of funders in CEP’s dataset. Grantees also expressed appreciation for the strong relationship they have with NNHF, as well as for the flexibility, responsiveness and vital support provided by the Foundation.

Embracing feedback, nurturing collaboration

While we are pleased with the positive feedback, we also value the insights into where we can improve. Key areas include:

• Gaining deeper insights into grantees’ organisational and local contexts.
• Streamlining project management processes
• Strengthening funder-grantee relationships through more visits and in-person engagement

One quarter of all grantee suggestions expressed a desire for more frequent touchpoints with the NNHF team, including visiting “project sites every year”.   Given the diversity of projects funded across the world, we embrace the opportunity to build a deeper understanding of our grantees’ local context and realities. As a socially responsible organisation, we are committed to understanding our grantees’ local contexts while also balancing our commitment to minimising our environmental impact.  While we aim to increase touchpoints and visits, we are mindful or maintaining sustainable practices.   The management team will also work closely with its partners in the country to assess how processes could be streamlined to make the project management less time-intensive, while at the same time ensuring compliance and continuing to offer non-monetary support and learning opportunities in areas such as project management, communications and advocacy, and budget management.   Finally, while grantees expressed a desire for more flexibility in allowed funding expenses, the NNHF remains committed to supporting sustainable solutions. This means we are unable to fund health commodities such as reagents or treatment, as they do not align with our mission to build sustainability in haemophilia and blood disorders care. Additionally, personnel costs for project management are limited to the 5% fee, which was added to the project grant as of October 2022, to help cover costs such as accounting, logistics and administrative tasks.   We sincerely appreciate the invaluable feedback from our grantees and look forward to building on our successes and enhancing our shared impact.  We welcome ongoing feedback at [email protected]