NNHF Healthcare system framework

We have created a structure for analyzing and assessing haemophilia and haemoglobinopathies care in specific regions of the world.

NNHF Healthcare framework

Inspired by the healthcare system building blocks of the WHO Health Systems Framework, NNHF has developed a framework to analyse and evaluate the haemophilia and haemoglobinopathies healthcare situation within a country or region. This framework helps our partners and us identify the needs and create a tailored strategic plan to address those needs to improve access to care.

This is an overview of the NNHF Healthcare Framework through which we will guide you in the project application process.

Service delivery

  • Infrastructure, care set-up
  • Organisation of care and referral system
  • Treatment guidelines
  • Patient flow

Health workforce

  • Responsiveness and interest of HCPs
  • Multidisciplinary care
  • Knowledge and education of HCPs
  • Training opportunities for HCPs
  • Professional associations/committees
  • HCP network

Diagnosis and technology

  • Number of laboratories and distribution
  • Types of tests available
  • Patient flow for diagnosis
  • Diagnosis quality control (internal/external)

Treatment

  • Treatment regimens
  • Treatment options and safety
  • Supply and storage
  • Adherence to treatment
  • IU/Capita for haemophilia

Registry and epidemiological information

  • Registry format and content
  • Registry ownership and recognition
  • Data safety and quality
  • Patient ID
  • Numbers of people with haemophilia and haemoglobinopathies

Governance and leadership

  • Healthcare system type
  • Policy and legislation
  • Government support
  • Inclusion in health agenda and/or health policies
  • Decision making

Finance

  • Resources allocation
  • Reimbursement levels
  • Percentage of “out-of-pocket-payment”

Patients and community

  • Patient organisation set-up, sustainability and leadership
  • Strategic planning
  • Patient knowledge and access to information
  • Level of patient empowerment
  • Awareness and advocacy capacity and strategic planning
  • Collaboration between key stakeholders

Do you want to apply for a project?

We fund and support developing countries in enhancing care access for haemophilia and haemoglobinopathies.

Learn more