NNHF Healthcare framework

We have created a structure for analyzing and assessing bleeding disorder care in specific regions of the world.

NNHF Healthcare framework

Inspired by the health system building blocks of the WHO Health Systems Framework, NNHF has developed a framework to analyse and evaluate care for bleeding disorders in a specific country or region.

This framework helps NNHF and its partners identify a region’s needs and create a tailored strategic plan to address those needs and improve access to care.

NNHF football game

At the occasion of the World Cup in 2018, the NNHF launched the NNHF football game. This game allows members of the global bleeding disorders community to analyse in a playful way the haemophilia situation in a country or region and to plan strategically the next steps to impact care.

Download the materials, collect your team members and get started!

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Service delivery

  • Infrastructure, care set-up
  • Organisation of care and referral system
  • Treatment guidelines
  • Patient flow

Health workforce

  • Responsiveness and interest of HCPs
  • Multidisciplinary care
  • Knowledge and education of HCPs
  • Training opportunities for HCPs
  • Professional associations/committees
  • Networks of HCPs in bleedingdisorders

Diagnosis and technology

  • Number of laboratories and distribution
  • Types of tests available
  • Patient flow for diagnosis
  • Diagnosis quality control (internal/external)

Treatment

  • IU/capita
  • Treatment regimens
  • Treatment options and safety
  • Supply and storage
  • Adherence to treatment

Registry and epidemiological information

  • Registry format and content
  • Registry ownership and recognition
  • Data safety and quality
  • Patient ID
  • Numbers of people with bleeding disorders

Governance and leadership

  • Healthcare system type
  • Policy and legislation
  • Government support
  • Bleeding disorders included in health agenda and/or health policies
  • Decision making

Finance

  • Budgeting for haemophilia and bleeding disorders
  • Resources allocation
  • Reimbursement levels
  • Percentage of “out-of-pocket-payment”

Patients and community

  • Patient organisation set-up, sustainability and leadership
  • Strategic planning
  • Patient knowledge and access to information
  • Level of patient empowerment
  • Awareness capacity and strategic planning
  • Advocacy capacity and strategic planning
  • Collaboration between key stakeholders in the bleeding disorders community

Do you want to apply for a project?

We fund and support developing countries in enhancing care access for haemophilia and related bleeding disorders.

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