About us

About us

Striving for better access to care

The Novo Nordisk Haemophilia Foundation (NNHF) is a grant-making, non-profit organisation dedicated to improving access to care for people with haemophilia and allied disorders in low- and middle-income countries.

NNHF is driven by its vision that all people with haemophilia and allied disorders access care and treatment, wherever they live.

Established in 2005 in Zurich, Switzerland, the NNHF is mainly funded by Novo Nordisk while also receiving donations from other organisations and private benefactors, 100% of which are allocated to projects.

The NNHF funds projects to build capacity for diagnosis and care, encouraging its partners to join forces for sustainable impact and systemic change. Together, we strive to empower people with haemophilia and allied disorders to raise awareness, advocate with a united voice and live full lives.

Impacting care. Together

Our Vision

All people with haemophilia or allied disorders access care and treatment, wherever they live.

Learn more

Our Approach

From early in the project application phase, NNHF partners work with different stakeholders in their community to ensure that each relevant group has a voice. Throughout project delivery, they collaborate with experts from their country or abroad to develop skills and strengthen care networks.

How we work

Our Team

The NNHF Management team is responsible for NNHF’s operations. The team ensures the organisation receives suitable programme applications and adopts a results-oriented approach to programme management, allocation of funds and budget controls.

Meet the Team

Focus areas

Together with our partners, we define and fund programmes that strengthen health systems to enable better care and treatment for people living with haemophilia and allied disorders.

Capacity building: empowering people with haemophilia, their families and patient organisations through awareness-building and training; creating and expanding medical networks, developing or strengthening care centres, training healthcare professionals and improving the organisation of care delivery – so that people with haemophilia and allied disorders can access care closer to home.

Diagnosis and registry: establishing laboratory facilities and providing training for technicians to enable quality diagnosis; establishing quality assurance processes to ensure accurate diagnoses; developing and updating patient registries to provide the quality data needed to support systemic change.

Awareness and advocacy: empowering the bleeding and allied disorders community to advocate for systemic change; raising awareness to identify more people living with haemophilia, decrease stigma and improve overall their quality of life.

How is NNHF structured
and governed?

NNHF is a non-profit organisation. As a grant-making foundation, NNHF is an associated partner of SwissFoundations and aligns its governance standards with the principles and recommendations of the Swiss Foundation Code.

NNHF Uzbek Samarkand

NNHF Council

NNHF is governed by the Foundation Council. The Council comprises globally renowned experts in the field of haemophilia and allied bleeding disorders, alongside members from Novo Nordisk.

NNHF Council members exercise their duty without remuneration except for the reimbursement of their expenses.

Operationally managed by the NNHF team

The NNHF Management Team includes eight employees, who are responsible for the operational management of NNHF and supports its partners in delivering results-oriented projects.

NNHF’s annual financial statements are audited and Swiss authorities inspect the foundation’s financial and liquidity planning along with its financial reporting to ensure that NNHF proceeds are spent in accordance with its objectives.

Our Council – rules and responsibilities

The NNHF Council oversees the foundation’s goals, activities and structures in transparency and alignment with its purpose. The Council convenes at least twice a year and is the supervisory and main decision body of the NNHF to ensure proper handling and distribution of funds.

The NNHF Council entrusts day-to-day management to NNHF Management Team.

Explore our programmes

NNHF funds sustainable programmes to build capacity for diagnosis and care, encouraging its partners to join forces for sustainable impact and systemic change. Together, we strive to empower people with haemophilia and allied disorders to raise awareness, advocate with a united voice and live full lives.

explore programmes