2022: A year that catalysed change
Throughout 2022, our partnerships have been instrumental in breaking down barriers and empowering individuals and communities to work together towards a common goal. Through these efforts to catalyse change, our programmes can deliver more.
We see this in the number of people reached: 50,600 people benefitted from NNHF programmes in 2022. The scope of these benefits is wide, for some it could mean an 18-hour reduction in the time they have to travel to receive care. Others may now be able to self-infuse at home. For thousands, it is a confirmed diagnosis of their bleeding disorder, meaning they can access the appropriate care for the first time.
And what is our role in this? We are the ones putting our partners at the forefront. As a catalyst for change we can inspire, we can introduce new ideas, and we can empower. But it is our partners who do. They are the ones leading their communities to address their most pressing needs in haemophilia care, whether this is establishing labs and clinics, reducing social stigma or influencing government policy.
That is why understanding our partners’ needs, the context in which they work, and how they can convert their plans into action and ultimately, impact, is key. The Grantee Perception Survey is one of the ways we can assess how we are doing in this area. Run by the Center for Effective Philanthropy (CEP), the survey seeks feedback from our grantees and compares results across a dataset gathered from over 350 funders. We were humbled by the results, with our partners especially positive about our impact on their communities and organisations.
There are of course areas that our partners would like us to work on. With the travel restrictions imposed by the COVID-19 pandemic, they want us to ensure that post-pandemic, we re-establish the close connections with them and communities they serve, whilst also ensuring we travel efficiently to minimise our environmental impact.
Our partners also want to achieve the right balance between demonstrating impact and the reporting mechanisms that this requires. By reviewing our impact framework and identifying which indicators really demonstrate positive change, we are working towards streamlining our monitoring and reporting process and with that reducing our partners’ workload.
Finally, catalysing change means expanding our partner network so that more actors can be mobilised to facilitate this change. In 2022, we welcomed four new countries into our project portfolio, and saw great strides in our partnerships with Fondation Pierre Fabre and Novo Nordisk Foundation through project activities in Burkina Faso, Guinea, Tanzania and Kenya. 2022 was also the year that Ramathibodi Hospital in Bangkok, Thailand became the first centre to receive equipment through our partnership with the International Society on Haemostasis and Thrombosis (ISTH). And finally, 2022 marked the 10th anniversary of the first NNHF sponsored labs enrolling in the World Federation of Hemophilia (WFH) International External Quality Assurance Scheme (IEQAS).
As we move into 2023, we will continue to focus on those who matter most: our beneficiaries. Whilst we expand our network, explore new partnerships and adapt to our revised impact framework, we will never lose sight of our vision, that people with haemophilia and allied disorders receive care and treatment, wherever they live.
NNHF Impact report
Key activities

73
centres established or strengthened

2,500
healthcare professionals trained

facilities
13,500
re-tested or newly diagnosed
Key outcomes

travel time
up to 18-hours
reduction in travel time to care

diagnosis
rate
up to 117%
increase in the number of people diagnosed

39
Countries reported improved quality
of care and/or diagnosis
Case studies
Our Programmes
NNHF 2022 Highlights
Meet our expert volunteers
We rely on a global network of expert volunteers to support our projects through training and knowledge sharing, both onsite and online. In 2022, we worked with volunteers from 12 countries spanning 5 continents.
Meet our expert volunteers
We rely on a global network of expert volunteers to support our projects through training and knowledge sharing, both onsite and online. In 2022, we worked with volunteers from 12 countries spanning 5 continents.
Leveraging partnerships to maximise impact
In 2022, we continued our partnerships with the Fondation Pierre Fabre, the International Society on Thrombosis and Haemostasis (ISTH), the Novo Nordisk Foundation and the World Federation of Hemophilia (WFH). Each of these partnerships leverages on synergies that will increase and accelerate access to care and diagnosis for people living with bleeding and blood disorders.
Leveraging partnerships to maximise impact
In 2022, we continued our partnerships with the Fondation Pierre Fabre, the International Society on Thrombosis and Haemostasis (ISTH), the Novo Nordisk Foundation and the World Federation of Hemophilia (WFH). Each of these partnerships leverages on synergies that will increase and accelerate access to care and diagnosis for people living with bleeding and blood disorders.
What do our grantees think of us?
In 2022, the NNHF participated for the first time in the Grantee Perception Report, conducted by the Center for Effective Philanthropy (CEP). We are using the results to continue building on our strengths whilst striving to improve in specific areas identified by our partners.
What do our grantees think of us?
In 2022, the NNHF participated for the first time in the Grantee Perception Report, conducted by the Center for Effective Philanthropy (CEP). We are using the results to continue building on our strengths whilst striving to improve in specific areas identified by our partners.
Podcast highlights
In 2022, our podcast guests included patient organisation leaders, a haemophilia nurse specialist and NNHF volunteer, and a Senegalese professor who is contributing to changing the landscape of blood disorders care in Africa.

This special compilation episode presents you with the highlights from these guests’ episodes in a bitesize format.
Awards
Announcing our NNHF Project of the Year 2022
The Novo Nordisk Haemophilia Foundation is pleased to announce that the Project of the Year award for 2022 is awarded to our Romania project team. The team, from the Romanian Society of Haematology and from “Iuliu Hatieganu” University of Medicine and Pharmacy in Cluj-Napoca, led by clinical haematologist Dr Ciprian Tomuleasa demonstrated outstanding dedication and project management in achieving sustainable impact for people living with haemophilia and allied disorders in Transylvania, and across the country.
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NNHF Community Award 2022:
Recognising an inspirational leader and patient advocate in Honduras
The recipient of the Novo Nordisk Haemophilia Foundation (NNHF) Community Award 2022 is Maria del Carmen Agurcia, President of the Honduran Haemophilia Society (Sociedad Hondureña de Hemofilia – SHH) from 2000 to 2013. She played a key role in strengthening this organisation on a national scale as well as implementing the first project supported by NNHF in the country, which was selected as the NNHF Project of the Year in 2012.
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