Training the trainers, empowering the community
“I am Dr Natalia Padilla, a paediatric haematologist at Hospital General de Occidente in Zapopan, near Guadalajara. I was hired in 2009 to develop the hospital’s Paediatric Haematology department. What motivated me to work in haemophilia was seeing a group of patients with particular needs and a huge potential for improvement through management and organisational changes.”
“The COVID-19 pandemic and factor shortages forced us to change strategies to create more impact for people with haemophilia. Implementing a quality system in our coagulation disorders clinic has enabled us to establish better processes and improve the standard of care for patients and their families, despite many healthcare staff being transferred to other units.
“We’ve observed that personalised training for people with haemophilia and their families helps them manage the disease individually and socially, while group training and empowerment workshops help them feel part of a community and encourage a positive exchange of experiences. These workshops are the chance for our multidisciplinary team to put into practice what they have learned in the “train the trainer” course, to reinforce their knowledge and promote strong relationships with patients. This has given a great boost to our clinic.”
Mexico 2021 highlights
Dr Natalia Padilla and the team were able to complete the activities of this three-year project to increase the knowledge of the multidisciplinary team and standardise care for people with haemophilia in the western Mexico state of Jalisco.
- Quality system implemented within the hospital.
- Small-group training sessions organised for around 350 people with haemophilia and 100 family members.
- Multidisciplinary team fully trained and empowered to train people with haemophilia and their families.
- Haemophilia information provided to first-level centres in 13 regions of the State of Jalisco.