Team up to reach out in 2019
Throughout 2019, we are asking our partners to ‘team up to reach out’.
This could mean collaborating with international or national experts, patient organisations, authorities, media – any stakeholder that could help bring haemophilia care to more people.
The Myanmar 3 project in Mandalay shows the power that such collaboration can have. With just one haematologist, Dr Moe Hein, serving the entire northern region of Myanmar, nurses play a key role in haemophilia care. Often the first point of contact for a person with haemophilia, nurses need to be able to identify symptoms, provide psycho-social advice and deal with a bleed. That is why Jennifer Maahs, nurse practitioner from the Indiana Haemophilia and Thrombosis Center joined the project team to train nurses from seven centres.
The project will also see two physiotherapists from the region undertaking training abroad to develop specialist skills to work with people with haemophilia. Throughout the project, healthcare professionals and patient organisation will work together to identify more people living with haemophilia.