Vietnam 1

Haemophilia prevalence, diagnosis and management in the north of Vietnam

Partner institution
National Pediatrics Hospital (NHP), Hanoi

Represented by
Dr Duong Ba Truc, MD, Head of Hematology Department

Duration
3 years, Q4 2008 – Q1 2012

Status
Completed

Achievements

Guidelines for diagnosis and care of people with hereditary bleeding disorders created – 1,000 copies printed and distributed in the targeted region
Updated patient organisation website
40 healthcare professionals from Hanoi (National Institute of Haematology and Blood Transfusion and NHP), Bac Giang (general hospital) as well as Hai Phong (paediatric hospital) trained in haemophilia
2,500 copies of haemophilia care book distributed to families
Patient education meeting for 47 newly diagnosed patients from Hanoi, Bac Giang and Hai Phong
Four computers purchased and registry installed in hospitals of Hanoi, Bac Giang and Hai Phong
Over 20,000 bleeding disorders questionnaires distributed
125 people tested, 47 new patients diagnosed through the project
1,050 patients enrolled in the registry
Meeting with physicians from Hanoi, Hue and Ho Chi Minh City which focused on identifying the common needs of North, Central and South Vietnam