Vietnam 1
Haemophilia prevalence, diagnosis and management in the north of Vietnam

Partner institution
National Pediatrics Hospital (NHP), Hanoi
Represented by
Dr Duong Ba Truc, MD, Head of Hematology Department
Duration
3 years, Q4 2008 – Q1 2012
Status
Completed
Achievements
- Guidelines for diagnosis and care of people with hereditary bleeding disorders created – 1,000 copies printed and distributed in the targeted region
- Updated patient organisation website
- 40 healthcare professionals from Hanoi (National Institute of Haematology and Blood Transfusion and NHP), Bac Giang (general hospital) as well as Hai Phong (paediatric hospital) trained in haemophilia
- 2,500 copies of haemophilia care book distributed to families
- Patient education meeting for 47 newly diagnosed patients from Hanoi, Bac Giang and Hai Phong
- Four computers purchased and registry installed in hospitals of Hanoi, Bac Giang and Hai Phong
- Over 20,000 bleeding disorders questionnaires distributed
- 125 people tested, 47 new patients diagnosed through the project
- 1,050 patients enrolled in the registry
- Meeting with physicians from Hanoi, Hue and Ho Chi Minh City which focused on identifying the common needs of North, Central and South Vietnam