Uzbekistan 2 – Fundraised project

School for children at the national haemophilia centre

Partner institution
Centre of Haemophilia and Depression of Haematopoiesis, Tashkent

Represented by
Dr Aziza D. Makhmudova, MD, Head of Hemostasis Pathology Department

1.5 years, Q4 2008 – Q2 2010



  • Establish a haemophilia school at the new treatment centre


  • School created with a classroom as well as a computer room and playroom for children with haemophilia (age 2–10)
  • Library established with books, DVDs on history, geography, art, world culture
  • 24-hour telephone hotline set up to provide qualified consultation
  • Classes organised in compulsory basic knowledge as well as computer and art
  • Psychological sessions provided for haemophilia patients and families
  • Swimming classes provided
  • Excursions organised with project minibus to museums, exhibitions and parks
  • Sustainability of school assured through Ministry of Health in close collaboration with hospital
  • Since its opening over 300 children have attended programmes at the school

“Imagine a small child away from his normal life for up to eight months; something that will feel like a lifetime for a child of this age. With no school, no sports and no other activities. But this haemophilia school will change all of this. It will bring ‘normal’ life back to these children and tremendously improve their chances and quality of life,” Dr Aziza Makhmudova, project partner.

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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