Uzbekistan 1 project
Improvement of haemophilia diagnostic and treatment level
Partner institution
Hematology and Transfusion Scientific institute, Tashkent
Represented by
Dr Aziza Makhmudova, MD, Head of Hemostasis Pathology Department
Duration
2.5 years, Q4 2005 – Q2 2007
Status
Completed
Objectives
- Educate regional doctors and nurses
- Establish national reference laboratory and train laboratory staff
- Perform a national screening programme
- Create a national haemophilia registry
Achievements
- Coagulometer installed and training of lab staff performed
- 1,138 people with haemophilia diagnosed and registered
- Publication of book – “Uzim haqimda nima bilaman” (what I know about myself)
- Dr Aziza Dj. Mahmudova managed to involve the Haemophilia Problem Charity Fund – headed by the daughter of the Uzbekistan President. The Fund granted a budget for the construction of a new haemophilia centre in Tashkent and is going to also support it with medical products
- Realisation of treatment guidelines “Hemophilia”, “Hemophilia clinic forms, diagnostics and cure”.
- Briefings held with participation of Senator H. Shodieva, Ministry of Health RUZ, and all regional haematologists on the theme “Screening of Inhibitor form of Hemophilia”
- Realisation of documentary “Hemophilia in Uzbekistan”
