Ukraine 2 project
Establish advanced haemophilia care in Dnipro region and execute a training programme for physicians
Partner institution
Ukrainian Association for Haemophilia and Haemostasis ‘Factor D’
Represented by
Sergiy Shemet, Board member
Dr Tetiana Nikolaenko, Assoc. Prof, haematologist at Dnipro Medical Academy
Duration
3 years, envisaged start Q1 2022
Status
Formalisation
Objectives
- Establish a haemophilia treatment centre at Dnipro Medical University
- Increase the diagnosis rate of people with haemophilia in Dnipro region by 8% by the end of 2024
- Improve knowledge on the management of people with bleeding disorders amongst physicians and the emergency personnel
- Empower at least 100 people with haemophilia and their families to self-manage their care and treatment
- Advocate for improved care together with other orphan disease organisations
