Turkey 1 project

Peer-to-peer healthcare professional and patient educational meetings in Eastern Turkey

Partner institution
Haemophilia Federation of Turkey, Istanbul

Represented by
Prof. Dr. Kaan Kavakli, Izmir

Duration
1 year, Q1 2013 – Q4 2013

Status
Completed

Objectives

• Increase level of know-how amongst people with haemophilia with respect to disease management
• Drive patient advocacy, self-infusion and caregiver involvement
• Leverage peer-to-peer experience sharing and training of healthcare professionals

Achievements

• Training sessions for 125 participants in Diyarbakir and 125 in Van incl. educational material
• Network between healthcare professionals and patient community
• People with haemophilia are aware of their rights
• Samples collected from 23 people with haemophilia to test for inhibitors
• Project presented at National Congress