South Africa 4 project
Strengthen South African Haemophilia Federation capacity through youth development and empowerment of health care providers
Partner institution
South African Haemophilia Foundation (SAHF) and its Medical and Scientific Advisory Council (MASAC), Western Cape
Represented by
Johan Potgieter
Anne-Louise Cruickshank, Haemophilia Nurse Counsellor
Duration
3.5 years, Q2 2017 – Q4 2020
Status
Completed
Objectives
- Establish a national web-based registry
- Improve capacity and succession planning of SAHF
- Improve haemophilia care through multidisciplinary training
Achievements
- 177 people with bleeding disorders from five haemophilia treatment centres entered into the newly established online patient registry
- 13 members of SAHF have been trained to establish the youth committee, together with two mentors who will be responsible for developing youth skills through community education, raised awareness and virtual platforms to allow for ongoing exchange
- People with haemophilia living in seven provinces across the country can access care closer to where they live due to the increase in knowledgeable healthcare professionals, with the training of 300 doctors and 100 nurses
South Africa 4 won the NNHF Project of the Year award 2021
Congratulations to our South Africa 4 project partners for going above and beyond in the past three years to support and empower people living with haemophilia.
Shaping the future of haemophilia care in South Africa
By engaging youth in South Africa, this project grew to focus on developing an active haemophilia community across the continent.
To read more click here.
