South Africa 4 project

Strengthen South African Haemophilia Federation capacity through youth development and empowerment of health care providers

Partner institution
South African Haemophilia Foundation (SAHF) and its Medical and Scientific Advisory Council (MASAC), Western Cape

Represented by
Johan Potgieter
Anne-Louise Cruickshank, Haemophilia Nurse Counsellor

3.5 years, Q2 2017 – Q4 2020



  • Establish a national web-based registry
  • Improve capacity  and succession planning of SAHF
  • Improve haemophilia care through multidisciplinary training


  • 177 people with bleeding disorders from five haemophilia treatment centres entered into the newly established online patient registry
  • 13 members of SAHF have been trained to establish the youth committee, together with two mentors who will be responsible for developing youth skills through community education, raised awareness and virtual platforms to allow for ongoing exchange
  • People with haemophilia living in seven provinces across the country can access care closer to where they live due to the increase in knowledgeable healthcare professionals, with the training of 300 doctors and 100 nurses

South Africa 4 won the NNHF Project of the Year award 2021

Congratulations to our South Africa 4 project partners for going above and beyond in the past three years to support and empower people living with haemophilia.

The NNHF Council has selected South Africa 4 as Project of the Year 2021 for exemplary leadership, proactive project management and a willingness to adapt to challenges. Congratulations to our partners at the South African Haemophilia Foundation (SAFH) and its Medical and Advisory Council (MASAC) for enabling the team to successfully create a national patient registry while engaging a new generation of young leaders to secure the future of haemophilia care in South Africa.

Shaping the future of haemophilia care in South Africa

By engaging youth in South Africa, this project grew to focus on developing an active haemophilia community across the continent.

To read more click here.

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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