South Africa 1 project
Road to Haemophilia Health in KwaZulu Natal, South Africa KwaZulu Natal, Republic of South Africa
Partner institution
Nelson R Mandela School of Medicine, Department of Paediatrics and Child Health
Represented by
Dr Rajendra Thejpal, MD
Duration
3 years, Q1 2009 – Q4 2012
Status
Completed
Objectives
- Regional focus: KwaZulu-Natal (KZN)
- Consolidation of the KZN HCCC in Durban
- Outreach and establishment of 2 new satellite centres
- KZN screening programme and registry
Achievements
- Training of 30 nurses, 104 physiotherapists and 303 physicians
- Patient camps and educational material developed
- Set-up of satellite clinics in Pietermaritzburg at Grey’s Hospital and in Ngwelazane at Ngwelazane Hospital: joint clinics with teams from Durban and locally set-up teams
- Web-based registry implemented and updated to set basis for a national unified registry
- Details of 666 people with bleeding disorders now in registry
- Support set-up of resource centres at Grey’s and Ngwelazane hospitals through purchase of facilities
- Improved facilities at resource centre at the Haemophilia Comprehensive Care Clinic in Durban
“Today we have two more centres with teams which are highly motivated and with whom patients have started to build a relationship and trust. There are and will always be challenges but with the right motivation and the right people it is great to see what can be done,” Dr Rapiti, adult haematologist and project team member.
