Senegal 1 project

A better life for Senegalese with haemophilia

Partner institution
Association Sénégalaise des Hémophiles

Represented by
Mr Abdoulaye Loum, President
Mrs Anna Seck

Duration
2.5 years, Q1 2020 – Q3 2022

Status
Closing

Objectives

Improve ability of 250 healthcare professionals to provide basic haemophilia care in 5 regions of the country
Provide people with haemophilia and family members with a better understanding of the condition
Establish a physiotherapy room at the Centre National de Transfusioin Sanguine (national centre of blood transfusioin)
Increase general public and authorities awareness about haemophilia
Strengthen the Association Sénégalaise des Hémophiles

This project has benefitted 304 people with haemophilia.
2 haematologists trained for 2 weeks in Switzerland who then cascaded gained knowledge to 55 healthcare professionals from Kaolack, Fatick, Kaffrine and Diourbel regions, leading to a decrease in travel time of people with haemophilia up to 4.5 hours to receive basic care.
National diagnosis rate increased by 33% with the number of people with haemophilia rising from 230 to 304 at the end of the project, reaching now a diagnosis rate of 20%.
Physiotherapy room refurbished and equipped in Dakar and 5 physiotherapists trained for 4 days with their peers from Cote d’Ivoire, Benin and Togo in the regional training organised in Dakar and facilitated by Dr Sebastien Lobet, physiotherapist and researchers at the Cliniques universitaires Saint-Luc in Brussels.
Improvement of more than 230 people with haemophilia and family members knowledge on the condition through educational sessions organised in 6 regions, leading to people with haemophilia and family members knowing better about the condition and being able to cascade their knowledge to their entourage and breaking down the stigmatisation.
ASH patient organisation members empowered through training in fundraising, communication and social media which allows them to have more presence in traditional and social medias.
Renovation of ASH office allowing members of the patient organisation to have a space to meet and exchange.