Romania 3 project

Strengthen haemophilia care in the north and establish a national registry in Romania

Partner institution
Romanian Hematology Society (RHS)

Represented by
Dr Ciprian Tomuleasa

Duration
1 year, Q3 2020 – Q3 2021

Status
Completed

Objectives

• Strengthen diagnosis capabilities in Cluj Napoca
• Consolidate haemophilia data in a national online registry and (re-)diagnose people with haemophilia in the north
• Improve haemophilia care and increase training opportunities for haemophilia in northern Romania 
• Increase standardisation of haemophilia care and raise awareness amongst healthcare professionals in Romania

Achievements

• Quality diagnsis including trained lab personnel available in Cluj Napoca
• National registry established and used in major cities of Romania
• Improved standardisation of haemophilia care in north Romania
• 5 scientific papers published
• Nominated for the Romanian Healthcare Awards

Scientific papers published under the support of this projct

• Unexplained hemorrhagic syndrome? Consider acquired hemophilia A or B (C. Constantinescu et al., 2021)
• The Presence of Periodontitis in Patients with Von Willebrand Disease: A Systematic Review (A. Mester et al., 2021)
• Mobile Health Technology for the Personalized Therapy of Hemophilia (N. Dirzu et al., 2021)
• Current therapeutic approaches in the management of hemophilia—a consensus view by the Romanian Society of Hematology (I. Hotea et al., 2021)
• The Possible Non-Mutational Causes of FVIII Deficiency: Non-Coding RNAs and Acquired Hemophilia A (A. Zimta et al., 2021)

Project communications

_{NNHF Project of the Year Award 2022}

7 February 2022

(…) The team, from the Romanian Society of Haematology and from “Iuliu Hatieganu” University of Medicine and Pharmacy in Cluj-Napoca, led by clinical haematologist Dr Ciprian Tomuleasa demonstrated outstanding dedication and project management in achieving sustainable impact for people living with haemophilia and allied disorders in Transylvania, and across the country (…)

Read the full article

Other projects in Romania

Romania 2 project

Empowering the haemophilia patient community
Duration: 2018-2020

Romania 1 project

Improvement of haemophilia care in Romania
Duration: 2007-2010