Romania 1

Improvement of haemophilia care in Romania

Partner institution
Emergency Clinical Hospital “Louis Turcanu” Haemophilia Centre, Timisoara

Represented by
Prof Dr Margit Serban

2.5 years, Q1 2007 – Q3 2010



  • 5 new functional haemophilia centres in main regions
  • Workshops for healthcare professionals, patients and families
  • Written educational materials for doctors, nurses and patients developed and distributed
  • Numerous meetings with the patient organisation and authorities
  • Creation of a National Alliance for Rare Diseases
  • Updating of national haemophilia registry and creation of a database on health and socioeconomic data
  • Improved diagnosis through testing of 1,081 samples collected

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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