Romania 1

Improvement of haemophilia care in Romania

Partner institution
Emergency Clinical Hospital “Louis Turcanu” Haemophilia Centre, Timisoara

Represented by
Prof Dr Margit Serban

Duration
2.5 years, Q1 2007 – Q3 2010

Status
Completed

Achievements

• 5 new functional haemophilia centres in main regions
• Workshops for healthcare professionals, patients and families
• Written educational materials for doctors, nurses and patients developed and distributed
• Numerous meetings with the patient organisation and authorities
• Creation of a National Alliance for Rare Diseases
• Updating of national haemophilia registry and creation of a database on health and socioeconomic data
• Improved diagnosis through testing of 1,081 samples collected