Romania 1 project
Improvement of haemophilia care in Romania

Partner institution
Emergency Clinical Hospital “Louis Turcanu” Haemophilia Centre, Timisoara
Represented by
Prof Dr Margit Serban
Duration
2.5 years, Q1 2007 – Q3 2010
Status
Completed
Objectives
- Increase awareness and improve haemophilia diagnostic, care and treatment
- Improve existing national haemophilia registry
- Create 4-5 more haemophilia centres in the main regions, based on and integrated in the existing healthcare network with importance to non-discriminating access
Achievements
- 5 new functional haemophilia centres in main regions
- Workshops for healthcare professionals, people with haemophilia and families
- Written educational materials for doctors, nurses and people with haemophilia developed and distributed
- Numerous meetings with the patient organisation and authorities
- Creation of a National Alliance for Rare Diseases
- Updating of national haemophilia registry and creation of a database on health and socioeconomic data
- Improved diagnosis through testing of 1,081 samples collected