Romania 1 project

Improvement of haemophilia care in Romania

Partner institution
Emergency Clinical Hospital “Louis Turcanu” Haemophilia Centre, Timisoara

Represented by
Prof Dr Margit Serban

Duration
2.5 years, Q1 2007 – Q3 2010

Status
Completed

Objectives

Increase awareness and improve haemophilia diagnostic, care and treatment
Improve existing national haemophilia registry
Create 4-5 more haemophilia centres in the main regions, based on and integrated in the existing healthcare network with importance to non-discriminating access

5 new functional haemophilia centres in main regions
Workshops for healthcare professionals, people with haemophilia and families
Written educational materials for doctors, nurses and people with haemophilia developed and distributed
Numerous meetings with the patient organisation and authorities
Creation of a National Alliance for Rare Diseases
Updating of national haemophilia registry and creation of a database on health and socioeconomic data
Improved diagnosis through testing of 1,081 samples collected