Poland 1 project

Program for evaluation and standardisation of the diagnostic and treatment approaches in haemophilia patients

Partner institution
Haematology Department, Paediatric Clinic, Warsaw

Represented by
Dr Anna Klukowska, MD

2 years, Q2 2006 – Q3 2008



  • Increase early diagnosis and perform national screening programme
  • Establish national haemophilia registry
  • Educate and train healthcare professionals
  • Educate people with haemophilia
  • Update treatment guidelines


  • Education programme reaching 350 doctors, 96 nurses and 26 laboratory technicians
  • 20 workshops empowering 760 people with haemophilia and their families
  • Educational material was developed and distributed including 2,500 copies of the first comprehensive book about haemophilia for people with haemophilia
  • Screening programme including 1,006 people with haemophilia
  • The clinical data were registered in a newly introduced electronic national registry
  • The concerted effort on all fronts to improve haemophilia care in Poland led to the first national programme for prophylaxis in children introduced by the Ministry of Health

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here