Poland 1 project
Program for evaluation and standardisation of the diagnostic and treatment approaches in haemophilia patients
Partner institution
Haematology Department, Paediatric Clinic, Warsaw
Represented by
Dr Anna Klukowska, MD
Duration
2 years, Q2 2006 – Q3 2008
Status
Completed
Objectives
- Increase early diagnosis and perform national screening programme
- Establish national haemophilia registry
- Educate and train healthcare professionals
- Educate people with haemophilia
- Update treatment guidelines
Achievements
- Education programme reaching 350 doctors, 96 nurses and 26 laboratory technicians
- 20 workshops empowering 760 people with haemophilia and their families
- Educational material was developed and distributed including 2,500 copies of the first comprehensive book about haemophilia for people with haemophilia
- Screening programme including 1,006 people with haemophilia
- The clinical data were registered in a newly introduced electronic national registry
- The concerted effort on all fronts to improve haemophilia care in Poland led to the first national programme for prophylaxis in children introduced by the Ministry of Health
