Panama 1
Latin American haemophilia network – pilot project
Partner institution
Centro Nacional de Hemofilia, Panama City
Represented by
Dr Belgica Moreno, MD, Chief, Department of Hematology-Oncology
Duration
2.5 years, Q3 2008 – Q2 2011
Status
Completed
Achievements
- Needs assessment tool developed with support of the Gulf States Haemophilia & Thrombosis Center in Houston
- Two nurses trained in a patient camp in Houston to share their knowledge in several training sessions for patients in Panama
- 60 odontologists trained in dental care of patients with bleeding disorders
- Two day training by Dr Querol from the University of Valencia on evaluation techniques for 57 physiotherapists
- 25 families benefited from the “Parent to parent educational programme” (PEP)
- 20 teenage boys participated in a workshop especially designed for teenagers
“We see a considerable increase in the number of patients cared for and consulted by physicians and specialists. This is reflected by an increase of 90% in the total number of coagulation essays realised,” Prof José M. Ballester Santovenia.
