Panama 1 project

Latin American haemophilia network – pilot project

Partner institution
Centro Nacional de Hemofilia, Panama City

Represented by
Dr Belgica Moreno, MD, Chief, Department of Hematology-Oncology

Duration
2.5 years, Q3 2008 – Q2 2011

Status
Completed

Objectives

  • Develop generic needs assessment tool and implement in Panama (pilot)
  • Utilise assessment data to determine detailed project actions including development of training and educational modules (for healthcare professionals and people with haemophilia)

Achievements

  • Needs assessment tool developed with support of the Gulf States Haemophilia & Thrombosis Center in Houston
  • Two nurses trained in a patient camp in Houston to share their knowledge in several training sessions for people with haemophilia in Panama
  • 60 odontologists trained in dental care of people with haemophilia with bleeding disorders
  • Two day training by Dr Querol from the University of Valencia on evaluation techniques for 57 physiotherapists
  • 25 families benefited from the “Parent to parent educational programme” (PEP)
  • 20 teenage boys participated in a workshop especially designed for teenagers

“We see a considerable increase in the number of patients cared for and consulted by physicians and specialists.  This is reflected by an increase of 90% in the total number of coagulation essays realised,” Prof José M. Ballester Santovenia.

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here