Pakistan 5 project
Bringing change by improving access to care and awareness – a capacity building and leadership initiative
Partner institution
Pakistan Haemophilia Patients Welfare Society (PHPWS)
Represented by
Masood Fareed Malik, President
Duration
2.5 years, Q2 2014 – Q4 2016
Status
Completed
Objectives
- Strengthen the Pakistan Haemophilia Patients Welfare Society and its chapters to excel their role
- Increase the public and the awareness of people with haemophilia
- Outreach for identification of new people with haemophilia
- Develop centralised web-based national patients registry
Achievements
- Reduced stigmatisation and increased self-esteem of people with haemophilia
- Four patient camps educated people with haemophilia and their parents to improve their long-term health outcomes
- A national web-based registry was created
- The patient organisation increased its membership and organisational capacity
