Pakistan 5

Bringing change by improving access to care and awareness – a capacity building and leadership initiative

Partner institution
Pakistan Haemophilia Patients Welfare Society (PHPWS)

Represented by
Masood Fareed Malik, President

Duration
2.5 years, Q2 2014 – Q4 2016

Status
Completed

Achievements

• Reduced stigmatisation and increased self-esteem of people with haemophilia
• Four patient camps educated patients and their parents to improve their long-term health outcomes
• A national web-based registry was created
• The patient association increased its membership and organisational capacity