Pakistan 1 project

Capacity building for haemophilia care programme – a pilot study

Partner institution
National Institute of Blood Disease and Bone Marrow Transplantation (NIBD), Karachi

Represented by
Dr Tahir S. Shamsi, MD

3.5 years, Q3 2007 – Q2 2011



  • Capacity building and national haemophilia screening – pilot study in Karachi area


  • Four master trainers trained in Karachi to perform testing of specific clotting factor levels and learn how to train other healthcare providers
  • Educational materials for healthcare professionals developed and distributed: ‘Practical Haemostasis: basic facts and practical application’ – book
  • Five full-day haemostasis workshops conducted by master trainers
  • Six posters and one oral presentation delivered at haematology conference in 2009 in Karachi
  • Project completion report and relevant documents submitted to Director General Health, Ministry of Health, Government of Pakistan and the Executive Director, Pakistan Medical Research Council
  • Self-sustained model for haemophilia care established at NIBD
  • Patient database developed and available for use
  • Almost 600 haemophilia and other allied bleeding disorder patients diagnosed – 140 new people with bleeding disorders
  • Guidelines for diagnosis of congenital bleeding disorders developed and submitted to Ministry of Health

“We’ve reached a new milestone in haemophilia care in this country. Now is the time to capitalise on it and make haemophilia a national responsibility,” Dr Tahir Shamsi, project partner.

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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