Pakistan 1 project
Capacity building for haemophilia care programme – a pilot study
Partner institution
National Institute of Blood Disease and Bone Marrow Transplantation (NIBD), Karachi
Represented by
Dr Tahir S. Shamsi, MD
Duration
3.5 years, Q3 2007 – Q2 2011
Status
Completed
Objectives
- Capacity building and national haemophilia screening – pilot study in Karachi area
Achievements
- Four master trainers trained in Karachi to perform testing of specific clotting factor levels and learn how to train other healthcare providers
- Educational materials for healthcare professionals developed and distributed: ‘Practical Haemostasis: basic facts and practical application’ – book
- Five full-day haemostasis workshops conducted by master trainers
- Six posters and one oral presentation delivered at haematology conference in 2009 in Karachi
- Project completion report and relevant documents submitted to Director General Health, Ministry of Health, Government of Pakistan and the Executive Director, Pakistan Medical Research Council
- Self-sustained model for haemophilia care established at NIBD
- Patient database developed and available for use
- Almost 600 haemophilia and other allied bleeding disorder patients diagnosed – 140 new people with bleeding disorders
- Guidelines for diagnosis of congenital bleeding disorders developed and submitted to Ministry of Health
“We’ve reached a new milestone in haemophilia care in this country. Now is the time to capitalise on it and make haemophilia a national responsibility,” Dr Tahir Shamsi, project partner.
