Nicaragua 2 project
Haemophilia care outreach in Nicaragua
Asociación Nicaragüense de Hemofilia, Managua
Engels Rolando Reyes Sánchez, President
3.5 years, Q3 2019 – Q2 2023
- 110 people with haemophilia and more than 100 family members from Managua, Chinandega and Matagalpa trained on haemophilia and the management of the condition in their day-to-day, improving attendance to consultations and adherence to treatment.
- More than 300 healthcare professionals trained, including haematologists, nurses and general practitioners on bleeding disorders in the country, allowing basic care to be provided in the cities of Chinandega, Jinotega and Matagalpa, thus reducing travel time by 7 hours (round trip).
- Awareness raising activities amongst local and authorities with 8 appearances in press, radio and TV and organisation of more than 10 meeting with authorities. This led to the strengthening of the relationship with the Ministry of Health.
Collaborating and communicating to impact care
Teamwork and dialogue are powerful tools for building a strong haemophilia community. This philosophy has helped Engels Reyes, who lives with severe haemophilia A, to become increasingly involved as a spokesman for bleeding disorders in Nicaragua and beyond.
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- Decentralise diagnosis to the hospital Escuela César Amador Molina and improve the diagnosis rate in the Central region from 25% to 40%
- Develop and implement national diagnosis guidelines in collaboration with the Ministry of Health
- Improve healthcare professionals’ knowledge on haemophilia in Managua, Matagalpa, Bluefields and Puerto Cabezas
- Empower 80 PwH from Matagalpa and Managua through 7 training sessions
- Strengthen patient organisations from Nicaragua, Guatemala, Honduras and El Salvador through a 3-day training in Managua