Nicaragua 1 project
Establish comprehensive care of haemophilia in Nicaragua
Partner institution
Nicaraguan Association of Haemophilia and the Red Cross, Managua
Represented by
Javier Antonio Rivas Ojeda, President and Dr Rene Berrios
Duration
2 years, Q1 2016 – Q1 2018
Status
Completed
Objectives
- Improve coagulation laboratory and train the staff to do diagnosis
- Train professionals in nursing, physiotherapy, dental care and medical training of people with haemophilia
- Create national treatment guidelines
- Provide educational sessions to people with haemophilia and families on haemophilia
- Strengthen the haemophilia care centre and the patient organisation
Achievements
- Improved coagulation laboratory and trained diagnosis technician from Blood Bank
- Use of media inviting people with haemophilia for free diagnosis with a reach of 1.7m people as audience
- 33 Multidisciplinary training with more than 200 healthcare professionals
- Development of an online registry
- Promoted haemophilia in universities with a reach of more than 200 students
- Advocacy activities leading to 8.5m UI FVIII
- Strengthened patient organisation
