Nepal 2
Improving diagnosis and multidisciplinary care in Nepal

Partner institution
Nepal Hemophilia Society (NHS), Kathmandu
Represented by
Nabin Dhungeland, President
Suraksha Thapa
Duration
3 years, started Q1 2019
Status
Execution
Objectives
- Identify 100 new cases of haemophilia each year through awareness and education
- Develop diagnostic capabilities in Nepalgunj (Far West) and increase the capacity of Civil Service Hospital (CSH) to perform as the knowledge hub on issues of haemophilia diagnosis and periphery activities
- Enable people with haemophilia to become physically strong and fit to live a healthy life
- Empower and strengthen the haemophilia community through education, training and development
- Raise awareness of haemophilia amongst government, civil society and organisations working with people with disabilities through advocacy, discussion, interaction and rapport building at central province level as well as in local chapters
Successful haemophilia advocacy plan: interview with the Nepal Hemophilia Society
After years of advocacy efforts, a major breakthrough happened in Nepal in the end of 2019, where one out of seven provinces agreed to allocate budget for the procurement of haemophilia treatment. Following the step, three additional provinces allocated budget again in June 2020.
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