Mexico 7, Jalisco project
Improve the diagnosis and comprehensive care system in the State of Jalisco
Hospital General de Occidente
Dr Natalia Padilla, Head of Department of Paediatric Haematology and Director of Haemophilia Clinic
3 years, started Q3 2018 – Q3 2021
- Initiate diagnosis at the hospital’s laboratory
- Improve the knowledge of the multidisciplinary team and standardise care delivery in the haemophilia treatment centre
- Empower people with haemophilia and relatives to achieve a better quality of life
- Create awareness on haemophilia and coagulation disorders to promote timely diagnosis
- Establishment of diagnosis at the Hospital General de Occidente following the training of 5 laboratory technicians in Toluca provided by expert Marion Echenagucia from Venezuela. This drastically reduced the time to receive the diagnosis results, from 3-4 days to less than 24 hours.
- Capacity building of the haemophilia multidisciplinary care team with specialised 2-weeks training abroad at Unicamp, Brazil for one physiotherapist and one orthopaedic surgeon and specialised training in Villahermose, State of Tabasco for one nurse, one dentist and one social worker.
- Implementation of a healthcare quality system with clear definition of care processes and role of each member of the multidisciplinary care team, with this increasing the commitment of each member and reducing the impact of caring for people with haemophilia to a minimum during personnel transfers during the pandemic.
- A total of 18 training sessions executed across the 13 health regions of the state of Jalisco, with 146 doctors, 199 nurses, 17 physiatrists and 58 other healthcare professionals trained on haemophilia.
- 12 training sessions for more than 70 people with haemophilia and 199 family members held on several topics including generalities about haemophilia, form of transmission, prophylaxis, management of urgent events, and self-care. Through this people with haemophilia are more committed to their health with increased adherence to treatment and greater trust towards healthcare professionals.
Improving diagnosis and standardising care
The main objective of the seventh NNHF project in Mexico is to increase the knowledge of the multidisciplinary team and standardise care delivery to people with haemophilia in the state of Jalisco in the western part of the country.
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Training the trainers, empowering the community
“I am Dr Natalia Padilla, a paediatric haematologist at Hospital General de Occidente in Zapopan, near Guadalajara. I was hired in 2009 to develop the hospital’s Paediatric Haematology department. What motivated me to work in haemophilia was seeing a group of patients with particular needs and a huge potential for improvement through management and organisational changes.”
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