Mexico 5 project
Creation of comprehensive haemophilia clinic of ISSEMyM
Haemophilia clinic of Maternal-Infant Hospital ISSEMyM, Toluca, State of Mexico
Dr Cecilia Rodríguez Castillejos, MD, Hematologist Pediatric
3 years, Q2 2018 – Q2 2021
- Form a multidisciplinary care team at Maternal-Infant Hospital
- Train HCPs from partner hospital, the ISSEMyM network (1st and 2nd level of care) and selected HCPs across the healthcare institutions of the State of Mexico
- Provide education, guidance and psychological support to patients and their families
- Formalise a complete haemophilia patient database for the hospital
- Improve the quality of diagnosis in the hospital laboratory and beyond.
- Creation of a multidisciplinary haemophilia care clinic at the ISSEMyM hospital in Toluca, including the training of laboratory personnel by Marion Echenagucia from Venezuela, training of a physiotherapist, two social workers and three nurses at the University Hospital in Monterrey and a 2-week training for an orthopaedist and Dr Rodriguez on haematology at Unicamp centre in Campinas, Brazil. A physiotherapy room was also equipped in the hospital.
- Agreement with the hospital director to assign specific days during each month for the consultation of people with haemophilia. The consultations are run between the different disciplines of the multidisciplinary care team on a single day which results in savings for parents who do not need to travel to the hospital on multiple occasions as well as less absenteeism from work and school.
- Empowerment of people with haemophilia and families through the organisation of self-infusion training sessions and the execution of patient camps with more than 40 children with haemophilia attending. This led to a greater adherence to treatment, increased the level of self-esteem and the independency of people with haemophilia.
- While not developing a registry as initially planned, the ISSEMyM hospital took part in the national online registry developed under the NNHF-supported Mexico 4 project.