Mexico 2 project

Establishing a regional multidisciplinary haemophilia healthcare centre in Monterrey

Partner institution
Hospital Universitario “Dr. José Eleuterio González”, Monterrey

Represented by
Dr Laura Villarreal Martínez, MD, Haematologist

Duration
2.5 years, Q1 2014 – Q3 2016

Status
Completed

Objectives

  • Provide education, guidelines and psychological support for people with haemophilia
  • Train healthcare professionals to establish a multidisciplinary care team
  • Formalise a complete database for people with haemophilia
  • Raise awareness amongst the general public including school children and teachers

Achievements

  • Capacity and organisation of care
    • Multidisciplinary team of 8 members formed and trained
    • Musculoskeletal (MSK) programme for people with haemophilia
    • Quality care reducing complications
    • Clear processes in case of emergency reducing number of hospitalisations (0 in 2015)
  • Diagnosis
    • Genetic testing and counselling of all people with bleeding disorders and carriers (also beyond the centre)
    • 20 new people with bleeding disorders diagnosed (+133%)
  • Education and empowerment
    • Monthly follow up and educational sessions for people with bleeding disorders (24 sessions) + patient camps
    • People with haemophilia and their families take more responsibility of the disease
  • Awareness and advocacy
    • Medical students‘ group created to support in recreational, cultural and educational activities
    • Awareness created amongst government health officials, now including World Haemophilia Day on the agenda of the Secretary of Health

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here