Malaysia 3 project

Identifying and empowering women leaders to activate regional chapters within the Malaysian Haemophilia Society

Partner institution
Ampang hospital, Kuala Lumpur

Represented by
Dr Jameela Sathar, Clinical Haematologist and President of Ampang Hospital Women’s Group (PUSPANITA)

Duration
1.5 years, Q1 2016 – Q4 2017

Status
Completed

Objectives

• Raise awareness amongst healthcare professionals on diagnosis and treatment of women with bleeding and clotting disorders
• Create a women’s support group at a national level
• Devise a leadership manual for the women’s group in Malaysia
• Engage media to support improvement of care in Malaysia
• Set up a national haemophilia and coagulation disorders standards board

Achievements

• Established counselling group for new mothers or women with haemostatic problems
• Activated regional chapters within the Malaysian Haemophilia Society
• Awareness about haemophilia created on World Haemophilia Day 2017
• National Haemophilia and Coagulation Disorders Standards Board established