Macedonia 2 project
Establish national multidisciplinary care centre for haemophilia
Partner institution
National Institute of Transfusion Medicine, Skopje
Represented by
Dr Violeta Dejanova-Ilijevska, Head of Haemophilia Treatment Centre
Duration
1 year, Q3 2011 – Q3 2012
Status
Completed
Objectives
- Establish a national comprehensive haemophilia treatment centre
- Train healthcare professionals and create a multidisciplinary team
- Education programmes for healthcare professionals on comprehensive care and programme for people with haemophilia and their families
- Awareness creation for community about the importance of comprehensive care approach
- Involvement of patient organisation in awareness creation activities – i.e. newsletter, website
Achievements
- Adaptation of existing Centre in Skopje
- Healthcare professionals specialised training
- Orthopaedic surgeon and physiatrist trained in haemophilia treatment centre in Milan
- Psychologist trained in haemophilia treatment centre in Zagreb in Croatia
- Social worker trained in haemophilia treatment centre in Belgrade in Serbia
- Comprehensive haemophilia care workshops in Skopje, Tetovo, Bitola and Stip
- Multidisciplinary care centre available
- 500 ID cards for people with haemophilia printed
- 300 copies of material for people with haemophilia/families/teachers printed
- 3 workshops for educators from kindergarten
- Education camp for children with haemophilia
- Awareness creation film “Great step forward in haemophilia care in Macedonia”
“Before this centre opened, I would have to go to a different location every time I was referred to a different specialist. This was difficult for me as I live outside of Skopje, so I already have to travel a long way just to get here. Now I know that when I come here, I can see the specialists I need under one roof,” Dragi Lulevik, patient with haemophilia A.
“This centre demonstrates the improvement and increase in the level of quality of haemophilia care in Macedonia. It is a great step for all people with haemophilia,” Nikola Todorov, Health Minister for Macedonia.
