Macedonia 1 project
Capacity building in Haemophilia Care
Partner institution
University Children’s Hospital, Medical Faculty, Univ. ‘Ss Cyril and Methodius’, Skopje
Represented by
Prof Sofijanka Glamocanin, MD, PhD
Duration
2.5 years, Q1 2007- Q4 2009
Status
Completed
Objectives
- Assess the general health of people with haemophilia
- Upgrade the national haemophilia registry to a web-based registry
- Improve inhibitor haemophilia diagnostics and follow-up
- Set high priority for haemophilia in national healthcare services and strategy to provide adequate treatment for all people with haemophilia in Macedonia
Achievements
- 500 haematologists, paediatricians and orthopaedists trained
- 114 nurses and 21 lab technicians educated
- 115 people with haemophilia, 92 family members and other community stakeholders educated
- 2,000 copies of educational material for healthcare professionals developed and produced
- 1,650 copies of educational material for people with haemophilia and families developed and produced
- Guidelines for the Management of Haemophilia translated and accepted as national guidelines
- Screening programme executed with three teams visiting centres in east, central and western Macedonia
- 185 people with haemophilia (re-)tested
- Survey conducted to assess the health and clinical status of people with haemophilia
“We are proud of the significant benefits for people with haemophilia realised through this project’s activities. Key to these achievements is the good collaboration between all involved parties – hospitals, patients and families. These results have set an important basis ensuring better care and treatment for people with haemophilia and serve as a platform for driving the next steps on a national level,” Prof Sofijanka Glamocanin, project partner.
