Kenya 4

Provide standardised quality care across Kenya and adopt a unified approach to haematologic disorders in Kenya

Partner institution
Kenya Hemophilia Association, Nairobi

Represented by
Dr Kibet Shikuku, President


Duration
2 years, Q2 2018 – Q2 2020

Status
Completed

Objectives

  • Develop referral system and treatment guidelines
  • Strengthen Kenyatta National Hospital to become a haemophilia training facility
  • Bring care closer to people with haemophilia by establishing one haemophilia clinic and two satelite clinics
  • Improve bleeding disorders data management
  • Improve governance of Kenya Haemophilia Association and ensure proper succession planning
  • Increase public awareness on haemophilia and improve community knowledge
  • Increase government support to bleeding disorders

Add-on pilot project: “A unified approach to haematologic disorders in Kenya”

In May 2019, the Kenya 4 project team submitted a project application as an add-on to the already running project.

Objectives

  • Create a national patient organisation
  • Develop a national sickle cell disease registry
  • Standardise sickle cell disease care by consolidating treatment guidelines
  • Provide specialised sickle cell disease care by training of healthcare professionals
  • Develop a strategic plan for sickle cell disease
  • Opening of joint haemophilia and sickle cell disease clinic in Voi.

Achievements

  • Establishment of 2 referral clinics and a satellite clinic has brought care closer to people with haemophilia who no longer have to travel long distances
  • Joint clinic and partnership with Sickle Cell has increased public awareness and advocacy for haemophilia established an umbrella organisation for Sickle Cell
  • 5 youths have joined leadership positions within Kenya Hemophilia Association
  • Increased outreach has enabled diagnosed people with haemophilia understand their condition and manage it better
  • The patient organisation has been strengthened through the establishment of regional chapters, enabling more people to be active within the organisation
  • The Ministry of Health engagement has resulted in a good working relationship, enabling fast-track of tax waivers for factor donations, development of treatment guidelines and increased advocacy opportunities

January 2020: NNHF Council member Stephanie Seremetis visits Kenya

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here