Kenya 4 project

Provide standardised quality care across Kenya and adopt a unified approach to haematologic disorders in Kenya

Partner institution
Kenya Hemophilia Association (KHA), Nairobi

Represented by
Dr Kibet Shikuku, President


Duration
2 years, Q2 2018 – Q1 2021

Status
Completed

Objectives

  • Develop referral system and treatment guidelines
  • Strengthen Kenyatta National Hospital to become a haemophilia training facility
  • Bring care closer to people with haemophilia by establishing one haemophilia clinic and two satellite clinics to bring care closer to people with haemophilia
  • Improve bleeding disorders data management
  • Improve governance of KHA and ensure proper succession planning
  • Increase public awareness on haemophilia and improve community knowledge
  • Increase government support of bleeding disorders

Add-on pilot project: “A unified approach to haematologic disorders in Kenya”

In May 2019, the Kenya 4 project team submitted a project application as an add-on to the already running project.

Achievements

  • Establishment of 2 referral clinics and a satellite clinic has brought care closer to people with haemophilia who no longer have to travel long distances
  • Joint clinic and partnership with Sickle Cell has increased public awareness and advocacy for haemophilia established an umbrella organisation for Sickle Cell
  • 5 youths have joined leadership positions within Kenya Hemophilia Association
  • Increased outreach has enabled diagnosed people with haemophilia understand their condition and manage it better
  • The patient organisation has been strengthened through the establishment of regional chapters, enabling more people to be active within the organisation
  • The Ministry of Health engagement has resulted in a good working relationship, enabling fast-track of tax waivers for factor donations, development of treatment guidelines and increased advocacy opportunities

January 2020: NNHF Council member Stephanie Seremetis visits Kenya

Joining forces for better care of blood disorders

What began as an off-shoot of Kenya’s fourth project supported by the Novo Nordisk Haemophilia Foundation has grown into a true joining of forces between the haemophilia and sickle cell communities. Together, they have laid the groundwork for a unified approach to impact the care of haematological disorders across the country.

To read more click here.

NNHF projects in Kenya – 2012 to 2021

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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