Kenya 4 project
Provide standardised quality care across Kenya and adopt a unified approach to haematologic disorders in Kenya
Kenya Hemophilia Association (KHA), Nairobi
Dr Kibet Shikuku, President
2 years, Q2 2018 – Q1 2021
- Develop referral system and treatment guidelines
- Strengthen Kenyatta National Hospital to become a haemophilia training facility
- Bring care closer to people with haemophilia by establishing one haemophilia clinic and two satellite clinics to bring care closer to people with haemophilia
- Improve bleeding disorders data management
- Improve governance of KHA and ensure proper succession planning
- Increase public awareness on haemophilia and improve community knowledge
- Increase government support of bleeding disorders
Add-on pilot project: “A unified approach to haematologic disorders in Kenya”
In May 2019, the Kenya 4 project team submitted a project application as an add-on to the already running project.
- Establishment of 2 referral clinics and a satellite clinic has brought care closer to people with haemophilia who no longer have to travel long distances
- Joint clinic and partnership with Sickle Cell has increased public awareness and advocacy for haemophilia established an umbrella organisation for Sickle Cell
- 5 youths have joined leadership positions within Kenya Hemophilia Association
- Increased outreach has enabled diagnosed people with haemophilia understand their condition and manage it better
- The patient organisation has been strengthened through the establishment of regional chapters, enabling more people to be active within the organisation
- The Ministry of Health engagement has resulted in a good working relationship, enabling fast-track of tax waivers for factor donations, development of treatment guidelines and increased advocacy opportunities
January 2020: NNHF Council member Stephanie Seremetis visits Kenya
Joining forces for better care of blood disorders
What began as an off-shoot of Kenya’s fourth project supported by the Novo Nordisk Haemophilia Foundation has grown into a true joining of forces between the haemophilia and sickle cell communities. Together, they have laid the groundwork for a unified approach to impact the care of haematological disorders across the country.
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