Kenya 4
Provide standardised quality care across Kenya and adopt a unified approach to haematologic disorders in Kenya
Partner institution
Kenya Hemophilia Association, Nairobi
Represented by
Dr Kibet Shikuku, President
Duration
2 years, Q2 2018 – Q2 2020
Status
Completed
Objectives
- Develop referral system and treatment guidelines
- Strengthen Kenyatta National Hospital to become a haemophilia training facility
- Bring care closer to people with haemophilia by establishing one haemophilia clinic and two satelite clinics
- Improve bleeding disorders data management
- Improve governance of Kenya Haemophilia Association and ensure proper succession planning
- Increase public awareness on haemophilia and improve community knowledge
- Increase government support to bleeding disorders
Add-on pilot project: “A unified approach to haematologic disorders in Kenya”
In May 2019, the Kenya 4 project team submitted a project application as an add-on to the already running project.
Objectives
- Create a national patient organisation
- Develop a national sickle cell disease registry
- Standardise sickle cell disease care by consolidating treatment guidelines
- Provide specialised sickle cell disease care by training of healthcare professionals
- Develop a strategic plan for sickle cell disease
- Opening of joint haemophilia and sickle cell disease clinic in Voi.
Achievements
- Establishment of 2 referral clinics and a satellite clinic has brought care closer to people with haemophilia who no longer have to travel long distances
- Joint clinic and partnership with Sickle Cell has increased public awareness and advocacy for haemophilia established an umbrella organisation for Sickle Cell
- 5 youths have joined leadership positions within Kenya Hemophilia Association
- Increased outreach has enabled diagnosed people with haemophilia understand their condition and manage it better
- The patient organisation has been strengthened through the establishment of regional chapters, enabling more people to be active within the organisation
- The Ministry of Health engagement has resulted in a good working relationship, enabling fast-track of tax waivers for factor donations, development of treatment guidelines and increased advocacy opportunities
