Kenya 2 project

Formalise and activate the Kenya Haemophilia Association and enlarge the web-based registry

Partner institution
Kenya Haemophilia Association, Nairobi

Represented by
Fatma Abdalla
Kibet Shikuku
Festus Njuguna
James Kago

Duration
1 year, Q2 2014 – Q2 2015

Status
Completed

Objectives

• Formalise Kenya Haemophilia Association
• Conduct awareness campaign about bleeding disorders and circumcision
• Diagnose new people with haemophilia
• Expand the existing medical registry at Kenyatta National Hospital

Achievements

• Formalisation of Kenya Haemophilia Association (KHA)
• Establishment of one national registry
• Increased awareness on haemophilia at authority level and hospital management
• Disease awareness campaign at national scale leading to diagnoses of 48 new people with haemophilia
• Factor donations are now exempt from taxation, and there will be budget allocated to factor purchase
• Haemophilia is recognised as a debilitating condition, allowing members to qualify for disability grants
• Costs of hospital admissions will be waivered due to the chronicity of the condition, to allow financial relief to people with haemophilia