Jordan 3 project
Creation of a medical and social network to support haemophilia care across Jordan
Partner institution
Princess Sumaya University for Technology (PSUT), Amman
Represented by
Dr Arafat Awajan, Advisor to PSUT president, Vice President Jordanian Patient Association
Duration
2 years, Q2 2014 – Q2 2016
Status
Completed
Objectives
- Organise a comprehensive national training programme for healthcare professionals
- Conduct educational sessions and awareness campaigns for people with haemophilia
- Create educational materials for people with haemophilia and their family in Arabic
- Develop an Arabic website with educational material for both healthcare professionals and people with haemophilia. The website will serve as a communication channel for people with haemophilia and the different stakeholders in the Arabic speaking countries
Achievements
- Interactive website available for haemophilia community in local language
- National haemophilia committee formed
- Home treatment available for the first time
- Increased number of registered people with haemophilia receiving regular care
- Improved knowledge of people with haemophilia about their condition
