Jordan 2 project

Establish national registry for hereditary bleeding disorders

Partner institution
Jordan University Hospital, Amman

Represented by
Prof Abdalla S.S.Awidi, MD

3.5 years, Q3 2009 – Q2 2013



  • Establish a national registry of hereditary bleeding disorders based on international standards
  • Perform educational programme for healthcare professionals and people with haemophilia


  • Training of haematologists & medical students
  • 78 families received counselling leading to the identification and education of 15 carriers
  • 83 people with haemophilia and family members participated in training activities
  • > 400 people with haemophilia had their diagnosis confirmed and 261 had their mutation studied
  • Creation of national bleeding disorders software and registry

“The most difficult part about my son’s haemophilia was that my husband and I were constantly on the edge of our seats. It was really difficult. Every single time the phone rang, my heart skipped a beat.  Now I feel that we all would be able to handle an emergency much better,”  patients’ mother and workshop participant

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here