India 7 project
Preventing and decreasing musculoskeletal (MSK) morbidities among people with haemophilia in Southern India
Partner institution
Haemophilia Federation India
Represented by
Dr Pamela Narayan, MD
Duration
4 years, Q3 2015 – Q2 2019
Status
Completed
Objectives
- Map the musculoskeletal (MSK) morbidities and physiotherapy practices prevalent in factor limited settings, particularly India
- Delineate and implement a clinical pathway of MSK care for people with haemophilia
- Increase awareness and access to physical therapy in the management of MSK morbidities amongst people with haemophilia
Achievements
- Physiotherapy protocol developed
- Musculoskeletal (MSK) assessment and exercises training
- Orthopaedic surgeons trained
- 14 haemophilia centres providing MSK care
- 400 people with haemophilia trained in 3 physiotherapy camps
- 350 people with haemophilia included in the established MSK registry
- 2 abstracts presented at the MSK Congress
- 3 awareness films produced
- Physiotherapy included in the government haemophilia plan
