India 6 project

Capacity building and empowerment programme for care givers and parents involved in haemophilia care in North East and North India

Partner institution
Haemophilia Federation India, New Delhi

Represented by
Mr Mukesh Garodia, Vice-President
Dr Richa Mohan, HFI volunteer

Duration
3 years, Q4 2014 – Q4 2017

Status
Completed

Objectives

Improve skills of haematologists, lab technicians, physiotherapists and nurses of 8 states comprising the North East region
Customise the Parents Empowering Parents (PEP) programme according to local language and culture to enhance parents’ communications and capacity to manage their child’s condition
Train 40 parents in the suggested states using the adapted PEP programme in order to have them replicate the training to other parents in their chapters

A Parents Empowering Parents (PEP) programme was delivered to 158 participants from the North and North East regions, improving their own knowledge and giving them the skills to educate more parents in their region.
A 2-day workshop on the management of haemophilia was attended by 108 healthcare professionals, preparing them to provide effective care for people with haemophilia.

To read more about the project results click here