India 1 project

Establish a national network for paediatric patients

Partner institution
Sir Ganga Ram Hospital, Paediatric Haematology and Oncology/BMT Unit, New Delhi

Represented by
Dr Anupam Sachdeva, MD, Head, Pediatric Haematology Oncology Unit, BMT Unit

Duration
4.5 years, Q2 2009 – Q4 2013

Status
Completed

Objectives

• Develop training modules to improve the diagnosis, treatment and preventive measures
• Perform regional workshops for paediatricians – train-the-trainer concept
• Conduct educational camps for people with haemophilia

Achievements

• Multi-centre cooperation and national haemophilia network of paediatricians and health workers established
• Around 750–900 paediatricians trained
• Disease awareness within haemophilia community increased
• Standard set of manuals and guidelines provided to healthcare professionals