Honduras 1 project
Epidemiologic Identification of People with Haemophilia in Honduras (EIPHH)
Partner institution
Hospital Escuela, Department of Paediatric Haemato-oncology, Tegucigalpa
Represented by
Dr Armando Peña Hernández, Professor of the Pediatric Department, National University
Duration
1.5 years, Q2 2011 – Q4 2012
Status
Completed
Objectives
- Establish reference coagulation laboratory
- Define epidemiological picture of haemophilia in Honduras
- Create a data base of people with haemophilia
- Perform training for healthcare professionals and people with haemophilia
- Share project results and tools with healthcare providers
Achievements
- Laboratory created in Tegucigalpa
- Five laboratory technicians trained
- 15 evaluation days (one in San Pedro Sula and 14 in Tegucigalpa) leading to diagnosis of 189 people with haemophilia
- 280 healthcare professionals and people with haemophilia educated in sessions in Tegucigalpa, San Pedro Sula, Tocoa and Juticalpa
- Two patient-focused training camps held for 30 people with haemophilia
- 152 people with haemophilia registered in regional patient registry
“We all have clear roles and responsibilities to achieve our goals. The collaboration between patient association members and the medical team is fantastic because everybody has a part to play and a say,” María Del Carmen Agurcia, president of the patient association.
