Guinea 1
Increase haemophilia awareness and diagnosis in Guinea

Partner institution
Association Guinéenne pour la lutte contre l’hémophilie et autres maladies hémorragiques (AGUILHAMH)
Represented by
Dr Mamady Diakité
Abdoulaye Camara
Duration
2 years, Q1 2023 – Q1 2025
Objectives
- Increase haemophilia diagnosis rate from 3% to 9% by the end of 2024
- Strengthen healthcare professionals’ network nationwide for better access to haemophilia care
- Improve people with haemophilia and their families’ knowledge about the condition
- Strengthen haemophilia and sickle cell disease awareness in Guinea
- Advocate for integrated data of haemophilia and sickle cell disease to improve efficiency in providing care for rare blood disorders