Guatemala 2 project

Establishing a national haemophilia registry and multidisciplinary care teams in Guatemala

Partner institution
Hospital San Juan de Dios

Represented by
Pedro Alvarado, Dr
Josué Bautista, Dr

Duration
2.5 years, envisaged start Q3 2023

Status
Formalisation

Objectives

Achieve consolidated national data on haemophilia and other bleeding disorders in Guatemala
Improve quality of haemophilia care in Guatemala city with the strengthening of multidisciplinary care teams
Increase national access to diagnosis and care through decentralisation to Quetzaltenango
Advocate for the implementation of prophylaxis for children under the public healthcare system
Increase quality of life of people with haemophilia through awareness and empowerment