Egypt 1 project

Empowering Egyptian haemophilia community through medical and educational caravans across the country

Partner institution
Egyptian Society of Hemophilia, Cairo

Represented by
Dr Magdy El Ekiaby, Vice president
Dr Isis Morad, Project co-responsible person, Treasurer

Duration
2 years, Q2 2013 – Q1 2015

Status
Completed

Objectives

Establish of national care and treatment guidelines approved by the Ministry of Health
Realisation of seven medical caravans with educational and clinical activities for healthcare professionals, families and people with haemophilia
Increase of number of diagnosed people with haemophilia
Encouragement of people with haemophilia and their families to become active members of the ESH
Identification of new patient leaders
Increase of research information about haemophilia in Egypt
Performance of awareness creation programme to public with clear message: increase access to treatment

Organised seven awareness outreach caravans across Egypt attended by more than 530 healthcare professionals and 600 people with haemophilia with their families
Empowering Egyptian haemophilia community through leadership training. Young patients are active with the patient association
Patients and healthcare professionals network created
Factor availability increased from 14m units in 2013 to 30m units in 2014
Improve physiotherapy care by establishment of four physiotherapy clinics in the regions. It is expected that the physiotherapy clinics will help to improve patients’ joint function