Cuba 1 project

Establishment of haemophilia comprehensive care

Partner institution
Instituto de la Hematología e Immunología (IHI), La Habana

Represented by
Prof José M. Ballester Santovenia

3 years, Q2 2008 – Q2 2011



  • Improve IHI to be established as a national reference centre
  • Set up 2 regional comprehensive care centres in Pinar del Rio and Villa Clara


  • ‘IHI established as a national reference centre
  • Decentralised care set up through establishment of two regional haemophilia care centres in Villa Clara and Pinar del Rio
  • Outstanding results leading to Ministry of Health support in another two regions
  • Material on haemophilia and treatment guidelines updated
  • Information material on haemophilia for patients and their families produced
  • IHI provided with necessary equipment and reagents for accurate haemophilia diagnosis
  • National registry established at IHI including two other provinces
  • 1,553 people with bleeding disorders registered, of which 404 are people with haemophilia

“We see a considerable increase in the number of patients cared for and consulted by physicians and specialists.  This is reflected by an increase of 90% in the total number of coagulation essays realised,” Prof José M. Ballester Santovenia.

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here