Cuba 1 project
Establishment of haemophilia comprehensive care
Partner institution
Instituto de la Hematología e Immunología (IHI), La Habana
Represented by
Prof José M. Ballester Santovenia
Duration
3 years, Q2 2008 – Q2 2011
Status
Completed
Objectives
- Improve IHI to be established as a national reference centre
- Set up 2 regional comprehensive care centres in Pinar del Rio and Villa Clara
Achievements
- ‘IHI established as a national reference centre
- Decentralised care set up through establishment of two regional haemophilia care centres in Villa Clara and Pinar del Rio
- Outstanding results leading to Ministry of Health support in another two regions
- Material on haemophilia and treatment guidelines updated
- Information material on haemophilia for patients and their families produced
- IHI provided with necessary equipment and reagents for accurate haemophilia diagnosis
- National registry established at IHI including two other provinces
- 1,553 people with bleeding disorders registered, of which 404 are people with haemophilia
“We see a considerable increase in the number of patients cared for and consulted by physicians and specialists. This is reflected by an increase of 90% in the total number of coagulation essays realised,” Prof José M. Ballester Santovenia.
