Cuba 1

Establishment of haemophilia comprehensive care

Partner institution
Instituto de la Hematología e Immunología (IHI), La Habana

Represented by
Prof José M. Ballester Santovenia

Duration
3 years, Q2 2008 – Q2 2011

Status
Completed

Achievements

  • ‘IHI established as a national reference centre
  • Decentralised care set up through establishment of two regional haemophilia care centres in Villa Clara and Pinar del Rio
  • Outstanding results leading to Ministry of Health support in another two regions
  • Material on haemophilia and treatment guidelines updated
  • Information material on haemophilia for patients and their families produced
  • IHI provided with necessary equipment and reagents for accurate haemophilia diagnosis
  • National registry established at IHI including two other provinces
  • 1,553 people with bleeding disorders registered, of which 404 are people with haemophilia

“We see a considerable increase in the number of patients cared for and consulted by physicians and specialists.  This is reflected by an increase of 90% in the total number of coagulation essays realised,” Prof José M. Ballester Santovenia.

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Cuba: Dedication boosts successful decentralisation of care

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Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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